Kasey
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Posts posted by Kasey
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God IS good, Janet. And gamma knife is GREAT. I'm hoping for the very best outcome to put you back to the status where you've been for the past 4+ years. Yes, I do believe it will happen.
Best of luck and keep your chin up. I'll do the heavy lifting of worry for you!
Kasey
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Hi Alan,
I am a pancoast tumor survivor too. I was dx'd in Sept. '04. I'm doing pretty darn good! I must point out, however, that the reason I am here is becasue of Donna G who posted a bit ago. I found this website and she set me on the right path for treatment. Up until that moment the docs here told me I'd be gone in less than 6 months! HA to them. And thanks again to Donna. Welcome to our club!!!
Kasey
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I don't usually have a thing to say here in the 'air' of the day. We must be just plain old boring people. But when I saw the salary of the ACS's CEO posted by Bud ~ I just had to say - NO WAY ACS!!! Spend some of that - MOST of that - for research!!!! And please include LUNG cancer!
Kasey
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I rememeber ~ I joined over a year after you, but recall reading all your posts as I, too, was dx'd 3B. Congrats to you both. I so understand the anxious feeling of not being checked out anymore. I now am on yearly visits and that makes me feel less than confident. I am going to send you a PM as I THINK perhaps I have you in my email buddy list. Not sure, but will check it out. So........for this moment I am toasting you both with a nice glass of merlot!!!!
Kasey
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- sorry, Becky. Can only imagine the emotions you felt seeing that. I remember BeckyG.Kasey
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Cheering from PA, Carol. It was 6 years since my surgery this past January. I leave Monday to head to Bethesda, MD for my checkup Tuesday and Wednesday at NIH. Yes........a bit anxious here. When I return you and I will have a proper celebration ~ at least I'm hoping that will be the case.
Kasey
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Prayers already said, Lisa. Try to keep those crazy thoughts under control until all testing is done and results are in. FYI........flu around here has been brutal. Many people very sick for extended periods of time ~ me being one of them. 3+ weeks and still wasn't really back to what my normal is. Keep that in mind! And be sure to let us know how she's doing.
Kasey
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Three years
in GRIEF
I'm glad you stopped by, Laurie. I CANNOT believe it's 3 years!!!! For some reason that seems to be much too long. I am glad you have all those wonderful memories! Just wondering if you are in a new location?? Hope you are doing well and have lots of good in your life. You certainly added good in mine the time you were here. Thanks for that. Good luck and hope to see you around from time to time.
Kasey
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Hi Susan,
You find yourself in the exact same position all of us here were in when first diagnosed. It is hard to step back and take time to just take some deep breaths. It seems that you still ned a lot of info from your medical people, so don't go trying to guess what's going on. The internet is full of great info and also scary and inaccurate stuff as well. It's best to get all your info and THEN try investigating. Right now you are just stabbing in the dark.
I am from PA too. Where are you? The folks here will have their expertise to share, but we all will need to her the whole story ~ like just what type of lung cancer you have. No need to get into SCLC and NSCLC yet.
Just a few things to get you started: keep a notebook with all the info from each and every appointment; get copies for yourself of all scans and reports; it's a good idea to take someone with you to all appointments (easy to not hear ~ or hear incorrectly what you are being told);ask lots of questions; second, third, AND fourth opinions are good things.
I'm looking forward to hearing more from you as you gather your facts. Take the anxiety meds and take time to breathe, and take in one step (day) at at ime.
Kasey
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Ah Judy ~ we should have been chatting at 4:00 this morning. I was up 4 times last night. I've been struggling with sleep for quite some time now. Some nights I don't sleep at all. Ativan has stopped working
so I just am tired all the time lately. I do not, however, have the intestinal distress you are experiencing, or the worry of second guessing my decisions. I find your strength and attitude quite remarkable, you know. I've no advice to help you with decision-making. I just hope you know that there are manyof us out here who would change things for you by our sheer will if only we could. I believe you are being treated at a wonderful place and guess they know what they are doing. I do understand, however, how weary you must be being on treatment all this time. I hope when May comes it brings some peace of mind that decisions made are the right ones. Wish I could make you feel better. Kasey
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Hi Debbi,
Just wanted to be sure to welcome you for now. You will have many questions and people here will have some of the answers for you. You mention Philadelphia. Is that where you live? I am originally from right outside of Phiia, butl ive a bit further west now. There is a group from here who meet in King of Prussia a couple of times a year for lunch. In fact, tomorrow, 3/26, we will be there! Hope you can become part of our group. Be sure to keep us updated and hopefully we can chat more personally sometime soon.
Kasey
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Judy - didn't see your post BUT I do think we need to talk sometime. Love to you!
kasey
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Well darnitall, Judy. This certainly DOES stink. I wish I had some words of wisdom or suggestion as to where to go from here. You are always on top of things and certainly would follow the right path. Maybe contact NIH and talks to someone there for an idea? I'm just disappointed for you and frustrated as well. Stay vigilant and leave no stone unturned. I will do the same. Just so sorry to hear this, friend.
Kasey
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Hi Dave!!!! Sorry to have to meet you here. Hopefully there will be lots more folks stopping by to welcome you and offer support. Being diagnosed early is a very good sign. I know there are small cell survivors here - sure hope they find you and respond. I found this support site 6-1/2 years ago when my doctors told me I had no light at the end of my tunnel. And here I am all thee years later. Please be sure to keep us all updated as your treatment schedule unfolds. Many here can help you with questions you may have.
Kasey
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Have a wonderful time, Judy. You so deserve it!!! Can't wait to hear all about it!
Kasey
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I forget what everybody looks like!!!!!! And I miss Jack too! It's hard for us to plan a weekend in advance since we are making frequent, and often last minute, trips to the dairy farm. I know March 5 and 19 we will be there. As of today, March 12 and 26 are open. Then we get to April. April 2 or 16. That's what we have for now. Hey Ginny.......what about Ellen??? Don't you have her phone # and/or email? Haven't seen a thing from her since forever. Last time she said she could feel she wasn't doing as well as she had been. Worried.
Hope this finally comes together for us.
Kasey
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Hi Doc!!! I posted to you on FB, but wanted to say a big welcome here! I'm so glad you are feeling great! I also hope you get a good report and find that you do, indeed, have things under control. MUCH progress is being made for LC. Our job is to keep doing what we can until the nexxt best thing comes along!!!! Best of luck to you and I look forward to seeing you around here!
Kasey
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Well, Eric, it seems Snowflake has cleared up PA for you. Yes, it is the state of Pennsylvania wihich is in the Northesstern part of the United States. It is just a bit SW of New York State. And the movie 'Witness'.................MUCH of it was shot right here minutes away from where we live.
Thanks for your words of compassion too, Eric. We are lifted up by the many kindnesses of folks such as yourself. I posted a bit of an update in the Inspirational forum.
Waiting to see you in PA of the USA
!!!!!Kasey
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Well a big hi to y'all. I'm usually not in here but had to share my wildlife story. I actually hit a..................bird once! Cried for 2 days!!!! Bet nobody can top that one!
Anyhow, just had so say this to Eric....................why not come to PA??? Free lodging and real Amish. You haven't lived until you've had Lancaster County shoo-fly pie!!!!!!!
Kasey
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Hi Helen!!!! I love dogs, gardening, grandchildren, and being retired too! It sounds as if you are on the right track. I was dx'd in the fall of 2004. I was staged at llla OR b ~ depending on what doctor you ask. Here I am all this time later doing pretty good, if I do say so myself. I'll be thinking of you and sending positive energy your way. Keep us in the loop.
Kasey
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I LOVE stupid TV...........epecially with good friends!!! Just FYI, Judy ~ 1-1/2 years ago (or maybe it was 2) 'something' showed up for me too. It was too little to do a thing about so I was scheduled, as you, for a rescan in 3 months. Guess what???? Gone in the next scan. Turns out it was an 'artifact'
! Ever hear of that???? Anyhow, after some research and replies from some very smart people from here, I learned what it was. No worry. So keep that optimism going -until that next scan.Let me know what shows you're tuned into ~ we can watch together in different places. Sounds good to me!
Kasey
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Frances girl!!!!!!!!!!!!! Have I ever missed you!!! I am more than thrilled over hearing dad's great news. Give him a great big hug from ME! Although I've missed your sweet and beautiful face, I am so very happy you don't have the need to be visiting here more often than evey 3 years to deliver wonderful news. And to top that off....you've brought Mike out the woodwork to boot!!!! I'm smiling from here all the way to you, sweety!
xoxo,
Kasey
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Sorry, Ginny. Amazing - 4 friends all with LC. I agree with that strange prognosis. I don't think these folks who spout the stats know much about anything. When will there be some major breakthrough? Thinking of you often and thanks so much for your card. Means a lot. Hope lunch gets on the books before too long. Ever hear from Ellen? I thought you had her # and/or email or something. Thinking about her of late too. Haven't seen anything from Col or JB either.
Tell Barb that the docs don't know everything.
Kasey
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Our very best goes out to all of you, NIck!!! Saw the pics on FB and he is one good-looking little guy. Bet you Mom met him long before any of you did! I like that thought.
Congratulations many times over.
Kasey
- sorry, Becky. Can only imagine the emotions you felt seeing that. I remember BeckyG.
so I just am tired all the time lately. I do not, however, have the intestinal distress you are experiencing, or the worry of second guessing my decisions. I find your strength and attitude quite remarkable, you know. I've no advice to help you with decision-making. I just hope you know that there are manyof us out here who would change things for you by our sheer will if only we could. I believe you are being treated at a wonderful place and guess they know what they are doing. I do understand, however, how weary you must be being on treatment all this time. I hope when May comes it brings some peace of mind that decisions made are the right ones. Wish I could make you feel better. 
!!!!!
! Ever hear of that???? Anyhow, after some research and replies from some very smart people from here, I learned what it was. No worry. So keep that optimism going -until that next scan.
Unplanned Trip North
in MEMBER UPDATES
Posted
I'm thinking of you, Judy. It's like I said not al that long ago ~ life is hard and then it gets harder. So sorry. Hope the trip is not to difficult for you.
Kasey