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Tom Galli

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Tom Galli last won the day on September 16

Tom Galli had the most liked content!

About Tom Galli

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  • Birthday 09/23/1950

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    Lung cancer patient/survivor
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    Author of Scanziety, an ebook published on Amazon. Scanziety: A Retrospection of a Lung Cancer Survivor https://www.amazon.com/dp/B01JMTX0LU/ref=cm_sw_r_cp_api_i_g3pbDbH0T8E64
    Treatment history https://sites.google.com/a/redtoenail.org/chronicles-demo/home/tom-galli

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  1. Edward, I wrote a book and self-published it on Amazon. They didn't have any minimum word limit at the time. Search on Amazon for Scanziety if you want to read it. How much did my lung cancer treatment cost? Well, first realize is had nearly 3 continuous years of treatment including 3 thoracic surgeries, a host of other related air way procedures, 28 infusions of chemotherapy, a conventional radiation treatment and a precision radiation treatment plus a 18 weeks of targeted therapy in pill form -- Tarceva. All in for income tax purposes, my total treatment cost was $1,322,418.00. My employer's insurance that required my monthly contribution of $385/month covered nearly all my cost. By way of explanation, employer provided health insurance almost always requires a cost share that comes out of your pay and additionally and co-pay cost share paid at the time of treatment. One more point, health care in the states has never been free. We either pay from our salary and pay a co-pay at time of medical service or pay higher taxes, even with Obama care. In answering your PET scan timing questions, first I need to reveal I don't know about the Australian Medical System or its policies. In the states, normally, generally usually, a PET scan is administered after a CT scan shows pretty convincing evidence of cancer. But, sometimes, that is not the case. And, even in circumstances where a doctor has a belief one has metastatic cancer, the PET scan reveals otherwise. Stay the course. Tom
  2. Welcome Kate. Reading though this string will give you lots of insight into Durvalumab treatment, side effects and remedies for side effects. This is likely the most comprehensive source of patient provided information on this drug available and we thank Robert for starting it. Here is something that new folks have found useful for surviving lung cancer treatment. Stay the course. Tom
  3. Tom Galli

    PD l

    Lin, These days almost every lung cancer patient has a lab test to determine treatment eligibility for both targeted therapy and immunotherapy. For the former, an alphabet soup's worth of letters is used to categorize the biomarkers such as: ALK, EGFR, ROS1, BRAF and NTKR. These are only present in small percentages of folks who have the lung cancer subtype of adenocarcinoma. The lab test for immunotherapy checks for two proteins: PD-1 on T cells, and PD-L1 on healthy cells and or cancer cells. Here is a quote from the LUNGevity Lung Cancer 101 site that explains the interaction of PD-1 and PD-L1: "When the PD-1 on T cells attaches to the PD-L1 on other cells, the T cells know not to attack those other cells. Cancer cells can thus evade detection by T cells, with the result that the T cells's immune response is lessened at a time when it should be active. This allows cancer cells to thrive." Immunotherapy as a treatment can work on both adenocarcinoma and squamous cell. There is a study ongoing to check its effectiveness with small cell lung cancer. Your next question might be what is a good PD-1 or PD-L1 number? The number is expressed as a percentage and the percentage varies from 1% or less to 99% and the level of expression suggest which of the immunotherapy drugs that may be effective. Stay the course. Tom
  4. Meet Charlett Emilyrose Wilson, my first grandchild. Her parents, daughter Melissa and son-in-law Bill, are overjoyed. I am ecstatic! Proud would be a vast understatement! Charlett was born 12-years, 8-months, and 13-days after my diagnosis with NSCLC. I celebrate this joyful milestone in my life for but one reason. If I can live, so can you. Stay the course.
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