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Kberns

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Kberns last won the day on January 16 2015

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    FLORIDA
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  1. Hi Ryan, Sorry you are at this site and so young. I too started with the diagnosis of asthma and then pneumonia. Went on for a long time until the dr finally ordered a chest x-ray. I did smoke when I was younger but believe it or not, I was a physical education teacher, weight lifter, aerobics instructor and the last 15 years a personal trainer. I have always been very physically active and nutrition played a big part in this. I was diagnosed in Sept, 2014 for stage IV with mets to my vertebra and ribs. After 2 biopsies in the lung, no mutations have been found and I am on chemo. Still fast walking 2-3 miles a day and back to light weight lifting. Feel great and have 1 more treatment before the cat scan. Hope I get good results! You sound very positive and I can feel the high you get through your workouts. I know I don't have to tell you to keep going because you will anyway! Doctors cannot tell us when our time is up....mine gave me 6-12 months and I don't believe them. Where has your lung cancer metastasized?
  2. Hi Everyone, Had my 2nd treatment Tuesday so here is my update: UGH!!! Once the steroids wore off Thursday I began to get foggy, cold and blah feeling. Yesterday I could hardly get out of bed..could hardly eat..not nauseous but feeling like I was going to be, headache, cold, backache, metal taste with drinking water, etc. I had a good pity party with myself and I am up and moving again today. Still have a foggy brain today and cold hands but I will try to walk some miles to get the circulation going. Looking forward to tomorrow as I know I will be back to normal!! Hope everyone else is doing great!!! Karen
  3. I don't understand why no genetic mutations were found after 2 biopsies.
  4. Hi Rose, How did the treatment go last week? My 2nd treatment is tomorrow so I am now buzzing around on those steroids they make you take the day before. Hope I sleep tonight! Please update so we can go through this together!! Karen
  5. Happy by Pharrell Williams.....works every time!!!
  6. Just wanted to say that you and your husband are not alone. There are many of us here fighting the same battle. The Oncologist will play the major role here and will answer all your questions. Write them down before the appointment because it does become very overwhelming that first appointment. Please come back with questions or just to vent. We are here for you and your husband. Karen
  7. Hi Rose, I too am a newbie and found this site so very helpful. I to have nsclc adenocarcinoma with mets to the vertebra and possibly 2 ribs. I started Carbo/Alimta Jan. 6th. I have had 2 blood test since then and so far perfect. I was exhausted day 3 &4 and felt like a fog was surrounding me but I am fairly sure it was because they have me taking a steroid the day before and the day after treatment. These steroids make me feel like super women and I cannot sleep. So I will see what happens at my next treatment! I too go every 3 weeks and have a CAT scan scheduled after 3 treatments. Hope this helps knowing I am on the same journey with you. Moving from NC to upper NY I can see how you were in a fog! I moved from South Florida to North Florida and I am still in culture shock!!!! Karen
  8. Hi Kakalina, I am new to this site but wanted to lend you some support. I just started treatment for nsclc and so far I am feeling great. My husband was with me when the doctor told us I had 6-12 months to live...you can just imagine how shocked we were. For days I walked around in shock and my husband said he would pull over his car and cry. Your husband is acting in his own way. To this day I have not told many people, including family. Everyone handles this differently but knowing he has your love and support is the best thing in the world. Lots of test, MRI's & CAT scans and possible PET scan if he hasn't already done that. Hang in there, the more info you can get the easier it will be to find direction. Waiting is the enemy but once I had direction everything became so much clearer. Keep writing as everyone here really helped me through my first treatment!
  9. How are your doing now? I see you initially posted back in October so can you share what your experiences have been? I just started chemo and have my 2nd treatment next week. The steroids kept me awake for 3 nights but during the day they kept me busy doing everything!
  10. LOL Cindy..highs today might get to 50 and low's in the 30's! The sun just came out for the 1st time in 10 days. I am close to the Georgia Border in Atlantic Beach so it gets cold here! Please stop sending those cloudy sky's and rain our way!!!! Thanks for the link on clinical trials. For now I am done looking after what Moffitt put me through. Because they can't find a genetic mutation in me it keeps from from entering almost all the trial, or so I have been told. I do not want to to another lung biopsy at this time so I am hoping I get great results with the carbo/alimta. As I have already had 1 treatment, I have 2 more to go before the CAT scan. Fingers crossed!!!!
  11. How is your husband doing? How are you doing? I just started chemo on Jan. 6 but am feeling great. Hopefully your husbands symptoms did not last too long and he is feeling better....let us know! Karen
  12. Thanks Randy for the link, I get notifications from clinicalconnection about trials as well. I live on the northern tip of Florida so I tried to look for trials in this state. After traveling to Tampa and back many times, I am so relieved to be back at Mayo where they really treat you like a human being and not some number. No problem keeping the weight at the rate I am going! Once these darn stitches from the port heal I will be back to weight lifting which helps my weight as well. So glad to have 'met" you! Karen
  13. Thanks Cindy & Randy! It is a nice feeling having people to talk to about this journey. I have to give up on the trials for now as I really put my health on the back burner chasing them. It was a bad experience because of the people I dealt with. There was no communication and I would carry by cell to the bathroom just in case they called. I hardly left home because I did not want to be in like Home Depot having that conversation with them. Then, weeks would go by and I would leave tons of voice mail but nothing came of it. This went on for months. Hopefully Mayo will be getting some trials back this year which I would not hesitate to go for. After one chemo treatment I am feeling great but with weird side effects no one mentioned to me. I can't stop eating and my energy level is extremely high. Thankfully I am thin so the eating won't hurt me too much!
  14. Thanks Eric for the welcome wagon! I did not demo the whole house....the can of worms kept opening as we started with the master bathroom and found the mold had extended to the master closets due to a small leak from windows. I then had a mold detector come out and found mold in the other 2 bathrooms, entire kitchen and family room. These houses are built with wood and I unfortunately have a flat roof as well. On top of that I live 2 blocks from the ocean. On the bright side, I do live at the beach!!! Door is always open so book your trip!
  15. Thank you for presenting this article in a way that is understandable. I recently had 2 lung biopsies, required for clinical trials, and was rejected from both because no genetic mutations were found. Very disappointing and frustrating. Does this happen often?
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