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Tom Galli

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Tom Galli last won the day on April 9

Tom Galli had the most liked content!

About Tom Galli

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  • Birthday 09/23/1950

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    Lung cancer patient/survivor
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    Author of Scanziety, an ebook published on Amazon. Scanziety: A Retrospection of a Lung Cancer Survivor https://www.amazon.com/dp/B01JMTX0LU/ref=cm_sw_r_cp_api_i_g3pbDbH0T8E64

    Treatment history https://sites.google.com/a/redtoenail.org/chronicles-demo/home/tom-galli

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  1. I just read this in the online edition of Stars and Stripes, the US Armed Forces Newspaper, about a COVID vaccination booster (works with all currently used vaccines) just started human testing at Walter Reed Army Hospital. Stay the course. Tom
  2. Tom Galli

    Brain MRI

    Deb, Wonderful news. How is that new Med Onc working out? Stay the course. Tom
  3. Tom Galli

    Brain MRI

    Deb, Looking forward to a good report. Stay the course. Tom
  4. Steff, Insurance denials are a pain! I didn't know your mom's AML. I can't help but wonder why the prescribing doctor cannot conform your mom's necessary dosage into something Medicare will pay for. The only thing that sucks worse than uncooperative medical insurance is lung cancer! Stay the course. Tom
  5. huj123, I have one thought about your mom's situation. There are 4 medical disciplines who should be involved in treating diagnosed lung cancer--medial oncologist, radiation oncologist, pulmonologist and thoracic surgeon. When diagnosed at a stage less than IV, one should have a consultation from each of these disciplines before implementing a treatment plan. On reflection, I'd change "should" to must. Stay the course. Tom
  6. Ale, In my first line treatment, I had 30 fractional radiation treatments. My primary symptom was general weakness that increased as I went deeper into treatments. So much so that I could hardly walk from the car to the clinic the last week of my treatments. I also experienced the swallowing difficulty coupled with a persistent dry cough and sunburn-like pain on my neck and chest. I tried magic mouthwash and it only provided minutes of relief. It never affected the weakness, dry cough or sunburn. I was able to get minor relief during the day by using Halls citrus flavored cough drop
  7. Tom Galli


    Kris & other members, The internet is not your friend. Data shared is information that can be used for nefarious purposes. At LUNGevity, we don't ask that anyone share medical or treatment data. We allow folks to share without using a name, or exposing an email or phone number. Be careful out there. Stay the course. Tom
  8. Carol, Welcome here. I've survived 17 years of this nastiness and after reviewing your posted information, I would suggest your life priorities now be: your health first and everything else a distant second. You are in the diagnostic phase of our disease and this progresses step-by-step, sometimes inch-by-inch. Postpone insurance concern or work decisions until you have a treatment plan. Once you have a treatment plan, then work alternatives can be sorted. We'll help you with the sorting. Stay the course. Tom
  9. Saturn-Bound, Addressing your lingering questions, can chemo work quickly on tumors? Yes, chemo can work quickly; it can also workday slowly, and sometimes it doesn't work. What are the chances your mom developed targeted mutations in the future? Understand first that only about 15% of NSCLC adenocarcinoma disease displays driver mutations. There have been drugs developed to treat some of these mutations and research is on going to target more drivers. But while treated lung cancer can transform from say adenocarcinoma to squamous cell or small cell, I do not know that one's lung cancer c
  10. Kris, Here are some tips and tricks for your infusion. Recovery from the mediastinoscopy is normally quick. You might experience a sore throat for a couple of days. Stay the course. Tom
  11. Lovemydad, Lots of complexity in answering your questions. First I'm not a doctor, and the Canadian medical system is different from the US. I don't know if the doctor's personal belief is affecting further treatment and urgency, or the Canadian medical system's restrictions on practice. I've had steroids many times during my extensive cancer treatments. Why? They tamp down the body's inflammation reaction. When I had stents placed in my trachea to bolster a surgical fistula repair, the lining of my trachea became inflamed causing near constant coughing. Steroids quickly moderated
  12. Lovemydad, EGFR is good news if it points to a targeted treatment that might inhibit future metastatic spread and growth of existing tumors. But, your dad already has widely spread extensive disease, and that is of significant concern. The symptoms he demonstrates ending the course of steroid are additionally concerning. I understand your dad's doctor's reluctance to offer a prognosis. If I had your dad's presentation, I'd be pushing for pain and symptom relief so I could enjoy my remaining time with friends and family. Stay the course. Tom
  13. Lisa, Well said! Stay the course. Tom
  14. PCW, Welcome here! I was diagnosed in February 2004 and am one of those "old school survivors" among the forum participants. I was 53, in the prime of my life with a dream job, two uber-fast Mercedes in the garage, and a beautiful woman who for some strange reason loved me. Then came the mayhem of lung cancer, but I've lived through every form of treatment except immunotherapy and my bottom line is if I can live, so can you. Lexie's SSN application advice is sound. Sandy's suggestion for avoiding Dr. Google and survival statistics is wise. If you feel the need to do some research, th
  15. Gail, Welcome! Totally scared is unfortunately a pretty typical state for newly diagnosed folks with lung cancer. I was undone! Stage 2B with a lobectomy and adjuvant chemotherapy is in line with treatment in the states. We however normally get to know an oncologist in our diagnostic cycle. Lexie's advice about survival statistics is well made. Besides the 5-year data record, there is no information captured on general medical condition, co-morbidities, and often no autopsy to attribute a cause of death. So the data record is outdated and the data analyzed is not complete.
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