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Showing content with the highest reputation on 05/21/2020 in all areas

  1. Lisa66

    Durvalumab

    Hi all, I am new to the Durva club. It is a club I would not have thought of six months ago, but my reality has changed since then. Barb, I was done with radiation on the twelfth of March and chemo on the 15th of March and now started on durvalumab a couple of weeks ago. I had a rough time of it with chemo and radiation and was like you, I just wanted to go somewhere and not think about cancer. We live in NC and was able to go to Myrtle beach when it reopened and it was wonderful. Take a little weekend and go somewhere it is good for the soul I think. Lisa
    3 points
  2. jack14

    Protective Masks

    They are easier to breathe through than my 3M N95. Maybe because the 3M has a bit less surface area due to it having a one way exhalation valve. The KN95 is lighter weight than the N95 too, and not as stiff. I seem to get a better seal with the elasticized fabric cover pulling it snuggly against my face though. Admitedl, I have been reluctant to put much strain on the straps because I don't want to pull them off lol.
    1 point
  3. Thanks Tom. 😊
    1 point
  4. Lisa66

    Swallowing issues

    Shane, I have a tumor in the right lung , and two mediastinal lymph nodes involved. I developed severe esophagitis midway through radiation.I was also having chemo at the same time, which made for double trouble. The pain is so bad. I discribed it as a lava pit pluse someone squeezing the middle of my chest and blocking what ever I tried to swallow including my own saliva. Ask for sucralfate and there is also a steroid liquid that you can take twice a day. Online you can get 500 calorie boost. I lived on it for two months. I had lost so much weight because there was no way to swallow without excruciating pain. I finished March 12th and I am finally able to eat with only a little of the esophageal spasms left if I eat to big of a bite. It will get better. Tell him to hang in there. I was also doing cisplatin and otopaside. I’m sure that is the wrong spelling. 😆 I know how he feels and it will get better. Prayers. Lisa
    1 point
  5. Lisa, My thought on tumor shrinkage is treatment is working. When I read my old scan radiology reports (a good idea to get paper copies of all your diagnostics), they refer to “scars” where tumors once were, three in total in my right lung. Two of these resulted from chemotherapy and the remainder was SBRT precision radiation. So the analogy of a charred burn pile in the yard is a good one and lets hope continued shrinkage results in “scarred-down” tumors. Durva is good stuff for many! Stay the course. Tom
    1 point
  6. LUNGevityKristin

    Protective Masks

    Thank you for all of this information! How do they feel when you are wearing them? Are they a good fit? Okay to breathe in?
    1 point
  7. Hey Lisa, Just wanted to drop a line and say, hello, it's nice to hear from you again! Let's get this show on the road. As a newly inducted member of the Durva Club, you will find the biggest challenge for the ladies has been weight gain.... ugh. There's some really great information in all the Durva posts which will leave you very prepared on what to expect from this brave group of trailblazers. Glad to learn about your most recent update! Carry on, Michelle
    1 point
  8. Thanks Tom & MB! I appreciate the sentiment. It is a wait & see deal. 3 months, so I guess i wait. Ugh! Tom, she mentioned that if it does turn out to be a tumor, we could cyberknife it. (One of the options). That is what you are referring to, no?? My local cancer center has a unit on premise. If need be, I say we fry it!!!😁 I'll be lurking. Mark
    1 point
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