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Marlene

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  1. I have been on Tarceva for over 2 years and within recent months my hair has been getting thinner and limper. This is not something that's usually talked about as a side effect, such as the rash. Has anyone else experienced this?
  2. Hi Kellie, I am also Stage IV with the EFGR mutation. I started Tarceva about 4 months ago. I did get the rash on my face, shoulders and back but not as severely as yours. And the very, very dry skin. Here are the products that have worked really well for me. First, I apply a prescription cream from my oncologist - Aslometasone Dipropionate Cream USP , 0.05%. I spread it over patches or dot it on with a Q-tip where the spots are not close. This keeps the rash under control. Then I use a thin layer of Derma-E Pzorzema Creme which I use because the dryness was making me itch, regardless of how much cream I put on. Then I slather on a cream called Dry Skin Relief by Collective Wellbeing or Acure Calming Body Lotion. This may be enough for you. Since I'm in Chicago with the worst winter in decades, I then add a oil that seals everything - Goe Oil by Jao. The oil sinks in pretty well, but I do live in cotton leggings and undershirts under my clothing. The rash is an annoyance at this point, no more. Hope it stays that way.These products are available on-line or at Whole Foods-type of stores. I hope at least one of these helps. Oh, I forgot one thing that you probably already know -my oncologist did prescribe an antibiotic, Minocycline which I used for just a few weeks when the rash started to worsen. It did help and I stopped when the rash seemed to stabilize. Peaceful thoughts, Marlene
  3. Hi everyone, I live near the Block Center for Integrative Cancer Treatment in Skokie, Illnois. Block doesn't require that you get cancer treatment from them and they will work with just the dietary and supplement protocol it that's all you want (which is what I'm looking for). Has anyone been to them or know of anyone's experience? I've read varying things about them. I know nothing is definitive and I'm just looking for any feedback from anyone. Thanks, Marlene A special thanks to Stockster5 for the tip about Block . . .
  4. Hi all, I am a few months into my Tarceva treatment - Stage IV -EFGR mutation. So far, so good, but I want to be prepared for when it stops working (hopefully not for a long time.) My doctors may very well have the best next step, but I would like to get a second and third opinion on courses of treatment. If anyone would have ideas on doctors and hospitals, it would be this support community. Thanks for any feedback. Joy and a peaceful mind, Marlene
  5. Thank you so much. I will check out the book ASAP. As I'm sure you know, clinical data on herb and supplement interaction with Tarceva is hard to come by. I am pursuing other ideas as well and will definitely post what I find. May we all look forward to a peaceful, joyful new year . . .
  6. Hi everyone, I was diagnosed a couple of months ago with Stage IV lung cancer and it turned out to be the EGFR mutation. I had a large tumor removed from my brain and am recovering okay from that. (That's how the cancer was discovered, the tumor affected my vision.) I have been on Tarceva for a month and will get scans soon to determine its efficacy. I have the mildest of skin rashes so far, but we'll see . . . Does anyone have any information or sources for integrative or alternative therapies that will help without interfering with Tarceva? I have been told to stop most of my usual supplementation because of the lack of evidence on how they affect the medication.(I come from a raw vegan perspective so I'm in another world here.) I appreciate any input or insight. Thank you all, Marlene
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