Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 08/03/2020 in all areas

  1. jack14

    CT scan results

    Well, I saw my Onc today and got the results of yesterdays CT scan. She had told me last week that she was not very optimistic that the Keytruda was working for me. She based that on the one lymph node that she can palpate which didn't feel as though it had shrank any, but had maybe even grown some. She added that we would probably be switching to chemo therapy a day or so after the scan. I had my first taste of "scanziety" and I sure didn't like it. So, I get my blood drawn for my tri-weekly labs and vitals taken. And she walks in the room and, we are both wearing masks so I ca
    2 points
  2. Hi Laura .. I'm so sorry about your dad. There are some really wonderful folks on this site. My wife finished up first line treatment for SCLC back in April so you are welcome to check out my posts for info but keep in mind that everyone is different when it comes to treatment reaction. The etoposide is all 3 days while cisplatin is on the first day and typically occurs every 3 weeks for 4 times (4 cycles) and maybe up to 6 times if warranted. In general no metastases means NOT stage IV but don't hold me to this. I believe that there are some rules about size (7cm) that might make it sta
    2 points
  3. GaryG

    CT scan results

    Very good question but the answer is simple but not simplistic. First one needs to know how the human body functions. Scientists have come a long way in estimating the number of cells in the average human body. Most recent estimates put the number of cells at around 30 trillion. Written out, that’s 30,000,000,000,000! These cells all work in harmony to carry out all the basic functions necessary for humans to survive. But it’s not just human cells inside your body. Scientists estimate that the number of bacterial cells in the human body likely exceeds the number of human cells. https://ww
    2 points
  4. Rower Michelle

    CT scan results

    Hi Jack Just catching up today. Congrats on getting through scan #1. No one likes scanxiety it totally sucks. So glad it was good news. I wish we knew more about why some people respond to treatment while others don’t. Carry on! We’re rooting for you! Michelle
    2 points
  5. During a Lungevity's survivors zoom meet-up we discussed how best to make personal medical history available if one is incapacitated and family members are not present. One can purchase bracelets that warn of specific medical conditions and allergies, but we lung cancer survivors often have complex medical conditions and side-effects that can complicate diagnosis and treatment by emergency medicine professionals. A survivor mentioned the Health App found on an iPhone, and sure enough, one was hanging out on my phone completely devoid of any information. No longer, now it contains my complete m
    1 point
  6. Yup, and after we got off the call I figured out how to set it so it's accessible from the lock screen. Obviously there are privacy considerations, but all things considered, I'd rather risk a bad guy knowing who my doctors/meds are than have a problem and no way for the first responders to access my info. Obviously, you shouldn't include anything like your SSN or banking info, but there's no reason anyone would need that anyway. And it might be smart to simply list your age rather than your DOB, which can also sometimes be sensitive. Just use good sense and don't include anything t
    1 point
  7. jack14

    CT scan results

    Thank you Michelle! I am rooting for all of you too. And thanks Gary. Those are some truly interesting facts. I had heard about the sharing and integration of information and believe that will help us to see an end the death and suffering. I only hope that we see a breakthrough in regards to perfecting that "personailzed medicine" much sooner than later.
    1 point
  8. Hi Olivia, I'm sorry to hear about your dad's brain tumor. There are folks on these forum that have had surgery or radiation to successfully treat brain mets. There is hope. Hang in there! Bridget O
    1 point
  9. LexieCat

    CT Scan Results

    Me, too--and I suspect that's true for most of us. My docs are clearly preparing me for bad news--not to scare me, but just to give me a chance to start processing the possibility of bad news. I'm sure THEY hate the uncertainty, too. Once we know what we're dealing with, we can suit up and show up to deal with whatever it turns out to be. I'm just glad there are options to better treat the various possibilities.
    1 point
  10. DebM

    CT Scan Results

    Thank so much for the quick responses ladies. I am usually pretty calm and don't typically panic until I have all of the info. This has just absolutely blindsided me. My family was celebrating my last treatment 6 days ago. I can't imagine telling them this news. I'm not sure how to reply to you individually... Thank you for the info Roz! I do not think that I had biomarker testing done. It doesn't seem to be included in my test results and I never received any information about it. I will talk to the surgeon about it when I hear from him. I have read many of your posts and am
    1 point
  11. Tom Galli

    CT Scan Results

    Deb, I'd freak out also. Most perplexing are the words: "indeterminate and possibility of metastases!" I have "phantom nodules" that appear one scan and are gone the next. I've been dealing with these for years and in fact even record them by scan date and location on a spreadsheet. That helps reduce my post scan freak show. But I still suffer scanziety. I've not found a solution for reducing the pre-scan scanziety or the post scan freak "phantom nodule" show. It just seems to be part of the disease. Likely you'll have a consultation with a medical oncologist or pulmonologist to
    1 point
  12. LexieCat

    CT Scan Results

    I'm with you on freaking out a bit. I'm three years out of my lobectomy (Stage Ib at the time), have been scanned every six months and all of a sudden I'm looking at some pretty scary PET-CT results. I go for biopsy in a little over a week. This cancer stuff seems utterly random--nobody was predicting I'd have a recurrence--not this far away from my initial surgery. But we gotta deal with what's in front of us. I didn't have chemo after my surgery (though it was offered--but not strongly recommended) and, of course, now I wish I had. Yet your experience shows that even the chemo can't gua
    1 point
  13. CLM

    Starting treatment

    Hi, Jennedy, I’m on day 2 of Tagrisso. I swear I can already feel a difference. It seems crazy to me that it would be working that quickly, but I’ll take it! I’m still coughing but it feels lighter and breathing feels easier. I randomly feel a twinge of mild pain but less pain than I previously felt. It’s truly incredible. I keep telling my cells, “this is it, fight off this cancer beast.” 😃 Please touch base when you start! I can’t wait to hear about your experience. ❤️ Christy
    1 point
×
×
  • Create New...