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Phil.... I was diagnosed with Stage 4 NSCLC, EGFR+ with exxon 19 deletion. Before Tarceva I had one treatment with Alimta and carboplatin. Then markers came in as above. I was then started on Tarceva 150 and within a week or so I was a giant pimple. My Onc did as your wife's did. Once I dropped to 100mg the rash decreased a great deal but, remains present now 13+ months later. I'm sure your Onc told you the rash is often an indicator of good activity against the cancer. Also for nearly one yr I've been on a topical ointment made by a specialty compounding pharmacy named DermaTran. They are in Rome, GA. This ointment is made for TKI induced rashes. See if your wife's oncologist would check into it for her. I do know of some folks who have responded to Tarceva who are not exxon 19 or 21. I wish your wife and you good luck...you'll be in my prayers:) Andy

Jessica ....you and your family are going through a really tough time right now. It is very hard to see light at the end of the tunnel but, it is there. When someone starts there cancer treatment journey after complications from surgery it is harder when they start their chemo and radiation. She has the added problem of clotting. This is common in cancer patients. Most oncologists have many patients with multiple issues. I have a feeling if you and your family continue to show your support and love to your Mom she can get through this. Good luck and please update us Andy Sent from my iPhone using Tapatalk

Lizc...how did your mom's PET scan turn out? Andy Sent from my iPhone using Tapatalk

Hi Matilda I've been on Tarceva for one yr now. I have stage 4 right NSCLC that is EGFR +. The most common and desired side effect is skin rash. Yes, desired! The rash is a good indicator it is working. Also, some loose stool or diarrhea is fairly common. But, you can manage this with Imodium and you learn what foods cause problems. My last scans showed the one remaining lung tumor is about the size of a pea and bones appear healed. Tarceva, for some is a wonder drug. Good luck:) Sent from my iPhone using Tapatalk

This plan sounds fantastic! The larger the net you cast into the water the more fish you can catch. Clinical trials have historically been slow due to the filtering process. I hope the search for squamous cell NSCLC is successful as this is an Area of real need for a breakthrough in treatment.

Hi Sweetie I'm a new moderator for this forum. It's obvious you are very dedicated to caring for your Mom....a labor of love. I saw she is KRAS positive. Has your care team explored possible protocol therapy? I'm aware of some information coming out of the current American Society of Clinical Oncology (ASCO) meeting about KRAS positive NSCLC. Your mother's Oncologist would be a source of info on this and whether or not she might be able to qualify If/when she recovers from her obstruction. I wish you and your Mom the best. Andy