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barbara5452

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Posts posted by barbara5452


  1. Hi, sorry you need to be here, but you are in the right place for answers, and if no one here can give them to you there is a site called www.onctalk.com that has lots of info on lung cancer and a wonderful doctor who will try and answer your questions. Hope this helps. I have had 2 biopsies and the first was not a problem, the second was so different, lots of pain for a few days which makes us worry even more. Hope mom gets to feeling better soon she is so very lucky to have you.

    Barb


  2. God Bless you all, as I read all the replies the tears run. I feel I may have stayed away too long, not reading and keeping up with all of you. Once again you have shown me I am not alone in my fears and that really means alot. I will make a point to visit everyday. Again thank you VERY much. You all have already helped me feel not so alone. I Love you all.

    Barb


  3. Sorry, I have not posted lately, been very depressed, partly the cancer and partly this dreary winter weather. Last scan show stable, liver, spleen, adrenal all clear. But dominate 2 cm nodule showing up in the para tracheal region with minimal calcification which the onc. doc said may mean scar tissue after radiation. The calcification is what they like to see. I am so tired of worrying with this disease, does it ever get any easier ? For almost 4 years I have lived my life 3 months at a time like most of you and am feeling what will be will be. Is that denial or acceptance or just plan giving up ? If this nodule proves to be cancer again, I don't believe I can have radiation again to that area, is that correct ? My family doc says the good in it all is it is just a nodule not any place else. I pray it is just scar tissue from the radiation. Every radiologist reports has something different in it, that is very confusing to me. Sorry to be so depressing but that just the way I feel tonight. Please say a prayer for this awful depression to leave me. Thanks for listening.


  4. Pup, I too worked thru chemo and radiation, after completing it I was hospitalized for double pneumonia caused by the radiation. It was that week in the hospital I decided I no longer wanted to give all my time and energy to a job, and go home and go to bed just to make it in the next day. I wasn't spending anytime with my family, just sleeping so I could have enough strength to go in the next day. So when I left the hospital I went directly to my work and gave no notice, just told the doctor I worked for that priorities had changed and I was quitting. It has been hard I too had no STD or LTD at work. It has been rough but we have made it through and I have no regrets. Mets to the brain can have wonderful outcomes with new technology people are surviving them. Stay positive and put your health before your job. Prayers.


  5. Sally, glad things are a bit better, I too had no gifts under the tree, first time in 25 years, no money, church has been providing us with food baskets every now an then, my car was repo'd the beginning of Dec. I finally started receiving my SSD check in Dec hopefully things will get better. I know how depressing it can be, but to say he least this Christmas was the best I have ever had. Kids came in with their spouse and boyfriends we played cards all day and laughed and had a wonderful family meal. Who would have guessed the material things of Christmas meant nothing, I truly found the spirit of Christmas when my husbands work arrived on Christmas eve and the plant had collected over $900.00 for the family. 1st thing I bought was groceries no gifts and paid a few bills. God Bless us all and a better 2008 for us all.


  6. Max, congrats to you, I too had a similar experience with my recurrence, after a week I took charge, was told by my family doctor that he felt things were moving along, I responded by saying, they are now because I had to stay on the girl that was suppose to schedule me with the onc. to start chemo and radiation. I didn't want that tumor to grow any more, if they were only in our shoes they would understand.


  7. Everything changed, my outlook on life, my priorities, my love of my everyone in my family, making amends with myself. I too have been on disability for 6 months now and have enjoyed every bit of it, I have gotten back into crafts and sewing, just recovered the living room suite did it all at my own pace, I don't always feel good everyday but at the end of the day I am thankful to still have what I have. Great subject.


  8. I was wondering if anyone that has had chest radiation could tell me if the coughing ever stops ?

    It is getting better but I just feel I will always have it from the radiation. Lots of phelm, mucinex and water and going to the bathroom from the water is all I seem to get done. Also anyone on Advair inhaler, been using it over a month now and was wondering if it caused your voice to be hoarse ?

    I never had any coughing until after radiation now I stay with a lung infection all the time. I guess maybe its a good trade off but it is very annoying,

    going around spitting up all the time. Thanks to anyone that can reply, especially about the Advair inhaler, kinda worried about the hoarseness is it the Advair or something else ? Thanks


  9. Bruce, I too think it is panic attacks, look at all you have had to deal with in 4 1/2 years, sometimes

    things just come to a head. Heck I lose things all the time since chemo, I could get up right now to go

    get or do something and get to the kitchen and forget what the he... I got up for, start to go back and sit down and remember what it was. Yes I spend most of my day walking from room to room HA HA. Stress and anxiety can make us feel out of the norm. but do mention it to your doctor, I have and was told it was chemo brain.


  10. Corrin, I was one of those who had surgery in 2004 upper right lobe removed where the surgeon said I GOT IT ALL, no futher treatment, I never made it 3 years until the beast reappeared. So get all the info you can for mom and keep my story and others in mind cancer cells can be so so small and undetectable at the time of surgery and that cancer did not appear overnite just think about what may be loose in the body waiting to find a place to land again. GOD BLESS


  11. Brian, glad you chose to write on this subject. I did smoke and blame my cancer on that, but I also wonder about when I grew up we heated with coal and I can remember the black suet and wonder if that may have contributed to my lc also. I was raised in proverty and some of the places we lived growing up had roaches and I can remember my parents using all the chemicals to control them and often wonder if that too played a part in my lc. I can still remember the fumes from that coal and chemicals. Who knows. But just to let you know it really bothers me when people ask if I smoked, first off I should have never started and second there are so many here who have never smoked at all. Lung cancer makes us feel like outcasts in this world, and I too wish the tobacco companies would someday have to answer to what they have done to so many, making cigarettes so addictive. Good luck on your paper and hopefully you can put some insite on how we feel and try so hard on a daily basis to deal with this cancer. At times its a feeling of doom for me but I bounce back to being positive because I believe that is 50% of survival, the doctors can only do so much. GOD BLESS

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