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There was a segment on lung cancer on CNN with Aaron Brown in which he touched on all points that LCSC and everyone really, have been shouting about for years. He was shocked at the number of people dx. with LC He was shocked at how many more women die of LC than of breast cancer. And he made a point to say that there needed to be early detection screening. There was a related human interest story on a woman who never smoked and was dx. with lung cancer...she was amazing. She talked about the grim statistics, she talked about the stigma, she talked about how LC needed public awareness, acceptance and desperately needed more funding. She said that everyone is a rick for LC. This was a very important segment. Here is the transcript of that segmentBROWN: ----->Boy, is that the truth. I don't know her any better than you know her. I mean, we know her all the same in that way. And this was like a body blow today, wasn't it? Coming on the heels of Peter's death of Sunday night. And now this. More than 170,000 Americans will be diagnosed with lung cancer this year. Most of them, over 80 percent, will be smokers or former smokers, their average age at diagnosis will be 70. But most is not all. Dana Reeve is 44, and from what we've learned today, apparently not a smoker. She is not most. She is also not the only one. Here's CNN's Elizabeth Cohen. (BEGIN VIDEOTAPE) (BEGIN VIDEOTAPE) ELIZABETH COHEN, CNN MEDICAL CORRESPONDENT (voice-over): Three winters ago, Sandy Britt had a feeling that something was terribly wrong. SANDY BRITT, DIAGNOSED WITH LUNG CANCER: I had noticed over the winter that I was getting one cold after the other. COHEN: Sandy, who was 43, told her doctor she was worried about lung cancer. Her father and brother had died of the disease. She says the doctor told her not to worry. BRITT: I could have been saved. I was -- you know, at that point, it was completely curable, and now it's not. Now I have a terminal diagnosis. COHEN: Three years later, her suspicions turned out to be true. She was diagnosed with lung cancer so advanced it had already spread to other parts of her body. Doctors told her she had eight months to live. BRITT: I really believe that the reason I was ignored was that I was a young, healthy-looking woman who never smoked. COHEN: Sandy Britt, Dana Reeve, part of a group you don't hear much about. Studies show that as many as 17 percent of newly-diagnosed lung cancer patients are lifelong non-smokers, 80 percent of those patients are women. COHEN: That's approximately 11,000 women diagnosed each year, and the overall survival rates for lung cancer are grim: six out of 10 people will die within a year of being diagnosed; eight out of 10 people will die within two years. BRITT: There is a whole subculture of us that people don't know about, and if I can get lung cancer, if Dana Reeve can get lung cancer, then nobody is safe. Anyone can get lung cancer. COHEN: Sandy says it's bad enough that she has a fatal disease, but people who don't know her well often assume she brought it on herself. But she's never smoked, not ever. BRITT: People don't care, because they say, well, you know, you smoked, you brought it on yourself. It absolutely infuriates me to have lung cancer, to have a smoker's disease when I actually hate smoking. You know, I belong to Americans for Non-Smokers Rights. I do everything possible my whole life to avoid it. COHEN: Sandy is fighting for more money for lung cancer research. BRITT: Twice as many women die of lung cancer than breast cancer, but breast cancer is something that everybody knows women get. So I think it's just more -- it's more logical, it's more easy to accept. COHEN: Her statistics are on target. But today, thanks to an experimental therapy, Sandy has lived three months longer than her doctors expected. But she's also writing her will. BRITT: One to five years. If I'm lucky, I'll live five years. I mean, it could be anytime. COHEN: While she's still alive... BRITT: You know, my mantra is, I'm a miracle, I'm going to go the distance. And I -- you know, I do hope and pray that I will be one of few that actually survives this disease. I mean, I am a realist, and I have to plan for the fact that there's a good chance I'm going to die. COHEN: Elizabeth Cohen, CNN, Atlanta. (END VIDEOTAPE) BROWN: Scott Swanson is the director of thoracic oncology at Mount Sinai School of Medicine in New York. The breast cancer thing, when I heard that number today, I mean, seriously, I just think they have a better lobby, or they've worked the issue harder. I was kind of stunned by that. Pre-menopausal women, right? Does that tell us something about the cause? DR. SCOTT SWANSON, MT. SINAI MEDICAL CENTER: I think it does. I think there's an issue about hormonal status in younger women. And there's a well-known estrogen receptor activity in lung cancer. So I don't think we understand it completely. But it probably is hormonally related. BROWN: Is it something beyond the universe of all pre-menopausal women that can be screened for? SWANSON: That's obviously the sort of million dollar question is how do you identify these things? And I don't think in the younger women we have it figured out. But clearly we don't even have it figured out in smokers. There is no... BROWN: We don't know what triggers a cancer in an individual smoker? SWANSON: Correct. And we don't screen smokers. There's no accepted lung cancer screening program in this country. We don't recommend X-rays, we don't recommend CT scans. BROWN: Why don't we say, just forget for a second, setting aside -- I don't mean forget, setting aside pre-menopausal women, it's a huge universe of women we're talking about here. But if you just take the universe of smokers, people who currently smoke or people who once smoked, thinking about Peter, and say, let's do CT scans on all of them, why not do that? SWANSON: Well, it's currently being looked at very carefully. BROWN: But why would you not do it? It strikes me as a slam dunk. SWANSON: I'm in your camp on this. But the counter argument is that we find lots of benign nodules. And most of the nodules are benign. So how do we separate the noise from the signal? And that's what we haven't figured out. BROWN: I don't know, you're the doctor. I mean, is -- so you do a CT scan, you see something that looks funky, and you don't know if that thing that looks funky is cancer or just something funky, basically? SWANSON: Right. BROWN: Yes. There's no way to know without going in and... SWANSON: Well, we're getting better at it. We can follow it over a short time and see changes in volume, changes in size. And that can trigger our concern for cancer. BROWN: But what people say about lung cancer, or at least what I hear about it a lot, is by the time we actually see it, it's too late. SWANSON: Well, I think if you wait for symptoms, like in Peter Jennings' case, when you're hoarse, you're losing weight, it's too late. You're... BROWN: But if we're not... (CROSSTALK) BROWN: Right. But if you're not doing the prescreening, how do you not wait until the -- I mean, there's a catch-22 here. SWANSON: Exactly right. In our country so far, it's said, well, you smoked, you brought it on, let's worry about breast cancer. And I think we're now, with Dana Reeve's case, realizing it's not that simple. BROWN: Let me ask one really simple question. If your spouse smoked and quit, would you say, you know what, go get a CT scan. SWANSON: I -- yes, I'd do that. And the reason for that is once you quit smoking your heart disease risk in five years goes back to baseline. Your lung cancer risk never goes to baseline. So you're always at risk. You need to follow those (INAUDIBLE) vigilantly. BROWN: Thank you for coming in. SWANSON: My pleasure. BROWN: Thank you.

To clarify from your post, LCSC administration did not ask you to leave. We are sorry if you were asked to leave by another member of the message board. This is the first that we have heard of this.

We don't have them yet, but I just checked shipping per binder is: 9.85 USPS Priority mail (this can vary alittle depending on where you are in the country) The binders are full of fantastic inserts and the total package weight is 5 lbs (heavy), that is why the shipping is so high per binder. We will let you know when they arrive. We will not be adding any "handling" charges (LCSC will pay Lance Armstrong Foundation for the bulk handling charge)- These will just cost you actual shipping as these are something we think is worth having and that you guys should have.

We wrote to them too. They are talking primarily about quitting smoking.

Happy birthday Shirley!

Happt Birthday to boardmember Connie B. May you celebrate today knowing that you are loved and may you have many more!!

We will make an announcement as soon as they arrive.

LCSC has the opportunity to work with the Lance Armstrong Foundation to obtain a large quantity of Cancer Survivorship Notebooks for our members here. Would anyone be interested in this? You would pay for only the shipping, LCSC would provide them to you for free. Below is a description, Let us know.

Suggestions include writing your congress person, our government, your local media and ABC about *the need to explore the lung cancer epidemic further, *the need to reiterate that non smokers are at risk, *to emphasize that even if you do quit smoking that you are STILL at risk, *and although we need smoking prevention programs, *what we really need is funding for the disease, early detection screening, more research, and more treatment options. Good luck to us all.

This was already suggested last year about this time and I just wanted to answer why our Board of Directors decided not to do this then. It is very difficult to monitor chat sessions or have/create forums for children under 18. LCSC can not adequately do this. LCSC focus' solely on support for cancer patients and their adult caregivers/family members over the age of 18. In fact, because of the nature of the posts, graphic posts about illness and death and grieving, you are supposed to be over the age of 18 when you register here. Children who are dealing with a family member battling a serious illness are extremely vulnerable to preditors and there is no way we can ensure the safety of minors, nor are we able to take that responsibility at this time. Children who wish to post here or to use our chat function may do so only under the supervision of their parents. I can not imagine what it is like to be a small child with a parent who is sick and I hope one day LCSC grows large enough to create a website just for minors to accomodate this need. It is just not possible at this time.

LCSC routinely needs to back up data so that the information contained on this website does not get lost. Many other sites will archive or erase postings that are past a certain age frame. Currently all members have access to every post from the first day this website went "live". And all the data in each members inbox and PM functions are also saved and backed up. All of that information has to be backed up manually by Rick. There are new web development projects being worked on now and of course the new website design that will be implemented soon. During web development, the message board may become slow, or need to be taken off line several times, depending on the needs of the website and the time availability of the volunteer developing the website. We are sorry for the inconvenience!

Fantastic news here!

Monitoring forums for inappropriate posts, and then deleting the ones that are -is not manipulation. No posts have been altered, edited or changed by LCSC or our moderators. They were simply removed. Other message boards will delete posts that are of a different subject or content matter, or posts that sound like advertisements for other groups. LCSC does not do that. While it is appreciated that there are other message groups that allow heated and aggressive exchanges, and pretty much everything under the sun- those message groups are not non profit organizations- and may not have a vested interest in building an online community and a real-life community, that can have the respect and leverage to raise funding and awareness and to motivate action against this disease and actually make a marked difference. There is not a lung cancer community like this online anywhere. This website is growing and so is LCSC. While the onclave of disclaimers may have seemed overwhelming for some, it was something that needed to be done for quite some time.

The opinions expressed in this forum and on any subject, or any named individual hereafter are personal opinions expressed soley by the author (s) of these posts; and are not expressed opinions of LCSC, (lchelp.org) and those in association with this website. This disclaimer is being re-iterated here. LCSC, (lchelp.org) is not legally liable for any statements or any action resulting from any opinions expressed on this "public" message board. The Disclaimer can be found in the REGISTRATION AGREEMENT TERMS, which you agreed to when registering as a member to post on this message board.

The opinions expressed in this forum and on any subject, or any named individual hereafter are personal opinions expressed soley by the author (s) of these posts; and are not expressed opinions of LCSC, (LUNGevity Foundation) and those in association with this website. This disclaimer is being re-iterated here. LCSC, (LUNGevity Foundation) is not legally liable for any statements or any action resulting from any opinions expressed on this "public" message board. The Disclaimer can be found in the REGISTRATION AGREEMENT TERMS in which you agreed and signed when registering as a member to post on this message board.

The opinions expressed in this forum and on any subject, or any named individual hereafter are personal opinions expressed soley by the author (s) of these posts; and are not expressed opinions of LCSC, (LUNGevity Foundation) and those in association with this website. This disclaimer is being re-iterated here. LCSC, (LUNGevity Foundation) is not legally liable for any statements or any action resulting from any opinions expressed on this "public" message board. The Disclaimer can be found in the REGISTRATION AGREEMENT TERMS in which you agreed and signed when registering as a member to post on this message board.