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Showing content with the highest reputation on 06/28/2020 in all areas

  1. CLM

    Terrified newbie

    Tom, you may be my new best friend! I loved all of that advice! Thank you!
    2 points
  2. Tom Galli

    Terrified newbie

    CLM, Let me add my welcome to Lin's. I second her advice of meeting with your doctor, making your plan and especially trying to remain calm. Let me add this that may yield some insight into coping with diagnostics and treatment. Questions? Here is a very good information source that is easily read about our disease. The tough part for most of us is learning a brand new vocabulary and Lung Cancer 101 helps. Stay the course. Tom
    1 point
  3. Donna G

    Christy

    I read in your other post that you are terrified. This is tough. Please keep us posted on treatment options, feel free to ask questions. Donna G
    1 point
  4. Lin wilki

    Terrified newbie

    Welcome! Best place to be for resources and HOPE. Plenty of long time survivors on this site that can answer questions and listen to you I am a one year survivor - stage 4 adenocarcinoma. Still here still trying different treatments. There’s always hope I do remember the extreme anxiety I had when I was going through all the tests. Cancer? Maybe an infection? No one wants this diagnosis but once you meet your doctor and make your plan - you calm down and start your journey Good luck and keep us updated
    1 point
  5. Hi, I am new here, also I had a CT done for a pre-op surgery, they found a 10mm nodule on the upper part of my left lung. I am waiting for a PET scan now. I am so scared, anxious and not able to eat. I am an ex-smoker and quit about 9 years ago. Just being on this site makes me feel better, as I don't feel so alone. I am married and have 3 children who are all very supportive and very scared for me too. I know about 5 years ago I had a CXR and there was something there, they ordered a CT scan then, they called and said it was fine. I didn't even question that, and now here we are. I am so scared, I don't know what to do with myself. But thank you all for being here.
    1 point
  6. Kwally, Now I have been on both sides of the table I can only offer a little perspective. As the patient now I have made it my mission in life to treat my wife and kids as the precious gifts they are. I'm still dad but the last 3 months with my adult boys have been a joy. So has my time with my wife. This attitude is something I am in total control of.....so it has a high priority. So far bonding with my family has been one of the only positives of Cancer. As a caregiver it's harder. All I want from my wife, kids and dog is love. If I was on the other side again that would be my number one focus.....love. Peace Tom
    1 point
  7. Hi Jenny, Welcome here. First things first, you are not alone. I'm sorry you have to join the club here. Of course it's terrifying to hear about a Stage IV lung cancer diagnosis. I was diagnosed almost two years ago. I'm doing well. It's not a terminal condition with the advances in treatment. Diagnosis is not prognosis. The best guidance we can give you is to stay off the internet. There have been more advances in the last five years than in the last fifty years, in the last month the FDA approved seven new treatments. It is critically important to understand exactly what type of lung cancer you have through something called bio-marker testing which identifies the DNA structure of the tumor and helps the medical team to use precision medicine. You might want to check out the book by Greg Anderson: Cancer-50 Essential Things to Do. He's a Stage IV lung cancer survivor that was diagnosed over twenty years ago, In the beginning it's so hard to get your head wrapped around this. The emotional roller coaster is a horrible ride. Give yourself some time to adjust. It's okay to cry. We all do. Some days you will take it hour by hour, you can do this. Brighter days are coming. We're here for you. Michelle
    1 point
  8. Hi Jenny, I'm sorry to hear of your diagnosis. There have been great advancements in lung cancer treatments in the last few years. You can be NED (no evidence of disease) still at stage IV. You can still fight this. There is hope. I'm glad your doctor is having biomarker testing done, that can be very helpful determining a treatment plan. We are here for you, please keep us updated on how you are feeling. Also, if you check out the blogs section, I posted an article yesterday of a lung cancer survivor who biked across the country! Your marathon career doesn't have to end now.
    1 point
  9. Hi Jennedy, I'm sorry to hear abut your diagnosis. it's understandable that you're terrified. You can fight this cancer and you can live. If you look around this site, you will find quite a few people who are surviving for years with a stage 4 diagnosis. In the past few years, there have been a lot of new treatments approved. There are also clinical trials that might be appropriate for you. So, hang in there! Recognize that your fear is a normal and expected reaction. It may never completely go away, but it will get easier to cope with. Bridget O
    1 point
  10. ChiMama, You can do this and you will. Our stories are similar. I was diagnosed with colon cancer in March of 2010 and, like you, underwent surgery the following month. I didn't require follow on chemo or other treatment. Of course, also like you, there were plenty of checkups that now occur every two years (I'm due this year but Covid means it will happen next year). In January of 2019 I had a CT Scan for a kidney stone and my doctor wound up referring me to a Pulmonologist because of a nodule located in my lower right lobe. After an inconclusive PET Scan and an unsuccessful CT-Guided Biopsy I had surgery where they removed a wedge, determined it was malignant and took the lower right lobe out. This happened May 2nd 2019...so far I've been NED (No Evidence of Disease) and didn't require additional treatment. So...you can see why I find our situations similar. I believe you're smart to get the best lung surgeon you can to do the work. Mine was highly regarded by other doctors I know and his specialty was lung surgery so I was comfortable with him. I can also tell you that, except for an unfortunate situation where I was refusing my pain meds, my recovery from the lung surgery was easier than from the colon resection. I'll admit that I had more fear with the lung surgery, but overall the recovery was quicker and less painful than the surgery I endured in 2010. So, perhaps that will help you calibrate yourself as you approach your surgery. Like you I was up and down (and sometimes sideways). But, in my case I had a tendency to "catastrophize" what was happening to me. I had already counted myself down and out with a finish soon to come. Then I came to this forum. People shared similar stories to mine, they made it and did so pretty well...they had good outcomes. Some folks here have battled Stage IV cancer and been victorious despite numerous treatments, surgeries and recurrences. I'm amazed at the people I have met here and the comfort that they brought to me. One fellow (Curt, who's posted on your chain) had a VATS lobectomy shortly before me and his description of the surgery, hospital stay and recovery gave me real hope to get through. You'll get through as well. Feel free to ask questions here about any fear you have; any fear or doubt. Somebody here will have had some experience in the subject you want more information on and frankly I can't tell you how comforting it is to know that I have a family here who shares my story and knows and supports me. You're now part of that family. So...try not to "go to the end" of this thing. Take each day as a good one. Know that this will likely be easier than what you went through 4 years ago and feel comfortable that we have your back here. Don't bother looking up stats on Google...they're already out of date and survival rates are getting better all the time. You nodule is like mine; small. That means it's likely they caught you early and a surgical intervention could be a cure (much like we had with the colon cancer). Stay positive, take notes when you meet your doctors and come here with any questions. You've got this! Lou
    1 point
  11. Susan, I've had so many scheduled trips cancelled, I've become an expert in travel insurance claims! My medical team all suggest a strict quarantine till herd immunity is established. This due to my very low pulmonary capacity and the primary attack point of the virus is my under capacity lung. I'm sitting this one out confined to the house or driving Martha to a shopping destination and remaining in the car. Martha disinfects everything brought into the house including Amazon packages and the mail. There is much clamor to open the nation and oddly I think that is a good idea. There won't be herd immunity till the virus spreads through a large portion of our population. A vaccine may help but I'm troubled by reports I've read about re-infection with COVID-like symptoms. So this may behave like our annual flu virus where virologists take a best guess at a vaccine formulation that may not have any effect on the virus in circulation. One more thing I think about---I don't want to have waged a successful campaign against lung cancer to be taken out by a simple virus! So, I am staying inside and.... Staying the course. Tom
    1 point
  12. REG

    Scared

    Thank you everyone, met with surgeon, he assured me that my surgery is necessary ASAP. He scheduled me for a lobectomy (upper L) on April, 9th. Of course, I wish it could be sooner as they are currently measuring my tumor as 3.9cm, I am very concerned that my tumor will grow to 4 cm (or more) by the time I have surgery...that would move me up to a stage II diagnosis from what I can see? How concerned should I be about upstaging? Guess I don't really have a choice anyway at this point, just hoping there are no unforeseen delays beyond the 9th? Thanks again to each of you for your very kind support, information and resources!
    1 point
  13. Kate7617

    Scared

    Hang in there and yes it is scary!! We all know that feeling. As much as it is said, I will say it again, One day at a time being hopeful that is all we can do. I wish I could hug you and tell you everything will be ok, but we don't know bottom line. Let's all pray for each other and Let God take the Wheel! He knows best!
    1 point
  14. BridgetO

    Scared

    Hi REG, Being over 65 doesn't mean you can't deal with lung cancer, or any cancer for that matter. I was 70 when I had my lower right lobe removed due to non-small-call lung cancer. Admittedly, my tumor was smaller than yours. However when I was 66, I had a non-lung cancer that was advanced and aggressive, I had a BIG surgery, followed by radiation and chemo. Despite some long term side effects of that grueling treatment, I'm fine today, with No Evidence of Disease (NED). At 74, I work part time, travel when I can afford it, and generally have a good quality of life. Hang in there and don't despair, REG. Bridget O
    1 point
  15. REG

    Scared

    Thank you, Tom, Rose, Kristin and May, Looks like this is a great place to be. I know you have all gone through/are going through the road that I am just beginning to travel, my best to each of you as well!!! I will draw on the advice and resources that you have so kindly provided...I will keep you all posted. Thank you
    1 point
  16. Hi, Robin. I'm so glad you found this forum. We have so many great contributors here. You will learn very quickly that everything is hurry up and wait. I also had to adapt quickly to the loss of control of my schedule! Great news is we've had lots of advances in treatments. We've got people living with this as a chronic disease. Doesn't sound fun but it sure beats the alternative. I'm a stage IV about to hit my 4 year cancerversary. It can be done. Please let us know how we can support you.
    1 point
  17. Lin wilki

    First Time Out

    I live in suburbs of Chicago. Outdoor seating at restaurants! Have reservations this evening. Little steps to get back to life VERY upsetting how many are not social distancing - like garden centers and beer gardens. And now we are having protesting/riots in so many of our cities making it more dangerous to attempt a little normalcy The world has gone NUTS
    0 points
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