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Showing content with the highest reputation since 11/17/2020 in all areas

  1. Hi Lil, I was nice (although bittersweet) to meet you on our Friday night Zoom. Your story about not having insurance is really so upsetting to me and I truly find that you will find a way to get the care you need now to begin treatment. I was happy to hear you've been approved for coverage through the ACA effective In January, but truly would have HOPED they had some type of emergency plan for someone in your situation. I know I mentioned a bit about SSDI and SSI - and you may want to contact your local Social Security OFFICE asap to find out IF there is anything they c
    5 points
  2. Tom Galli

    Triplet 3rd scan

    Gary, I firmly suggest you realign your oncology consultations to occur after the radiologist report on your scan is complete. You'll need a medical authority to explain the results. Stay the course. Tom
    5 points
  3. LexieCat

    Triplet 3rd scan

    Yeah, one thing that helps me is to remember that radiologists' jobs are mainly to identify and "flag" any abnormalities. They are NOT cancer experts. They can say stuff like "X change in the scan indicates probable metastasis" but they are going on statistical probabilities. Your oncologist knows your history, your treatment, and all the other factors that go into figuring out what's actually happening with you and your cancer. Hoping you get some good news soon!
    4 points
  4. Hi Deb and welcome. I'm sorry to hear about your husband's diagnoses. I see why you call this a whirlwind. I've never been in a situation like yours. The nearest iwas when my mom was having ongoing chemo every 3 weeks for metastatic breast cancer. She had neuropathy that was causing her tobcome disablee and she could no longer walk and she was beginning to lose the use of her hands. I lived hundreds of miles away, so was not her caregiver, though I was her health care power of attorney. She didn't have dementia prior to treatment, but after months of this chemo, she was getting increasingly me
    3 points
  5. I can’t really complain. When I had him paged at 6:30am three weeks ago, he called me back in 5 minutes. And when we drove over after my stroke and the fiasco at our local ER, he managed to get me admitted when they didn’t have any beds available —and had practically every specialty visit me. They left no stone unturned. This was just so last minute and came at (as usual) the worst possible time.
    3 points
  6. LouT

    It's official

    Tom, Good news is that about 99%+ are now recovering from this disease so hang in there. Let us know how he progresses, but as I said in another post on this topic; once my son got the proper medical care he was up and around in about 4 days. He needed about another week to ten days at home to feel normal again, but has had no other side effects. And...I told him that if I get this and he doesn't donate antibodies to me that he is out of the will. Lou
    3 points
  7. LexieCat

    It's official

    Ugh, hope he has a speedy and uneventful recovery--and that he keeps it to himself! Um, and probably best not to ask "what next"--because the universe keeps answering. That old curse, "May you live in interesting times," is pretty powerful.
    3 points
  8. LexieCat

    Greetings!

    I second what everyone else has said, but will add my own experience with chemo. I'm Stage IV adenocarcinoma--I had surgery for a very early stage lung cancer 3 years ago and received the latest diagnosis this summer. I needed no chemo before, but now I'm getting chemo combined with an immunotherapy drug (Keytruda) which is working wonderfully for a lot of us advanced-stage patients. I've had four cycles that include two chemo drugs, and so far am responding great. Assuming my next scan is good, they will omit the most toxic chemo drug and keep me on the other and the immunotherapy as long as
    3 points
  9. Yes, that's likely the case. IF it returns quickly, they will want to use the catheter to spare her having to have multiple thoracentesis procedures. Have they tested the fluid to determine that it is malignant? Pleural effusion is not always malignant. Susan
    3 points
  10. Deb W

    Triplet 3rd scan

    Hi Gary, The shrinkage is good news for sure! I understand your frustration with the radiologist report coming before the oncologist appointment. My experience has been that the radiologist releases the report through the portal and it all seems so much more serious to me and difficult to interpret! I become frustrated because I'd much rather hear my oncologist's interpretation before it gets released to me. But, the system isn't set up that way. Best, Deb
    2 points
  11. Lisa Haines

    It's official

    Oh no! I hope very much your son will do well and will soon be on his way to recovery! It certainly seem the the younger folks are getting though Covid without too many problems. Hope you are safe and he's better very soon....
    2 points
  12. Rower Michelle

    It's official

    Ditto to what Lou has indicated: at this point about half the people in my church have tested positive, so far so good for the congregation. The youngsters have breezed through in a few days, while some of the adults took a little while longer. Hang in there! Michelle
    2 points
  13. GaryG

    Triplet 3rd scan

    Thanks Tom: That's already in motion. What makes it even more difficult is that the oncologist makes the final decision on the infusion and that happens the same day he looks at the CT scan. Now that my cancer is a lot smaller, I must see the results in the right sequence. Thanks again.
    2 points
  14. Tom Galli

    Upcoming lobectomy

    Patrick, I'm one of those folks who had a complete pneumonectomy of my right lung. That was in 2004 and I'm doing quite well. Glad to learn you are out of the ICU. Do follow the instructions of the respiratory therapist in using the spirometer and cooperate with physician therapy and lap the ward in earnest. Stay the course. Tom
    2 points
  15. LouT

    Triplet 3rd scan

    Gary, It sounds to me like things are headed in the right direction, nodules are shrinking, air movement improving and a remaining mass is likely to be scar tissue. The thyroid enlargement might be of concern, but if we've learned anything with this darned disease it is to wait until we have confirmation of something. I pray that you'll keep seeing improvements with each scan, that is what we all hope for. Stay strong, you are doing a great job. Lou
    2 points
  16. LouT

    Greetings!

    Zuma, Welcome to the forum. You'll find answers to many of your questions here from people who have experienced the disease and a diverse form of treatments. I would recommend that you inform your medical team of any supplements that your Mom is taking as they might have an effect on the efficacy of whatever protocol they decide would serve her best. Let us know how we can continue to be of help. Lou
    2 points
  17. Hi everyone. My mom started Keytruda a couple weeks ago, before that, she progressed from 3b to stage 4 after four rounds of chemo. Initially she was at stable disease (during chemo) but after the last PET from 2 weeks ago they found solitary met in liver. We saw the lung specialist same week pet scan results came back and he said there was not enough fluid to drain. 2 weeks later and my moms SOB was so severe she could hardly walk, even sitting and resting was painful and caused her problems. I emailed the one on Monday, no response. We followed up on Thursday morning via my
    1 point
  18. I've survived two effusions. Both occurred after my pneumonectomy. I told my chemo nurse about difficulty breathing and that led to an immediate x-ray and the effusions were drained off at my cancer clinic. So, in my experience, they can happen quickly but relief was near immediate after drainage. They are caused by irritation in the space between the outer lung tissue and interior chest wall. This space is called the pleura, thus the name. I was already at stage IV with progression after surgery and receiving chemo. My oncologist felt (hoped) the chemo would kill cells in the effusion,
    1 point
  19. I personally have not had any pleural effusions, but have heard of many LC patients who do and many do have a catheter placed so that they can have the fluids removed in an at home setting (with assistance). I also believe, that like all forms of metastatic Lung Cancer, that patients can survive for long term, as long as they are being treated and I hope very much as long as they an continue to address the fluid, that will be the case for your Mom. Best wishes to you both...
    1 point
  20. Dang. You know that aside from the fact that Doctors are saving my life, I don't particularly like them. Peace Tom
    1 point
  21. Thanks, Lou. As it turns out, I did not have any additional episodes yesterday or (so far) today. Coughing is also very limited. However, now my ankles are swelling just like they did in the beginning, which is when I had a large pleural effusion. Suspect that is the case now, as well. That's discouraging, as we had to delay my 4th infusion for two weeks already due to immune-mediated colitis (side effect from Keytruda) and high dose prednisone (which interferes with immunotherapy), so I'm afraid we've lost ground. Scans on Tuesday will tell the tale, but I'm not feeling good about it.
    1 point
  22. LouT

    Upcoming lobectomy

    Patrick, Yes, that was unexpected. But, there are people here who have also had a full lung removal (pneumonectomy) and are doing well. You'll be hearing from them soon. It's a good sign to hear that you got out of ICU earlier than expected. I'm praying for good things for you. Please keep us updated as events unfold. Lou
    1 point
  23. Sabacat, I have never experienced this but the advice on keeping track and seeking medical intervention (ER) sooner rather than later sounds right to me. Lou
    1 point
  24. LexieCat

    Upcoming lobectomy

    Wow is right! Keep us posted. Rest well and know we are all rooting for you.
    1 point
  25. The latest twist in my journey is something I didn't expect (but, oh, yes, it DID start on a weekend/holiday as have all the others). Last night, I coughed up a tiny bit of phlegm that was sort of hard and deep red. Since that was on the list of things to call your team immediately about, I did so. Unfortunately, I never heard back from my oncologist (and he has been perfect about responding to pages at all hours up till now) last night, but I sent him a MyChart message with a photo. He replied this morning that he hadn't been able to get through via phone but that I should let them know
    0 points
  26. TJM

    It's official

    My youngest son tested positive. Wondering what else is going to happen in 2020? Peace Tom
    0 points
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