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Showing content with the highest reputation since 03/24/2020 in all areas

  1. 2 points
    REG

    Scared

    Thank you everyone, met with surgeon, he assured me that my surgery is necessary ASAP. He scheduled me for a lobectomy (upper L) on April, 9th. Of course, I wish it could be sooner as they are currently measuring my tumor as 3.9cm, I am very concerned that my tumor will grow to 4 cm (or more) by the time I have surgery...that would move me up to a stage II diagnosis from what I can see? How concerned should I be about upstaging? Guess I don't really have a choice anyway at this point, just hoping there are no unforeseen delays beyond the 9th? Thanks again to each of you for your very kind support, information and resources!
  2. 1 point
    Announced today, the Breathe Easier Emergency Fund will give a one time $500 financial support to those who qualify. See this post for more information: https://forums.lungevity.org/topic/46871-breathe-easier-emergency-fund-how-to-apply/
  3. 1 point
    In these challenging times, we are committed to ensuring all people living with lung cancer have access to the care they need when they need it. Starting today, LUNGevity’s Breathe Easier fund will offer financial assistance to eligible lung cancer patients and their families to satisfy their critical basic needs of medicine, food, transportation, and general household bills. Support in the amount of $500 will be provided to eligible patients and their families. Learn more about the fund and how to apply -> https://bit.ly/3az186X Or call the LUNGevity Lung Cancer HELPLine (844-360-5864)
  4. 1 point
    Good job Kristin!
  5. 1 point
    LUNGevityKristin

    Anger about smokers

    Hi Rome, I'm sorry to hear of your husband's diagnosis. First of all, there have been many advancements over the last few years and people are living longer - and really well - with lung cancer. Here is "Lung Cancer 101" that is packed with information. https://lungevity.org/for-patients-caregivers/lung-cancer-101 If you would like to talk through your feeling with someone, the HELPLine is a free service that is available. https://lungevity.org/for-patients-caregivers/support-services/lung-cancer-helpline Please let us know if there is anything we can do to support you.
  6. 1 point
    LCSC Blog

    Cancer in a Pandemic

    So far as I can tell, I'm being treated as per usual. Meaning, treatment for my recently diagnosed thyroid cancer is on track. On track meaning multiple hospital visits at two health care facilities (some even on the same day) over five consecutive days to include four radioiodine injections, pre-and post-treatment CT scans, lab work, miscellaneous other medical appointments and a low iodine diet to boot spread out over a nearly six-week interval including one over-night at the hospital. To say I'm looking forward to the experience would be naïve. To say I'm looking forward to killing the remaining thyroid cancer in my body would be more accurate. The thyroidectomy I had in late January was very successful but approximately 15 percent of the cancer remains, embedded under my collarbone and elsewhere. Consequently, treatment of my pre-existing/underlying stage IV non small cell lung cancer will be further delayed while we address the thyroid cancer which the surgeon was unable to remove. And now that I have my schedule, as of March 27, I now know when and where and how the process will play out. One potential major complication: the coronavirus pandemic. Given the screening questions I have been asked of late when calling for medical information, if I am unlucky and somehow become infected or come in contact with someone who has been diagnosed or travel/have traveled to an area of the country/world particularly hard hit, I am guessing my treatment stops/never gets started. And not to be too paranoid about something which hasn't even happened yet but, I'd just as soon not become another statistic and/or not get my cancer treatment and allow my two types of cancer to live on without any checks or balances. (Generally speaking, if the cancer is left alone, it likely won't spontaneously go into remission. Quite the opposite in fact and therein lies my fear of having 'cancer in a pandemic.)' I imagine that at any time over the next six weeks, a hundred things could change that could adversely affect my treatment/schedule, many of which are beyond my control. And not that I'm a controlling person, but when it comes to medical treatment that might actually be saving/extending my life, I do become a bit preoccupied. And if push does come to shove, so to speak, there's not much that I can say or do about circumstances (staffing issues, medicine shortages, reduced hours, increase in patients, etc.) which might affect the availability of health care. As a cancer patient, you 'd like to have a little predictability given that your normal routine is hardly what you anticipated. However, none of us anticipated a pandemic and now all us patients are waiting for chips to fall and wondering/hoping our names will be on the treatment list. Unfortunately ,cancer treatment is not hit or miss. It mostly needs to hit. And if some of the hits can't happen when protocol says it should, there is reason to be afraid. But being afraid now, before any of these pandemic-related complications have even occurred, is a waste of time, energy and emotional wherewithal. I don't need to worry yet. If any of these worse-case scenarios do happen, there will be plenty of time to worry later. At the moment, I'm scheduled, I'm not sick and I'm able to social-distance, self-isolate and shelter-in-place until further notice. I just wish 'further notice' wasn't a month from now. So much can happen to so many at so many places, most of which I can't prevent. And yet, if these happenings are not prevented, it's possible the powers that most likely be will inform me that circumstances have overtaken their plans and my treatment will have to be delayed. I'm so close. Thirty days, however, is an eternity for a cancer patient. Somehow, I have to stop watching the calendar. I have to watch my "ps" and "qs" instead and avoid any unnecessary social interactions. I'd like to think that come the end of April, I'll be ready, willing and available. I just hope that I can say the same thing about the medical professionals and hospitals where I'll be getting treatment.
  7. 1 point
    Rower Michelle

    Hi from Zimbabwe

    Hi Terry, I think I can expand on Tom's response, Certinib is a targeted therapy. There are several types of treatment available to lung cancer patients, traditional old fashioned chemo therapy, new fashioned chemo therapy for maintaince treatment, immunotherapy (IV administered) and targeted therapy. (New things under development too! I made up some of these categories to keep it simple) Ceritinib is targeted therapy. Unlike traditional old fashioned chemo therapy it does not leave you immunocompromised with a low blood cell count. In fact while I was working, I suffered from chronically lower levels white blood cells that no one really knew why but they were in the "lower end" of normal" which was never questioned. Now all of my blood cell counts look fantastic, better than before my cancer. Alimta is considered new fashioned chemo therapy (IV) that can also treat ALKs, it's administered every three weeks. Because this is a special type of chemo for maintenance, the immune system isn't as compromised as the old fashioned like Carboplatinum. Carboplatinum and Cisplatin are old fashion IV chemo drugs that do cause low white blood cell counts. Most ALKs do no receive this as a first, second or even third line treatment. Important note on Immunotherapy- ALKs should NOT get any of this stuff. @RonH has already been down this road. For some ALKs immunotherapy can be very dangerous. OK as for the sugar. I'm going to tell you straight up. Sugar and cancer don't mix. If you're in a situation when you're dropping weight, and can't eat, then ice cream is under the category of do what you gotta do. There's a lot of controversy about sugar. I can tell you what my integrative oncologist told me, sugar creates inflammation in the body which can create unexpected problems. There is a school of thought that sugar can feed the cancer. Inflammation can cause constipation and joint pain. We had a pretty radical diet change, hubby loves his sweets and we were in this together. Anything we eat has less than 6 grams of sugar per serving. Not an easy transition. It look a few months to get there. Weight gain on targeted therapy is a real issue, fortunately, I was a light weight competitive rower. I'm up 30 pounds from my racing weight, twenty pounds from my normal adult weight. After a few months my hubby's sweet tooth has really diminished. We didn't ever think that would happen, he's a US/Brit who loved sweets his entire life.... There is good news about this, you WILL be able to carry on with your life. Give yourself some time to make the transition, listen to your body. YOU CAN DO THIS! Michelle
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