Hi, Flo, and welcome here. There are many survivors here and courageous survivor stories.
My wife was Stage IV NSCLC. She was given 9 months and lived 4 years. She was able to help others and live a limited but useful and good life. I was her primary caregiver during all that time, as well as her advocate. I went to most of her office visits so we could have two pair of ears to hear and two mouths to ask questions. I went with her for most all chemo treatments, but the radiation treatments (daily and short), we called upon friends to help out so I wouldn't have to do it all.
The patient is usually too tired, too medicated and too sick to fend through the medical system and they need to focus on fighting the disease. So they need an advocate to push on the system, ask questions and be sure things move along and the patient gets what he/she needs. If you have any specific questions, let that be known -- a wealth of experience and knowledge here. Keep us posted on your hubby's progress. Blessings. Don