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LizG

Members
  • Content Count

    18
  • Joined

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About LizG

  • Rank
    Newbie
  • Birthday 09/22/1986

Profile Information

  • City
    DAYTON
  • US State (if applicable)
    OHIO
  • Gender
    Female

Recent Profile Visitors

1,009 profile views
  1. LizG

    Mobility Help

    Hi everyone, Since I last was active in the forum my mom (Stage IV Adenocarcinoma, diagnosed 9/14) has had a severe decline in her mobility and regularly needs to use a wheelchair. She has been experiencing a host of digestive side effects from her pain medication which have left her pretty frequently unable to eat. The weakness this causes is the main contribution to her overall mobility problems. Mom is no longer able to navigate the stairs safely, so to take her to appointments and treatment we have to carry her down the stairs to the driveway to get her to the car. I am trying to f
  2. My mom is also taking Opdivo, she had her second round today. She is also experiencing the baseline lack of appetite, fatigue, weakness, and also really severe constipation. Has anyone else had to deal with bowel issues while in treatment?
  3. Hi everyone, My mom is in treatment for Stage IV NSCLC. She originally received Pemetrexed and Avastin but she became neutropenic and was put on chemo vacation for a bit. While she was on break from treatment her kidneys weren't functioning well and her blood pressure was very (uncharacteristically) high. We went to a kidney specialist who could see that the chemo had caused high blood pressure which in turn damaged her kidneys, and she was prescribed BP medication which was working well. Her BP normalized and her kidneys improved, as did her overall health. Due to its negative effect
  4. Hi orange_krush, My mom was diagnosed 6 months ago with NSCLC which also metastasized to her bones, leaving her with small fractures in her hip. I live 4 hours away from her so I understand how you feel. I have learned to go with my gut. My initial reaction was that I needed to move home and be with my mom to help manage her care, but ultimately I haven't done that yet. I try to visit as much as I can and do the same- lend an ear and give love and support. For me the hardest part is wanting to be able to make things better but knowing there's not much I can do. I've always been rea
  5. Hi, I am looking to learn more about holistic treatments that can be combined with traditional chemo and maintenance treatment in patients with Stage IV NSCLC, EGR negative. I have been reading about the benefits of turmeric, frankincense, and maitake mushrooms on different forums and cancer center sites. I was wondering if anyone has any recommendations or knowledge about whether alternative therapies can help with symptom management and cancer regression, and also if anyone knows of negative side effects to be aware of. Thanks! Liz
  6. Thanks so much Katie, this is very helpful!
  7. Hi everyone, I am hoping for some advice/insights on good ways to talk to potential employers about FMLA as a caregiver. I have been working as a contracting consultant since before my mom became ill but today found out that my current contract will be terminated at the end of the month (not unusual for my line of work but not awesome timing). I will be looking for new employment at the end of the month. My current employer was understanding and flexible with time as I travel to help my mom once a month, and I was able to work odd hours on days I accompanied her to chemo or dr appointments
  8. Thanks Katie! The Foundation One test is different because it's not specific to lung cancer and its results can be useful if standard treatment protocols are unsuccessful. It was recommended by our friend because of an acute but widely varied history of cancer in the family. Both of my mom's parents died from different forms of cancer and many of her cousins, aunts, and uncles were also afflicted.
  9. LizG

    Anemia?

    Thanks Randy. After talking to a chemo nurse it sounds like a transfusion will be likely. Keeping an eye on her over the weekend for symptoms of illness and washing hands even more than usual. My mom hasn't needed a blood transfusion before, are there any potential complications to be aware of?
  10. Merry Christmas, Donna. I hope it was a peaceful day
  11. LizG

    Anemia?

    Hi everyone, I posted this in 'Ask the Experts' but want to repost here in case anyone else has experience or advice! Thank you and I hope I'm not spamming or violating rules. Merry Christmas! My mom is currently receiving Chemotherapy every 21 days (Pematrexed/Avastin/Carboplatin). She is 16 days out from her last treatment and has noticed red dots on her legs. From what I've researched it looks like she's exhibiting symptoms of anemia. She has also been very tired which has been normal at this point after treatment, but now I'm concerned that it is connected. How normal is anemia wh
  12. LizG

    Anemia?

    My mom is currently receiving Chemotherapy every 21 days (Pematrexed/Avastin/Carboplatin). She is 16 days out from her last treatment and has noticed red dots on her legs. From what I've researched it looks like she's exhibiting symptoms of anemia. She has also been very tired which has been normal at this point after treatment, but now I'm concerned that it is connected. How normal is anemia while a patient is in chemo and is it ok to wait for her bloodwork planned on Monday (4 days from now) to talk to the doctor or should we be on high alert?
  13. A person close to my immediate family is a Chemotherapy Nurse and works with some of the leading oncologists in the area where my mother is receiving treatments for Stage VI NSCLC (Adenocarcinoma). She has been a proponent of having my mom undergo Foundation One genetic testing to see if it will provide any insights to her cancer and help determine better treatment protocols. This test is expensive (around $5000) and rarely covered by health insurance, including my mom's plan, without petitioning. The doctors have said that this test should wait until they determine the success of the chemo an
  14. Thanks for the responses! We did have the test run for EGFR mutation and that was negative. There's another genetic test that can be run but it's really expensive and not covered by insurance and at this point the doctors have recommended revisiting that test if chemo is not effective. My mom was originally in a clinical trial but was unable to tolerate one of the meds which I've since researched a lot about and found that it's commonly very reactive and can lead to cardiac arrest. Luckily we didn't experience that, but it did cause my mom a great deal of pain and was scary to see. She
  15. Hello, I am Liz and I've recently been approved to participate in Lungevity forums. I am 28 years old and my mom was recently diagnosed with stage 4 NSCLC. She is currently in chemotherapy and has also had radiation and another non-surgical procedure to help with some of her mets. I come from a large family and have several younger siblings, including two teenagers who live at home with my parents. This has been a rough few months for all of us. I am a part-time caretaker and full time cheerleader for my mom. I travel from where I live to stay with her 1-2 weeks each month. I am v
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