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Showing content with the highest reputation on 02/04/2021 in all areas

  1. Sally Lash

    Hello from Florida!

    Hi KizzyMittens, I’m also relatively newly diagnosed, squamous small cell and new to this site. Keep a list of your questions, see if you can bring someone so they can write down the answers, if you can’t, tell your doctor you will have someone on speaker that will be part of the discussion, record your visit also. He can not just walk out at the 15 minute mark so keep talking. Ask for a nurse navigator to call you twice a week to check in. I was a great advocate for my parents but not for myself. The folks here gave me a good shake to wake up thank goodness. I even told my doctor to change hi
    3 points
  2. Sally Lash

    Introduction: Rob B.

    Smoked for close to fifty years... even writing that makes me queasy. For me what is working is two patches and a blu fake cigarette for emergency cravings and changing my routines. We aren’t weak we are drug addicted! Every minute you don’t smoke is the start of overcoming nicotine.
    2 points
  3. TJM

    Small Cell Carcinoma

    So sorry. Take a deep breath. I will never forget the impact of my own diagnosis and how lost I felt. Rest assured that there is hope. I started to feel more in control once I had a treatment plan, hopefully you will as well. This place has been a godsend for me and it can be for you as well. I assume the biopsy results are back since you know it is small cell. There are numerous small cell survivors who I am sure will be posting soon. I have Large cell and it is treated similar to small cell. Depending on where it is and if it has spread will determine the likely treatment options. I ha
    2 points
  4. Congrats, Tom! Nice feet and good pedicure job! I expect to see at least another 17.
    2 points
  5. Hi Gary, Male age 77, detected NSLC right lung with back pain 3 years on since first chemotherapy Carbo+Pemetrexed, then Tagrisso, mutation changed spread from right to left lung and brain, liver. Started Nivolumab other areas in control except now left lung nodules harassing with breathing now just added Ipilumumab but fluid collection so now have put an ICD for fluid to collect but still breathing is difficult. Looking for some first hand experiences about Nivolumab+Ipilumumab. Thanks
    2 points
  6. There's a game on Sunday?
    2 points
  7. Today I celebrate 17 years surviving lung cancer. COVID is a nightmare. But, I am celebrating nevertheless. Life after lung cancer is precious and most worthy of celebration. You might note I’ve run out of toes to paint. I do this to honor Phillip Berman, MD, a radiologist with Stage IV lung cancer, who was instrumental in my survival. Phil resolved to paint a toenail red for each year he survived “this madness.” He painted 5 before passing; I continue the tradition using LUNGevity Blue. My reason is: if I can live, so can you. Stay the course.
    1 point
  8. Robert, just wanted to share some resources to quit smoking with you: https://lungevity.org/for-patients-caregivers/lung-cancer-101/reducing-your-risk There are links on the bottom of the section. We are here for you.
    1 point
  9. Deb W

    METex14

    Hi, The FDA approved a new drug for METex14 patients: http://media.emdserono.com/2021-02-03-FDA-approves-TEPMETKO-for-Patients-with-Metastatic-NSCLC-with-METex14-Skipping-Alterations
    1 point
  10. Again, thank you all. I’ll pass along these recommendations. I just started Farewell by Creagan and Wendel. It’s a nice compilation of what-to-expects as someone approaches end of life. So far it’s helpful!
    1 point
  11. Kmc, your mother and your family have been through so much, and SCLC is a beast. You are wise to explore palliative care and consider hospice care. From personal experience, their mission is the comfort of both their patient and the family. They can offer not only nursing services but also support for grief and spiritual care. You should seek out a reputable service with a strong track record. (Over the last several weeks, I've had to fire one hospice company for my father and hire a new one. His health has declined significantly since Christmas, so I'm not posting much here lately.) You
    1 point
  12. GaryG

    Introduction: Rob B.

    Babs: I admire your resilience and I congratulate you for quitting. It is not easy but it can be done. I went through many phases of fighting cigarettes. I smoked for 10 years and I tried to quit every day without succeeding. Finally I decided to be truthful with myself and admitted that I was addicted . Only there and then I understood that I was a slave to nicotine and a prey to tar. I started on Nicorette Gum. At the beginning I chewed the gum till I had sores in my mouth. But little by little I reduced the chewing till I quit completely. 40 years later, I still feel sorry for inflicting
    1 point
  13. Kmc, Welcome here. Life, it seems, is about making touch choices. There is that crossover point in medical treatment where the cure is worse than the malady. Unfortunately, that point is most prevalent in cancer treatment. My wife and I faced a time in 4th line treatment where we had slim odds of success. I'd had a total of 18 infusions of chemotherapy in nearly 3 years of treatment and a still tumor persisted. This was well before modern treatment methods of targeted therapy and immunotherapy, and another round of Taxol and Carboplatin for us had very high probability of yieldi
    1 point
  14. LadyCrone

    Small Cell Carcinoma

    I was diagnosed with small cell carcinoma last month. I had pneumonia in late November, when the area of concern showed its ugly head. I didn't go to my pulmonologist until over a month later, when I wasn't improving much from the pneumonia. He ordered a CT scan then a biopsy. Now I'm exhibiting symptoms are spread to the bones. I have yet to have a single treatment. Looking for hope I guess. Or brutal honesty
    0 points
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