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KathyJ

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Everything posted by KathyJ

  1. I just wanted to thank you all for your support and encouragement. I had felt so alone, and hearing stories of people surviving with this has given me the hope I needed. Tim had his second treatment Monday...saw the onc before and she was very pleased...his blood counts were excellent, he had gained 2 lbs (must be the shake I make him every night!) and she said his lung sounded good...asked her about some new treatments, but she said that they are not FDA approved, but that 6 months to a year down the road as soon as they approve Iressa, she will put him on that. It took a minute or two to sink in..she said 6 months to a year down the road...seems like she must think he is still going to be around then ! More hope !!!! He did well with this treatment, they gave him Zofran with his Reglan and he had NO nausea at all this time..today he was just totally wiped out and slept all day.... Thanks again...god bless.... ((((HUGS)))) Kathy
  2. Hi all ! I am new here...my husband (Tim) was diagnosed with NSCLC 12/27/02. He went to the ER and they thought he had pneumonia with fluid on his lung, but after a course of antibiotics it did not clear up and we followed up with our Primary care...ended up taking 2 litres of fluid off the lung and the fluid was sent for testing and they found cancer cells in the fluid. He ended up having a VATS Talc Pleurodecis procedure to seal the pleural linings of his lung to prevent any further occurances of fluid. We were told that it was large cell undifferentiated from the test of the fluid. They did a bronchoscopy when they did the VATS and the surgeon saw one tumor in his right lung that was pressing on a airway. All his CT scans, Brain Scan, Bone scans came up clear... but from what I understand as he had a malignant pleural effusion that automatically stages it as IIIB The oncologist said no surgery, but he has had his first treatment with Carbo/Taxol- once every 21 days and goes for #2 on Monday. He did fairly well with the first one...a little nausea that the meds took care of, a LOT of fatigue, especially at the point when his white cell count dropped, and his hair did start coming out (shaved his head to take care of that !) He will be having 6 treatments and then the onc said she would start radiation either 1/2 through, or after. Tim decided he did not want to hear "how long"...that he just wanted to know what he needed to do and he is determined to beat this. He has a great attitude...I have (unfortunately) read up on the internet and the statistics are so grim, that I am trying to be positive, but to tell you the truth, they have scared me to death.... I love this man and do not want to lose him. He is only 54 and before this never even got colds. The shortness of breath that one day when we went to the ER was the first and only symptom. My friends say they understand, but they really don't. I have no family..I have no brothers or sisters and my mom is in a nursing home. I do have 2 stepsons, but they have only called their dad twice since they found out in December and never visited him in the hospital when he was there for 6 days for the Talc procedure. I go from being angry to crying... Please tell me there is hope. Kathy
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