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CindyA

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Everything posted by CindyA

  1. Yes Diane_Arvizo, please feel free to share here or if you wish to have private conversation you can private message me. Cindy
  2. http://lungcancer.about.com/od/Complications/ss/Causes-of-Cancer-Related-Insomnia.htm
  3. Hi Maral, Welcome to the message boards. I'm sorry to read about your dad. This is a great place to ask questions, and seek advice. LUNGevity has a lot of resources to offer you. Here is a good link to get started with. http://www.lungevity.org/support-survivorship
  4. Chipolte give-back night benefiting LUNGevity on 12/22/15
  5. For ALK: "FDA Grants Genentech’s Alecensa® (Alectinib) Accelerated Approval for People with a Specific Type of Lung Cancer " http://www.gene.com/media/press-releases/14615/2015-12-11/fda-grants-genentechs-alecensa-alectinib
  6. Hi Berry, Welcome to the LCSC message boards. It sounds like you have done quite a bit of research, however LUNGevity has a medically vetted website and is the go-to resource for those wanting to know more about lung cancer. Here is a good link to start with: http://www.lungevity.org/about-lung-cancer/lung-cancer-101 If you have any questions about the website or support services that we offer please let me know. Cindy
  7. Georgia G.M. Rauch, MSW is donating a percentage from the sale of her book to LUNGevity! If you have/or know of a child impacted by cancer, please check out this book. It would make a great gift too. Share! http://www.amazon.com/gp/product/1504960750?ref_=cm_sw_r_em_awd_8AxzwbZNRXJQZ
  8. Watch 10 year lung cancer survivor, Linnea, talk about clinical trials https://www.youtube.com/watch?v=FKEW1CZbt4w
  9. Watch Dr. Lecia Sequist from Mass General in Boston, explain ‪#‎lungcancer‬ mutations. https://www.youtube.com/watch?v=e9gTMptexi4
  10. Hi Isaut, Nice to hear back from you. Try to take one day at a time and don't forget to take care of yourself as well.
  11. Hi John, Welcome to the message boards, How neat that you and Donna G are both RN's! Anyway I read that you are aware of the statistics however there are a lot of people (many of whom I know) who are proving those statistics wrong! LUNGevity has the most medically vetted website and I think this link would be a good start for you. Lung Cancer 101 http://www.lungevity.org/about-lung-cancer/lung-cancer-101 Please keep posting if you have any questions, want to vent or just need some advice. We are here for you. Cindy
  12. Hi pobuddy, Welcome to the LCSC message boards. I'm glad you have a great support system. We are here for you and we have many friends here who have experience. So please ask any questions or share any feelings you may be going through. Like Tom mentioned above LUNGevity has the LifeLine Program. That may interest you. If so, please let me know if you have any questions on getting started. Hope to hear from you soon, Cindy
  13. Hi Julz, Welcome to the LCSC message boards. My heart hurts for you and your family. Does your dad have a nurse navigator that he speaks with often? Maybe (s)he could offer some new advice? Cindy
  14. Hi Marie! I am so glad to read the good news. I truly hope the nurse navigator will steer you in the right direction. Please let us know if you have any questions. Also if your dad would like to talk to a mentor please let me know. We can connect him to someone who has experience with a similar situation. It's called the LifeLine Support Program: http://www.LUNGevity.org/LifeLine I look forward to you next update. Cindy
  15. Did you know that you can access LUNGevity's Lung Cancer Support Community on your mobile device 24/7? It's TRUE! Download the Tapatalk app today and search for "LCSC". From there you can pop into any forum, or see what's currently trending! www.lungevity.org/lcsc
  16. Hi Diane! I'm so glad you are here too!
  17. THANK YOU! We are thrilled and SO honored by your generous support on ‪#‎GivingTuesday‬. You helped us raise $12,491! There are other ways to give and support lung cancer research. Find out more here http://www.lungevity.org/donate/other-ways-to-give
  18. Hi Susan, Welcome to the LCSC message boards. I'm glad you found us. As Tom mentioned above LUNGevity has the LifeLine Program that I think will be perfect for you. We will match you up with someone has is (or has been) in the same situation as you. Mentors are standing by. http://www.LUNGevity.org/LifeLine Please let me know if you have any questions. Best, Cindy
  19. Hi RTaylor, Welcome to the LCSC message boards. I'm glad you found us. I look forward to getting to know you. It sounds like you may have a really inspirational story of hope! Please let me kow if you would like to share it or if LUNGevity can support you in any way. We are here for you. http://www.lungevity.org/support-survivorship Take care, Cindy
  20. If you have a current or previous lung cancer diagnosis, your opinions on the future of lung cancer patient care are important to us! Research studies are currently underway searching for a gene that causes an inherited predisposition to lung cancer. Such information has already had a significant impact on patient care in areas where these genetic risk factors have been established (ex: breast and ovarian cancer). In order to best serve the needs of the lung cancer community who will be directly impacted by the outcome of this research, it is essential to understand the psychosocial factors that are important to the community. Below is a link to an anonymous survey assessing these factors. Anyone with a previous or current lung cancer diagnosis is invited to participate. The survey takes about 10 minutes to complete and is anonymous. https://www.surveymonkey.com/r/L5CS69V Thank you in advance for your participation!
  21. I'm so glad that you had a successful outcome! Best, Cindy
  22. Hi Lee, Welcome to the LCSC message boards. Wow, you have a lot on your plate. I read where you mentioned that you are worried about work. Cancer and Careers is a great resource for people in the workforce. Here is a lionk that I think may help you. http://www.cancerandcareers.org/en/at-work/Back-to-Work-After-Cancer Also, aside from our message boards LUNGevity has a wealth of information on their website as well in the survivor resource center. Here is a link to that section http://www.lungevity.org/support-survivorship/survivor-resource-center Please let me know if you have any questions about any of our support resources. I look forward to your next update. We are here for you. Cindy
  23. Hi Linda, Welcome to the message boards I'm so sorry you are having to go through this. Please know that we are here for you. You are not alone. Have you heard about the LUNGevity LifeLine Program? The Program connects you to a mentor who has (or is in) a similar situation as yourself. Please let me know if you would like for me to give my colleague a heads up that you may be seeking support. Here is the link to get started: http://www.LUNGevity.org/LifeLine Cindy
  24. Don't miss this Tweetchat! December 2nd, 7pm CT/8pm ET We will discuss the caregiver role, things you wish you had known and tips for new caregivers.
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