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Dana L

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    Edison
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  1. Hi all, Update... We have been back and forth to sloan in NYC, they are wonderful. Mom is 3 sessions into her radiation to relieve back pain... They want to do ten. They also want another biopsy... Clinically they thing primary is lung but they said previous biopsy from other hospital isn't concrete and they want to be certain. No word on mutations yet but they said they are going to send their biopsy out again. Met with onc...again he confirmed he would classify her healthy and feels she can tolerate treatment. After radiation and given biopsy results confirm previous findings he wants to start carbo/alimta/avastin. I'm feeling positive but that fear of what if she doesn't respond always lingers. What does everyone think of this plan?
  2. Diane so glad I found you guys- so comforting to know this place exists! We are getting treated in Sloan Kettering in NYC
  3. Randy I check through the day for responses from you guys... It's great having support from those who have been through it . Keep it coming please!!
  4. Spoke with oncologist today.... He feels the fact that she is in good health and no other symptoms means she would tolerate treatment.... Sending biopsy to check for mutations... I know it's bad news but I'm feeling so positive like she really has a shot. Am I being naive? Really need some encouraging words.... I'm looking at she's not dying of cancer she is gonna live with it and fight and have quality of life. The positivity is helping
  5. Cindy and Nikole thank you for the welcome....although I wish we met under different circumstances ... Reading the stories is what gets me through the day. Biopsy came back and showed adecarcinoma....however the doctor seemed pleased that she is young and healthy and should tolerate treatments. I know it's a fight but you can make it! And for us it's not an option for her not too. If it weren't for the pain we would have never known
  6. Randy thanks so much.... Pathology reports hopefully come back today. Feeling confident but the fear is always there. The waiting is torture
  7. Eric thank you so much for replying!!! The hospital we are at does not have a good reputation for dealing with this stuff- so as soon as we get her pain controlled I am getting her somewhere else. I just don't want to waste time- but everyone thus far has said waiting a week or so getting somewhere new won't make the cancer grow or spread. The statistics online are terrifying! But everyone is different so from now on no statistics or docs saying time left- we are gonna fight and not give up. You all on here give me such hope- and I am brought to tears when I read your stories. Hearing the cancer word is such a blow! But finding this shows people make it thru even stage 4!!!!
  8. So.... My mom was having back pain since September and after seeing numerous doctors they said it was sciatica . Well after this week the pain was so bad she had an MRI which showed spine lesions. We took her to the ER and after tests our world was rocked when a CT showed hot spots in her lung, liver, and bones and two lymph nodes. Her primary doctor said I told you so bc she is a smoker and said the only question I should ask the oncologist was how long she has to live. Totally unacceptable to me. I felt like I was just given my moms death sentence. After speaking to a friend who is a nurse at fox chase she told me stage 4 is not a death sentence, while yes it's ideal to catch early treatments can offer long quality of life. Basically I just would like to hear some encouraging words.... We are ready to fight and will not take no for an answer
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