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Showing content with the highest reputation since 09/21/2018 in all areas

  1. 2 points
    Bridget O, Joy Marie, Shelby, Lexie... Wow. What an amazing group of women (I think we're all women!!). Thank you all for your time in responding. ALL was helpful. Bridget - I appreciated hearing what your experiences were and what you could do for yourself following surgery... It makes me feel better prepared and hopeful. Joy Marie - Thanks for the tip on the videos; I just watched a few and had my son watch the after surgery one (he found it helpful as well!). Shelby - You have been absolutely amazing in posting here re: your surgery. I am in awe every day that you have been able to share your experiences and that you are doing so well. What a strong person you must be! Lexie... Well, by the time I got to your post and encouraging words, the tears were flowing. Always so positive (thanks for injecting me with some of it... again!). Thank you, Lexie... I am not good at sitting still and have plenty to do (ha!) before my surgery date, which is a blessing in many ways to keep my mind off of stuff (well, sort of!). I hope I do as well as you did post-surgery... I love to walk/hike so hoping I'll be able to use that love / need to help me in my recovery. It helps with the depression right now, too, versus medication. But if it gets too bad or out of control, I will speak to a professional about this. I think I just really needed a little boost of confidence in all of this again. I feel much better... thanks to all of you! Thank goodness for this site... It has been a blessing for me to not feel alone. 😀
  2. 2 points
    Hi, Colleen, I am normally a pretty sanguine/laid-back person, but I remember being very SHORT on patience the week or so before my surgery. Just roll with it and let yourself be a little freaked out--it's scary stuff. Just try not to get too carried away with it. My bet is that as soon as you get through the surgery you'll feel much calmer and better. My nodes were just taken as part of the surgery--I don't think they were examined until afterward. Mine were all non-cancerous. The nursing staff can help you figure out when/how to take care of the hygiene. If you have to be a little "funky" for a few days, it really isn't a disaster. You should be able to bathe with a washcloth and Bridget's idea about dry shampoo is a good one. But it shouldn't be more than a few days at most before you can shower. I had a home health aide come and give me a hand changing the dressings so I could shower. You just want to avoid getting the incision wet. The nurse navigator at the hospital made arrangements for the home health aide through my insurance. I had just a couple of visits. Dealing with the unknown sucks. BUT keep reminding yourself that your cancer (assuming that's what it is) was caught very early, and you are in about as good a position as you can be in. Do let the surgeon know your concerns about your arm position and circulation. I had the inflatable things around my legs to maintain circulation till I could get up and around. Unless there is a complication you won't be immobile for long. Walking around is very good for you, and with VATS, you should have very little pain after the first couple of days. I think I used the prescription (narcotic) pain meds the first day after I got home, and from there it was just ibuprofen. Shelkay had to give herself injections with blood thinners, but that's not a normal procedure. Chances are you won't be dealing with that. Do your best to stay busy--stuff like dealing with the banking changes can help take your mind off some of the other stuff. I had a whole bunch of little projects like that to keep me occupied so I didn't just sit around worrying. You (and your son) will be just FINE. I'd bet money on it.
  3. 1 point
    Hi, this is Shelby (Shelkay1).I just had my VATS lobectomy on the 14th. It was done on a Friday & I was discharged on Monday. I will try to answer what questions I can based on my experience, but it is my understanding that no cases are the same. 1st thing I have to say is stop stressing over it; a lobectomy is your best option at beating this. If you need help with the stress/depression, ask for it! Do what you comfortably you can to get stuff done at home to make it more comfortable & keep yourself occupied now, but don't sweat the small stuff and ASK FOR HELP! 1) My medianoscopy was done about 6 weeks prior to lobectomy. It came back clean, surgeon said if anything came back in the lymph nodes, lobectomy was not doable. Chemo or radiation would be required 1st. I'd guess because of your family situation & distance they are doing it all at once for your benefit. 2) Hygiene can probably different in each case,too. My incisions were "glued" shut so after tube was out, I would have been able to shower as soon as I wanted; same with brushing my teeth. I maybe shouldn't say this, but I was in so much pain the 1st couple of days, it was not high on my list of priorities. 3 & 4) Anytime you have surgery, blood clots are always a possibility. The longer the surgery & the longer it takes for you to get moving, the greater your risk. They did use the inflatable things on my legs all the time I was in bed; when in the chair I was encouraged to rotate my ankles & tap my foot. It was me who was sent home on blood thinners. It is normal practice for my thoracic surgeon, I was told about it in advance. It is enoxaprin, I do it twice a day in my belly (very much like an insulin injection). They sent me home with a 4 week supply. I do know I have cancer, adinocarcinoma. I also have histoplasmosis, a fungal infection. My cancer has not yet been staged, hopefully I'll get some answers Tuesday when I go for my follow up apt. Lastly... just breathe... you can do this! I was told the alternative to dealing with this is dying with it. I'm not ready to let it have me without a fight.
  4. 1 point
    Hi Colleen. I've been watching some you tube videos on vats lung surgery. The best ones are from Am College of Surgeons. The video called 'Your Lung Surgery - After Your Surgery' is good. They point out if is important you brush and floss your teeth for good oral care as that helps healing process. Joy
  5. 1 point
    Hi Colleen, here are some answers to your question: 1. I had 27 mediastinal lymph nodes removed as part of my VATS lobectomy. No separate incisions were done, so I don't know if this would be called a mediastinoscopy or not. I don't know if this was done prior to the actual removal of the lobe or not. I knew the surgeon was going to look at nodes, but I didn't know so many would be taken out..All were benign 2. After the surgery I had no problem flossing my teeth. I can't remember how many days it was before I could shower, which would incllude washing my hair. Not too many, as I recall. I was discharged with a chest drain tube in place, so my ability to shower might have been delayed longer than most people's. The first few times I showered I used a shower bench and had somebody standing by "just in case". Can't remember if she helped with the hairwash. I suggest you be prepared to not be able to shower or wash hair for a few days. You might want to consider having some dry shampoo, especially if you usually wash your hair daily. 3. I wasn't really concerned about blood clots or DVT, but then I don't have any vein problems. You could ask the surgeon about this--he/she will probably come in to talk to you before you go to the OR. When I had major (non-lung) surgery before, they put on my legs afterwards those things that alternately constrict and relax that are meant to prevent circulatory problems (can't remember what you call them). But I didn't have them for the lobectomy. I was out of bed and walking around the unit the day of the surgery. I felt fairly perky and it wasn't a problem to et up and walk. (unilike for my other surgery where i was woozy and needed quite a bit of encouragement to get up and move. I continued to walk as much as possible, so probably that helped avoid any problem. 4: I didn't have any self-injections after surgery and I don't remember anyone who has. During treatment for a prior (non-lung) cancer, I has self-injections of neupogen during chemo, but this had nothing to do with surgery. Here are some things I suggest: 1. Don't worry about house being clean or food being cooked in advance. It will all work out. Accept help from anyone who offers. If the offers are general, ask for specifics, such as "can you bring dinner on Thursday" or "Would you be able to drive me to an appointment on Friday AM?. 2. If you're not on antidepressants and you're still depressed after surgery, ask your primary care doctor about whether a prescription could help. I find an antidepressant to be really helpful to me and MANY others who have had cancer have also. 3. It's normal to feel like a mess. You're facing some big unknowns. We've all been there. I also didn't know for sure that I had cancer untl after I had surgery, though it was highly suspected that I did. Don't waste enery blaming yourself for how you feel. Just put one foot in front of the other and keep going. Hang in there Colleen. You can do this! Bridget O
  6. 1 point

    ROS1, anyone?

    I checked over at the Inspire forums, and there are a ton of posts about ROS1. Take a look here: https://www.inspire.com/search/?group_id=200101&sec=all&query=ROS1&dd_query=
  7. 1 point

    Spiculated nodule

    A large incision like that can involve damage to the nerves, as well as to the skin, muscle, and ribcage. I've cracked a rib, and was in pretty bad pain for a couple of weeks, and had lingering pain for much longer. And that was just a cracked rib, not getting cut up the way you were. You might want to discuss it with your surgeon, who can tell you what to expect based on how s/he performed the surgery. I'm sorry you're feeling so lousy.
  8. 1 point

    Spiculated nodule

    Ok everyone. As yoyu all know i had the open lobectomy 2 weeks ago. I am now getting really annoyed. I want to feel better! My right side along with my right breast hurts SO bad! Like a very bad bruised feeling. When does this go away? It hurts to walk!
  9. 1 point
    Cindy S

    Just diagnosed with lung cancer

    Well, I go in on the 27th for a lobectomy. Praying all goes well. Thank you all for your input.
  10. 1 point

    ROS1, anyone?

    Tom, I didn't think you had any gene mutation - none I've gathered from your articles and postings. Thank you always, though, for your response Given how rare it is, I didn't expect (still am not) anyone with ROS1 on this forum, but then there always is "you never know". Trying to stay the course 😁 MB
  11. 1 point
    Tom Galli

    ROS1, anyone?

    Welcome MB, I saw your post addressing a similar subject sometime ago. I don't have any gene mutation that I know of. My biopsy was in 2003 and in that time, gene mutations were not known about. Therefore, I was hesitant to respond to your post. Anyone on the forum diagnosed with adenocarcinoma ROS1 gene rearrangement please give a response to MB. Stay the course. Tom
  12. 1 point
    Tom Galli

    Hello All/Possibly Lung Cancer

    David, When I catch the crud, I use Mucinex to turn non productive coughing into productive coughing. I also turn the shower on its highest temperature, aim the stream to a wall and sit in the shower soaking up stream. Depending on crud intensity, I do this 3 times a day and it works, along with Mucinex. Weight gain is a very good sign. Wouldn't suspect one would gain 5 pounds with metastatic cancer. What was the PET SUV hot spot number? Normally SUVs of 2 or less are not viewed as metastatic. Above 2 is suspicious, but my most recent PET, performed in August showed an SUV of 3.5 in the location of my thoracotomy incision scars. I had three surgeries that used this incision site and I experience chronic pain as a result. The radiologist suggests this area is "strongly favored to be inflammation." Where was your PET return located? If along your trachea or in or near your bronchus areas, it might be inflammation due to your intense coughing. Was your PET scan a combination PET/CT. Most are these days. If so, what did the CT portion of the test report show for the size of your right hilar mass compared to the 4.5cm reported in May. The hilar mass from its location could be the root cause of your coughing but it may not be cancer. A mass in that area would irritate your bronchus. Interested in learning what VA chest board reports. Stay the course. Tom