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Showing content with the highest reputation since 10/28/2020 in all areas

  1. Lisa Haines

    Hospice

    My heart goes out to you. I know this is something we all may have to face in our cancer journey. It's something that I have thought about and is very difficult. I hope you are at peace and will be in total comfort. I'll also hope for a miracle. Sending a huge tender hug ❤️
    5 points
  2. Hi again, Tegan, One more thing: I do think these forums are a pretty nonjudgmental place. Regardless of race, religion, politics, sexual orientation, personal history or whatever else, we're all iin this together. Cancer is a great leveler. We're here to support you, so say or ask whatever you want.\ Bridget O
    3 points
  3. Yes, Tom's advice is great, as usual. He's really well informed. The doctor should be able to tell a lot from the CT scan, especially with an earlier one to compare it to. It must be frustrating not to be able to get more information about this. Your loved one could ask the docttor for a copy of the new CT report. Usually a patient can get this, but I'm not sure if it's the same in prison. The radiologist's report would give size, shape, appearance and location. as well as whether any new nodules are found. Based on that, the doctor can determine whether any followup is needed. So the CT is
    2 points
  4. GaryG

    Triplet-Details

    In this link you can find good explanation for the triplet (Keytruda, Alimta, Carboplatin). from use, duration, finance, imaging to side effects of all 3 drugs. https://www.chemoexperts.com/pembrolizumab-keytruda-carboplatin-pemetrexed-alimta-nsclc.html
    2 points
  5. Tegan, Indeed you face a complicated situation. Pulmonary nodules are a complicated subject. They occur for many reasons and fortunately most are not expressions of cancer. Here is my go to source of information on pulmonary nodules. I wouldn't worry about statistics. From your description of his symptoms, he has a complicated health challenge with Hepatitis and infection in the bone. If it is a single nodule, screening by CT scan seems to be a valid approach. Stay the course. Tom
    2 points
  6. Hello and welcome. I'm sorry to hear what your mom and you are going through. You've received some excellent advice from others here and I don't have much to add. The house sale and projected move is happening at a bad time, since your mom probably won't be able to manage a second floor apartment at all if one of her legs isn't working, unless there's an elevator. But cancer is never at a convenient time, unfortunately, so we just have to cope the best we can. It would be great if you could go to appointments with her, especially the first one, so that the doctor will know you. If they t
    2 points
  7. LexieCat

    Triplet-Details

    Wow, Gary,what a terrific, helpful link! Thanks so much for sharing it. Wish I had that when i started this—I had info on the individual dugs but not the specific combo.
    1 point
  8. Hi Tom. Thank you for the response. Tagrisso has worked well for her so far. Although there is still evidence of NSCLC in her lymph nodes, they have reduced "dramatically" in size according to her latest scans and currently there is no evidence of metastasis elsewhere. This December will be a year for her on Tagrisso. I pray it keeps working for a long time, or until something better is developed. The doctors are not sure if her stroke was a result of all her cancer treatments (past and present) combined or unrelated and due to her old age? I had not heard of this being a side-effec
    1 point
  9. Glad to hear you’re in remission! Hopefully the side effects are such that you can tolerate them. My plan is to go on to Keytruda for maintenance after 6 treatments and I guess stay on it as long as it’s working. I’m thinking there will be minimal side effects with just the Keytruda. Well good luck . Sounds like you’re responding well. Babs
    1 point
  10. Hi Babs, I did stop the triplet after 4. It worked for me as I was told I've been in remission since August. Still, I am on Alitma & Keytruda and will have that until February. If everything looks good at that time he will drop the Alimta. The treatment plan right now is Keytruda for 2 years after being diagnosed which would mean April, 2022 if I can tolerate it. I have side effects which begin about day 4 after treatment - extreme fatigue and nausea. About day 8 or 9 I seem to come out of it. Since the beginning of treatment I've had constipation so I take a stool softener ev
    1 point
  11. No clue, but interested to learn more. Please keep us updated.
    1 point
  12. Lisa Haines

    2020. An epic year

    Voted early and also very much hoping for a good and much needed turn. 2020 had been brutal in so many ways, can't wait for it to be a bad memory and that better days are coming soon for all of us.
    1 point
  13. So very sorry ❤️ Please try to remain positive and know there are many of us with Stage IV who have done very well with treatment. It's not easy, but hopefully as you learn more, she will find treatments that with well. Please keep us updated. We all care and truly understand.
    1 point
  14. Second opinions pay dividends often.
    1 point
  15. I'm glad to hear that you feel better after talking to your PCP. It must have been pretty scary not knowing what was causing all these problems. Hope you're fully better soon. Bridget O
    1 point
  16. Lisa: I am very sorry to hear about your situation. I might not be adding a lot except I had the flue shot yesterday and infusion today including Keytruda. I am not experiencing anything like you as of now. I hope you will receive some good news like Lou described. Best wishes.
    1 point
  17. Wow, what a difference!! My side effects had been fairly minimal (aside from the stroke, of course) up til now, but round 3 (Oct 19) has been a bear!!! Same pre-meds (NO B-12, which I'm questioning now), Carbo/Alimta/Keytruda. Started out by NOT having my usual breakfast cereal (I pack it along for consistency) because we had a different (TERRIBLE) hotel and were short of time. Not sure if that had any bearing on the results, but... Post-infusion Day 1 and 2 were fine, as usual, except I got terribly constipated (NOPE, I didn't take any Zofran except the 16mg I got with premeds). On bot
    0 points
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