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Showing content with the highest reputation on 05/12/2020 in all areas

  1. I'm 4+ years from diagnosis and have some side effects. I have neuropathy, tinnitus, and some residual nerve damage. But as others have mentioned, side effects sure as hell beat the alternative.
    1 point
  2. jack14

    Keytruda

    Thanks for the prayers, information, kindness, and support. We are so much stronger together.
    1 point
  3. Steff

    INTRODUCTION

    snork- Your mother will likely not need most of the things that Robert discussed in his post - the potassium and B12, and nausea are mainly related to the Carboplantin his wife is receiving along with the Keytruda. My mom did about 1 year of Keytruda alone, she began with chemo and Keytruda - this was where most of her issues came from. Once she was on Keytruda, she had a much easier time. Here's what most people experience with Keytruda - some sort of fatigue, itchy skin/rash (some people have success with certain types of body washes and creams, my mom had to take benedryl to tone do
    1 point
  4. LouiseB

    INTRODUCTION

    All I would add as a heads up is to make sure her oncologist is fully aware if your mom happens to have a history of any kind of auto-immune disease, such as lupus, ulcerative colitis, crohn’s, etc., as immunotherapy drugs like keytruda may possibly cause a flare up. Sending best wishes to you and your mom.
    1 point
  5. May2

    Keytruda

    You are right, I guess things take time sometimes. Praying and hoping things go well 🙏 Thank you for sharing. Keep us posted.
    1 point
  6. 14 year survivor here, surgery, chemo & radiation. The main issues I still have is nerve damage around my scar and I get muscle cramps that feel as if they are in my ribcage, not sure if its from surgery/treatment or just being older and out of shape.
    1 point
  7. I was diagnosed with NSCLC Stage 3B in December 1997. I had chemo, radiation, then surgery followed by more Chemo. I am still here 22 and 1/2 years later. Donna G
    1 point
  8. Tom Galli

    Lobectomy scars

    MB, But I’ve developed techniques. First, I take 1,000 mg/day of Magnesium to address the low blood level, a side effect from too much chemo. This helps minimize muscle cramps. When I get one in the vicinity of incision scars, pain goes off the charts. Then there is the magic of lidocaine transducal patches applied to the scars and taped to stay in place. This knocks chronic incision pain back so most time allow sleep. I have to always be mindful that I very fortunate. Pain is a small price considering the alternative. Stay the course. Tom
    1 point
  9. Answer the following questions to determine whether palliative care might be right for you or someone close to you. Remember, you can receive palliative care at any point in your illness. https://getpalliativecare.org/rightforyou/
    1 point
  10. Z, Yes I have a number of side effects from treatment that still bother me. Taxol toes from too many Taxol infusions (18) total. Lesions that form in my scalp that is a residual from Tarceva, a targeted therapy I was given before doctors realized it wouldn't work on Squamous cell. I also have chronic pain along the right side of my body from three thoracic procedures performed within 4 months to remove my lung, and repair fistulas (leaks) in my airway. I also suffer from chronic low blood levels of magnesium. This causes muscle cramping and despite taking 1,000 mg per day, I am still bot
    0 points
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