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Showing content with the highest reputation since 10/23/2020 in Posts

  1. LexieCat

    Disability resources?

    Apparently it IS possible to get SSDI after already receiving retirement benefits. Here's a good explanation from the AARP website: https://www.aarp.org/retirement/social-security/questions-answers/retirement-to-disability/. It occurs to me that it might be good to have a forum here related to employment, insurance, and disability issues. These things come up for a lot of people and it might be nice to collect the threads in one place. Admins?
    5 points
  2. BridgetO

    Chemo Screamo

    Ice cream! Now that you mention it, I think my favorite sandwiches are ice cream sandwiches, especially the ones from Ruby Jewel, a local shop that will make one with homemade-style cookies and your choice of ice cream.
    4 points
  3. AngelL

    Chemo Screamo

    Mmmmm. Sandwiches and Ice Cream! I wasnt hungry until I read this post! Im going to have to vote for the Philly Cheesesteak No Chiz Whiz though! Real cheese for me please.
    3 points
  4. It really does sound miserable for both of you, LexiCat and Susan. Susan, I hope you can get a handle on your digestive issues. If you had a day of vomiting and diarrhea, you probably got dehydrated which may have causes your fatigue anxid shakiness. I'm thinking about dehydration because I had a day of diarrhea and some vomiting recently for unknown reasons, not treatment related. I used Oral Rehydraton Salts, which we keep on hand for just such things. If your not familiar with ORS, it's like the adult version of pedialyte. It comes in an envelope that you mix with a quart of water. It gets
    2 points
  5. Aw, man, Susan--that sounds miserable. You know I empathize with the constipation. I go for my third round next week--Thurs. Monday I go for my blood work and CT scans. And Tues. I go for followup with the ophthalmologist. My eye STILL hurts, off/on. I will feel ok for a few hours and then start hurting and tearing up. Between that and my shoulder, I haven't been feeling great--I sure hope my treatment this round isn't worse than it's been. I took a Compazine 2 or 3 times over the past couple of weeks when I felt queasy, but it never got bad. Hopefully you start feeling better, soo
    2 points
  6. Are you feeling the isolating effects of COVID? For most, or dare I say all survivors, spring and summer of 2020 were spent cooped up indoors. News reports of COVID resurgence suggest fall and winter will be no better. To take the sting out of loneliness LUNGevity have an ongoing weekly ZOOM televideo sessions for survivors with two sessions on Friday. These have been so successful that we are expanding our menu to Monday and Wednesday. How can I participate? If your computer, tablet or phone has a video camera and microphone, all you need to to is download the zoom apps for either Apple
    2 points
  7. LexieCat

    Disability resources?

    I sure would, if I were you. I retired from my County position in 2011, so I have a defined pension benefit I've been collecting all this time. With my current job, on top of the pension, my income is high enough that my take-home pay is a pittance. For me, the main purpose in continuing to work was to afford some fun things and also to build up some additional retirement savings (403(b)). My original plan, before the Stage IV diagnosis, was to hold off on Social Security till I hit 70, if at all possible, to max out my benefit. Although I'm hopeful I will respond well to treatment and t
    2 points
  8. Wow, what a difference!! My side effects had been fairly minimal (aside from the stroke, of course) up til now, but round 3 (Oct 19) has been a bear!!! Same pre-meds (NO B-12, which I'm questioning now), Carbo/Alimta/Keytruda. Started out by NOT having my usual breakfast cereal (I pack it along for consistency) because we had a different (TERRIBLE) hotel and were short of time. Not sure if that had any bearing on the results, but... Post-infusion Day 1 and 2 were fine, as usual, except I got terribly constipated (NOPE, I didn't take any Zofran except the 16mg I got with premeds). On bot
    1 point
  9. Ladies I hope better days are ahead. Let's all pray for a good scan despite all the side effects. I am now on maintenance (Keytruda/Alimta/) but I felt tired and sleepy for the first time in a while and I was expecting smooth sailing without Carboplatin. Go figure.
    1 point
  10. Thanks! I don't envy you, either. Eyes are not easy to deal with under the best of circumstances. I hope this was a fluke, but I'm concerned about next time. I can't take Compazine, unfortunately - had a really bad reaction the first time.
    1 point
  11. JamesB

    decline

    I am so sorry your family has suffered this great loss and for all the suffering.Prayers for you.
    1 point
  12. LouT, Thanks for welcoming me to the site! I’m very lucky to have found you all, I will keep you all updated on my chemo journey, again I’m very thankful for you all because I have whom to talk to about this and get a sense that I’m being really understood. You all have a great weekend!
    1 point
  13. Hi Deb, Thanks so much for sharing, congratulations on being in remission! The personal experiences and advise helps me feel my decision is the right one because I was afraid of what chemotherapy might do to my body long term, but ultimately I want to be recurrence free for as long as I can be. I too had 5 lymph nodes come back negative. Thanks for the good wishes on having minimal to no symptoms 😊.
    1 point
  14. Deeba, You've already gotten great advice and sharing from my fellow forum family members so I'll just welcome you to the site and let you know that you can always return and ask any questions you'd like or just get support when you feel the need for it. Again, welcome and please keep us updated on your progress. Lou
    1 point
  15. I didn't realize it had been almost a week since I joined the family here. I had a heck of a time. Finding a pic I could use for my profile. I just couldn't swrink myself that small. Except one from IKEA warehouse a couple weeks ago. Really don't know which section to post my Dr and God's problem in. I'm a young 66 yr with some other life threatening illnesses. I won't let interrupted my life. And now they say I have stage 4 lung Cancer. That has spread to my adrenal gland. I think it's a plot to interrupt my 50 + yrs of enjoyment of a fine cigar and cigarettes,pipe,dip ECT. Quitti
    1 point
  16. Gene, I enjoyed reading your post. Your attitude and determination to beat this is obvious. Tom gave you some good advice to work on with your treatment team. For my part, (much as I love Twinkies and milk) I would suggest that you take care of your body with good food it will help your body to fight the disease. But ask the questions you need to ask...as it sounds like you are at a good place for treatment. In the meantime, you are now part of our family and we'll be here to support you so share as you are comfortable to do and ask any questions you may have. Lou
    1 point
  17. GaryG

    decline

    I am so sorry for your loss. I experienced first hand what went through when my first wife died of cancer at Hospice. She was on morphine for 36 hours and I couldn't communicate with her. It was a lonely feeling and helpless time because there is nothing you can do. I hope you will be at peace soon with your loss and take comfort that you took good care of him. It happened to me one day.
    0 points
  18. just me

    decline

    Hello everyone, Brain meets were diagnosed. We quickly were transsfered to neurology and went from one oncologist to the surgeon for a biopsy. On Friday September 18th he walked into the hospital. Monday the 21st he was sent home after suffering through a craniotomy with a tumor resection. It doesnt make sense to me because his lungs were inoperable, so why would they be able to operate on his brain? By the 23 he could no longer hold a spoon to feed himself. Although radiation was offered we declined. I didnt feel he had enough left in him to handle more treatment. Hospice began on Fri
    0 points
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