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Showing content with the highest reputation on 01/31/2021 in all areas

  1. LouT

    Introducing myself

    Kata, Like others here, I'm sorry to hear about your Mother's cancer. Gary and Bridget have already pointed out that there is "Life Besides Cancer". If there wasn't, then what would be the purpose of wanting to survive it. Learn all you can, share success stories with your Mother and live life with her. Go out for a walk, do anything you can (during this crazy time of Covid), but make life fun and rewarding. Cancer may well be the thing that takes any of us survivors out, but maybe not. Chances for our survival get better every day and my belief is; "I will never be as young as I am
    3 points
  2. Deb W

    MET EXON 14

    Hi, I have MET Exon 14 skipping. I was stage 1B in 3/19, had surgery ULL lobectomy and had clear follow-up scans. In 4/20 I was diagnosed withI stage IV, recurrence micro metestases. I have been in remission since August. I did not learn of the MET mutation (2nd opinion oncologist found it) until after I had already been put on carbo/alimta/Keytruda (changed oncologists). They felt it was better to continue with this plan since it was working. I have been on a maintenance plan with Keytruda,but now after 7 months I've developed colitis so I'm on hold with the Keytruda. I have b
    2 points
  3. Thanks so much GaryG!
    2 points
  4. Michelle, Thank-you so much! My cancer journey has been very lonely, so I am glad to finally find others to connect with for support. Blessings to everyone! Susan
    2 points
  5. GaryG

    Introducing myself

    Hi Kata: Welcome to our group and sorry to hear about your Mom. It seems like cancer, treatment and depression go hand in hand. First of all you can't plan for the day when your Mom gets sicker because you don't know if that day will ever come. There is always hope that the new drug will help and you should only plan for that day. And yes she can have a life beside cancer. For example I just returned from playing tennis. As cancer patients we take it one day at a time and react to the good and bad accordingly. You are welcome to visit here often, ask question and learn from our experiences. W
    2 points
  6. TJM

    COVID Vaccine anyone

    Amen Lou
    2 points
  7. Hi Survivo, Welcome to our forum. My LC (Lung Cancer) was treated surgically so I cannot give you personal experience with chemo, but I'm sure you'll be hearing from others very soon. In the meantime we have a forum dedicated to Chemotherapy that can be found here. Sit tight you'll soon be hearing from others. Lou
    1 point
  8. Dear Michelle, I realize this post is from April 26, 2019, but WOW! was it helpful for me TODAY! I am going to savor your supportive message and remember your words of wisdom! Thank-YOU! Susan
    1 point
  9. TD1

    MET EXON 14

    Looking for others with MET EXON 14 skipping. I have stage IV now stage IIIA nsclc, adenocarcinoma. Had a 15 cm tumor with all right side mediastinum lymph nodes involved and a few nodules in the right pleura. MET Amplification. SUV max pre-treatment 25.9. Poorly differentiated adenocarcinoma. Was treated with crizotinib, had excellent results with 60 % shrinkage after a few months. I had a right pneumonectomy in April 2018 and had a pathologic complete response. Crizotinib was my only treatment. I didn't have chemotherapy. I stopped taking crizotinib one month post pneumonectomy and a few
    1 point
  10. KMC, I'm sorry that you, your Mom and family are going through this. Having been in your shoes last year, I know how difficult not to mention heartbreaking it is. You may want to think about bringing hospice in sooner rather than later. This way they are in place and familiar with your Mom and your family when things come up as you all go down this road. My experience with them with my Mom was that they we’re invaluable in terms of providing what we needed to keep my Mom comfortable in her own home for the last five months of her life. They were a great support to me as her caregiver. It
    1 point
  11. BridgetO

    Introducing myself

    Hi Kata, Gary is right, we ever know if that day will come. I'm a survivor of stage 1 non-small-cell lung cancer, so my prognosis is fairly rosy, so far as lung cancer goes. However, I previously had a rare and aggressive form of cervical/endometrial cancer, Stage 3, with a really bad prognosis. For a few years, i wouldn't make any plans for more than a couple months in the future because I didn't think I was going to survive long. Well, In March it will be 10 years since my diagnosis. Which goes to show that we just don't know and doctors just don't know. Best wishes to your mom. I hope she c
    1 point
  12. BridgetO

    COVID Vaccine anyone

    Hey, I want that anti-klutz vaccine too! I've been clumsy since childhood. With age (old age?!) it's more of a problem because falls are more likely to be dangerous. TJM- not drinking helps! Doesn't make me graceful though.
    1 point
  13. LexieCat

    COVID Vaccine anyone

    Tom, you and I need the anti-klutz vaccine. I realize COVID had to take priority, but if there were something available for the other, I'd be first in line to get it.
    1 point
  14. I can't believe it's been three months already. I'm getting a full blood workup (through my port if I'm lucky), then a CT scan from nose to knees first thing in the morning. Then the wait. My appt isn't until Tuesday Feb 2nd and I only meet with the PA. I've met with her a few times during chemo. She never volunteers data, you have to kind of coax it out of her. Just so it's good news, I hope. My best to all of you.
    1 point
  15. Sillycat1957

    COVID Vaccine anyone

    Lou T So sorry to hear about your wife's reaction to the vaccine. I hope she continues to improve. And the best of luck to you when you get yours! Take Care, Roseann
    1 point
  16. Here is a LUNGevity post with frequently asked questions about the Covid-19 vaccine for lung cancer patients: https://lungevity.org/news-blogs/blogs/covid-19-vaccine-and-lung-cancer-top-10-questions-answered?fbclid=IwAR3zxaost7xLhQ61wyvH6OWdrcJgpmhQWImfUwBeNCeIPIh1wywa0jbS6kI
    1 point
  17. Sillycat1957

    COVID Vaccine anyone

    Yeah, I guess it's just fear of the unknown. I will go with what my Doctors recommend. If I have a reaction, I hope it is not a bad one, If I don't I'll be very happy 😊 thanks everyone, for your valuable inputs, I'm just in no rush to get it Lol πŸ˜‚
    1 point
  18. GaryG

    COVID Vaccine anyone

    Yes there are those reports in addition to 400,000 deaths and millions infected. That does not scare me the most. What does is the fear to infect my wife, family ,friends and anybody I come close to. For that alone I will happily take my chance with the vaccine especially under the guidance of my doctor.
    1 point
  19. Opal

    COVID Vaccine anyone

    Some of the reported symptoms of the Covid virus is that it attacks your lungs, affects oxygen levels and respiratory system especially those with a weakend immune system. I guess I don't understand how getting the vaccine help? Thank you Roseanne for sharing your humble opinion, and you too Lou. it is appreciated! Opal
    1 point
  20. Our medical world grows in complexity. There are now doctors with titles like thoracic oncologists and interventional radiologists. All this specialization has a place in our increasingly convoluted world of unpronounceable drugs and obtuse procedures. Amid this world of complicatedness toils the general or family practice physician. In my mind, they are the most important physician in the medical system. Why? Last night at about 7:30 PM, I was notified that my first dose of COVID vaccine would arrive at my GP's clinic today. Moreover, the practice nurse would contact me today (and did) s
    1 point
  21. Hi Susan, Just want to say hello and welcome you to the group. Let us know how we can support you! Michelle
    1 point
  22. Rower Michelle

    Diet & Supplements

    When I was diagnosed I sought out the help of a board certified integrative medicine physician who was also an oncologist. I learned early on that there are many different types of lung cancers and diet/nutrition/supplements need to be tailored to your diagnosis. Now many of these doctors accept insurance but I paid a substantial amount of money out of pocket to get a regime I was comfortable with and I also got a second opinion You can find a doctor here: https://integrativemedicine.arizona.edu/alumni.html The Diet I am following is here: https://www.drweil.com/
    1 point
  23. Hi Lisa, you can get custom dietary recommendations from Ina. Here is information for this free service: https://lungevity.org/for-patients-caregivers/support-services/meet-ina-your-personal-intelligent-nutrition-assistant
    1 point
  24. LouT

    Diet & Supplements

    I too believe that you can just eat a balanced and healthy diet (i.e., lots of fruits and veggies, limit large amounts of red meat, whole grains, etc.). Good general health also depends on a practical physical routine as well as sleep and maintaining some sense of serenity. So, food is a part, but as Lexie said, "there is no cancer fighting diet", regardless of what some people will tell you. Balanced diet, exercise, adequate rest and serenity are probably the best things you can do to keep a healthy immune system and allow your body to take care of itself well. Lou
    1 point
  25. LexieCat

    Diet & Supplements

    I've been dealing with lung cancer for over three years, and there is no "cancer fighting" special diet. You should eat a good, healthy, balanced diet to the extent possible--some chemo patients have a hard time stomaching food and for them, the professionals recommend nutritional drinks if tolerable, and as many calories as possible. As far as supplements go, check with your oncologist or an oncological nutritionist. My oncologist told me to cut out extra Vitamin C and Fish Oil because there was research to suggest those could be harmful. My oncologist has OK'd the few supplements I tak
    1 point
  26. Niess

    Starting Tecentriq again

    Hey, how's it going? You haven't posted in a while. I hope the wedding was fantastic and your mom is tolerating the biologic well. I've been receiving Tecentriq Biologic once a month for 5 months now and it has done amazing things by shrinking and eliminating many of my tumors but I find the side effects are increasing over time with regard to flu like symptoms, crazy fatigue, arthritis, bone and joint pain along with weird skin issues. I hope your mom doesn't experience any of these. Please post an update and thanks so much for sharing.
    1 point
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