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Showing content with the highest reputation since 12/21/2020 in Posts

  1. Hi, Kwally, I'm so sorry for your loss. I agree with everything Bridget said--none of us knows the future or how each event is gonna unfold. You did your best, and from everything I can see, that was pretty damn good. We always think, "If only I'd known," but really, if we actually DO know we spend that final precious time being sad and stressed out about what's coming. Your dad died feeling hopeful about the future. Given the fact that none of us knows what tomorrow will bring, that's about as good as it gets. Sending you and your family many warm thoughts. I lost my mom almos
    4 points
  2. LouT

    Jeanne

    Jeanne, Bridget has already shared good information with you. For my part I would say you should seek the help of professionals. You have gone through trauma that can result in anxiety or potentially a form of PTSD. I know that may sound odd, but I'm part of a group of Alzheimer's caregivers and I've heard more than one person discuss how their doctor has determined what they were suffering as PTSD. They relive the most terrible situations over and over with terrible emotional and physical reactions to it. Please seek professional help. You've been in a battle for your Mother's life
    4 points
  3. Barb1260

    Durvalumab

    https://www.jto.org/article/S1556-0864(21)00022-8/fulltext?fbclid=IwAR2DlB6INSmAvksYzf94yS-txd8wGG_1jjI_fWZiWi9Tl3-Np1tcmEUUtKU Good news. Hope the link works!
    3 points
  4. Golfman

    Recurrence

    Thanks to all of you for your encouragement. Luckily, my earlier chemo with Tecentriq stabilized it for 2 years. Then I picture the cancer as becoming immune to my immunotherapy. So now we'll be killing it with the new chemo. No holds barred. We'll kill it, stabilize it again, and press onward. One infusion every three weeks. My understanding is that lurbinectedin is a new second line that seems to be better tolerated. Thank you, D iane. I've posed your question regarding repeating my first line treatment to my onc. and am awaiting her response.
    3 points
  5. GaryG

    Durvalumab

    Barb: great news indeed but maddening at the same time. Now if we manage to figure out how to asses the whole lung cancer population, for ALL immunotherapy drugs, it might increase our knowledge and improve the survival rate. It looks like we are so close but we rely solely on individual Pharma and their drive for profits. Why does a specific drug work for one patient and not another patient? That shouldn't be hard to figure out. If we combine all pharma results we should be able to target patients with the correct treatment instead of applying drugs based on a single clinical trial. Than
    2 points
  6. Golfman

    Recurrence

    Discussed all of my options with my Onc as we looked at my detailed history. This showed that Tecentriq lost effectiveness toward the end of my first year. My sclc was then held in check by Taxil. So, it's onward with this saga. Thanks to all of you for your support and advice.
    2 points
  7. Sillycat1957

    Durvalumab

    Sounds good to me! Thanks for the article Barb, 👌
    2 points
  8. LSR

    LSR

    For SOME people....
    2 points
  9. LSR

    LSR

    Hi Tom, Thanks so much for checking. I'll email my editor right now and see if I can get an update.
    2 points
  10. @[email protected]@Rower Michelle @GaryG @Tom Galli @Jennedy Thank you everyone for your thoughts. My world at times feels inside out, and I'm trying to keep busy by helping my cousins move, but being able to share with you and reading your well wishes help make it all a bit more bearable. I'm slowly following the advice of reaching out to close friends and not keeping it all in. Even if they don't know what to say, I tell them to share news about their lives, and I find that it helps. I've updated the previous post with more details of what happened. Right now, my uncle and I are
    2 points
  11. TJM

    LSR

    Dang girl. Your quick...😁
    1 point
  12. TJM

    Jeanne

    Poor dear. Seriously. Loss is so hard. You've gotten really good advice from Bridget and Lou. My two cents? First. To answer your question directly...you will never get "over" it. Ever. You will just slowly, overtime, learn to accept it. No idea of your age but the fact is as you get older you lose more of those you love in increasing amounts. It may sound crass (not intended) but it gets easier. Loss is part of life. Second. Anxiety. I am a firm believer in medications that directly improve the condition. Xanax has been a life saver for me for years. I am not depressed, just natural
    1 point
  13. TJM

    LSR

    Any update on when article will be published? Just curious. Peace Tom
    1 point
  14. Sandy: Not to contradict what you wrote but we are here to learn and exchange ideas for the good of all. Mvasi is very similar to Avastin which is both chemotherapy and targeted therapy that stops the tumors blood vessels from forming. Even though your oncologist knows best, you might still ask him about once-daily oral RET-targeted therapy like Pralsetinib. There are some on clinical trial you might benefit from.
    1 point
  15. Thanks, Kristin! Mvasi is something of a targeted therapy in that it starves tumors by cutting off their blood supply. BUT a person has to keep an eye on blood pressure (but give me that instead of a tumor any day - LOL!). I don't know that the RET was much to even make a difference. My onc is going to bring this up at what he calls their "tumor board" at their next meeting. He said it's a long shot but it could give him another weapon (med) to treat me with. I don't think Mvasi is meant for long-term use since you basically have to have a tumor - LOL!
    1 point
  16. Kwally3, I'm so, so sorry. It is so obvious by your posts how much you cared for your dad and I'm so sorry Covid took away these last few weeks. Thinking of you and your family and please let us know if we can support you in any way. I'm going to link the resources for grieving so you can refer back to them if you ever need them.
    1 point
  17. Golfman

    Recurrence

    As background, I was diagnosed with Stage 4 SCLC in Feb 2019. Really, a death sentence. They immediately began chemo and included the newly approved (as of January) immunotherapy drug Tecentriq. Several (3?) rounds of chemo later, I was doing pretty well. Had two pretty nice years. Of course, I had the typical side affects, but really enjoyed myself. Recent scans have shown that this disease has now spread to other locations (i.e. liver and maybe brain, pending a brain scan). On the positive side, I've enjoyed the last 2 years. Probably would not have had them had those smart researchers (Dr
    0 points
  18. Sillycat1957

    COVID Vaccine anyone

    Well, I choose not to get it. I never got a flu shot in my life! I'm allergic to penicillin and acetaminophen, so I'm very sceptical of any of that stuff. I shouldn't be right 🤣 I had all kinds of crap chemo, immunotherapy, pain killers Lol! But my Dad died the day after he got a flu shot back in 1995, first time he ever got one 😭 so no I don't think so, not at this time. Just my humble opinion 💟 Roseann
    0 points
  19. Z-Jeanne

    Jeanne

    My name is Jeanne. I am a caregiver. I accompanied my mother for 1 year. Up to palliative care( pancreatic cancer) A special ordeal.... that I will never forget in my life...
    0 points
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