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Tom Galli

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  1. Like
    Tom Galli reacted to LexieCat in The Roscopal Effect   
    LOL, I'm just envisioning the puzzled look on the oncologist's face when somebody asks about the "Roscopal effect" and the ensuing argument when they ask if they meant "abscopal." You may have to register that trademark!
  2. Like
    Tom Galli reacted to Roz in The Roscopal Effect   
    Hi LexieCat and Tom and BridgetO,
    Thank you for your responses to my blog. LexieCat-deciding on a clinical trial is a really tough process. I carefully looked into the research and then went with what my medical oncologist believed was the best option. For my second trial, I also had a second opinion from a different medical oncologist and both agreed it was worth trying I wouldn't go into a trial unless you were physically ready for it. The side effects can be quite nasty, depending on the drugs involved. Luckily, once you are off the trial, the side effects eventually go away. 
     
    Tom,
    I look forward to sharing the results of my future scans and am always hopeful for NED!!
     
    Best,

    Ro
  3. Like
    Tom Galli got a reaction from BridgetO in The Roscopal Effect   
    Roz,
    This is a remarkable story about a superb result that only happened because you had the courage and tenacity to insist on treatment. 
    Your story also points to the importance of consulting with all medical disciplines who treat lung cancer: thorasic surgeon, pulmonologist, medical oncologist and radiation oncologist. The latter is not often seen but as you’ve demonstrated has very effective treatment tools to apply. 
    I do look forward to hearing you tell us of future scans showing diminished cancer until it is gone! And, you are NED!
    Stay the course. 
    Tom
  4. Like
    Tom Galli reacted to LexieCat in The Roscopal Effect   
    Thanks for sharing this, Ro. I've just had my first experience with post-chemo/immunotherapy progression (so far mild) and am looking into clinical trials. There are at least three worth consideration at this point, I think--each with a slightly different approach or twist. Two are where I'm currently being treated and the third is where I was first diagnosed (and had my lobectomy and subsequent second diagnosis of Stage IV). I'm waiting for someone there to get back to me to discuss. 
    I've sort of skimmed over people's stories about clinical trials, focusing on what was most relevant for me at the time. Now I'm playing a bit of catch-up. Amazing how the perspective changes when something suddenly becomes deeply relevant to your life! 
    Really happy you're having success with the radiation--hope it continues!
  5. Like
    Tom Galli reacted to LouT in 5 Years!   
    Boy!!! I really missed this...happy belated anniversary...
    Lou
  6. Like
    Tom Galli reacted to LSR in Therapy Online?   
    Tom,
    Just want to let you know I much I appreciate you sharing your blog post. You're an excellent writer! Would it be okay with you if I pulled some quotes out of the blog for my article?  I will, of course, attribute them to you.
    Thanks again, and yes, stay the course (words to live by during a pandemic)
    Linda
  7. Like
    Tom Galli reacted to hope16 in Hope Is A Good Thing   
    beautiful message Tom ...so true
  8. Like
    Tom Galli reacted to Jesse L. in Uncertain Treatment Outcomes: A Baseball Model   
    After some little thought, what is written here is very good and should be pointed out more often. I suppose it's part of being just human to believe that we are in control when the fact is we are not. I will try to develop a new mindset in this regard...one more thing that is hard about this all...
  9. Like
    Tom Galli reacted to Chris S. in 10 Steps to Surviving Lung Cancer from a Survivor   
    Tom thank you so much for your insightful into surviving Lung Cancer. I love the helpful tips to mange treatment and live life. ❤️Thank you. 
  10. Like
    Tom Galli got a reaction from Susan Cornett in 5 Years!   
    Just wonderful to read about this important milestone Susan!
    Stay the course.
    Tom
  11. Sad
    Tom Galli reacted to Lisa Haines in Let's Bend the Rules for All the Right Reasons   
    I get more upset daily and more and more people are getting the vaccines and finding ways around it!  I am sick and tired of being left out here in MA and finding out there is NO SUCH as "any waiting lists" in my town, they do not even plan to have one (ever).  ARGH!   This vaccine rollout is extremely unfair and I'm so stressed about it !   ARGH!    
    Good Luck to all!   No one here in MA seems to care and you can bet I'll remember that at the next election!!
     
  12. Like
    Tom Galli reacted to BridgetO in Trekking The Green With Seventeen   
    Congrats, Tom!  Nice feet and good pedicure job! I expect to see at least another 17.
  13. Like
    Tom Galli reacted to Rower Michelle in Let's Bend the Rules for All the Right Reasons   
    Darlene, I have done the same! My State Legislators have responded with their agreement, but the Governor is not budging!  So much for government by the people for the people.  This is vaccination by paycheck, not priority patients. Thanks for spending your time (and more importantly your energy) advocating for your brothers and sisters!   Michelle 
  14. Like
    Tom Galli reacted to Darlene K in Let's Bend the Rules for All the Right Reasons   
    I have written my Governor's office, legislators, and multiple news stations. As a stage 4 lung cancer patient in active treatment, I can't even sign up to get on a waitlist in my state. This needs to change for all of us! This isn't about being patient as I keep hearing, this is about life and death for us.
  15. Like
    Tom Galli reacted to Lisa Haines in Let's Bend the Rules for All the Right Reasons   
    Thank you and THANKS to everyone who is reaching out to their state Legislators and everyone we can to do ALL we can to make Lung Cancer a TOP Priority.
       
  16. Like
    Tom Galli reacted to Antonin in anguish...   
    Sorry that you have to go through this with your mom. We lost our mother and as a stuborn lady that she was, she decided of the moment to  let go. At he hospital she waited for me to arrive and then said: " I did have a good life and at  88yrs old am now ready to die!" . Good luck and courage!
  17. Like
    Tom Galli reacted to LexieCat in Non VA Specialist Care for Veterans   
    Hi, and welcome.
    You might have better luck connecting with others here if you post on the Veteran's forum, here: https://forums.lungevity.org/forum/64-us-veterans/ 
     
  18. Like
    Tom Galli reacted to Claudia in A Day of Thanks   
    Awesome post Tom. Thank you for sharing. 
    Claudia
  19. Like
    Tom Galli reacted to LouT in A Day of Thanks   
    So well said Tom.  You are an inspiration for so many of us.  Happy Thanksgiving.
    Lou
  20. Like
    Tom Galli got a reaction from Lillian Helms in Social Security Disability by Disapproval   
    Thankfully, Stage IV approvals are swift...
  21. Like
    Tom Galli got a reaction from LouT in Social Security Disability by Disapproval   
    Thankfully, Stage IV approvals are swift...
  22. Like
    Tom Galli got a reaction from LexieCat in Social Security Disability by Disapproval   
    Thankfully, Stage IV approvals are swift...
  23. Like
    Tom Galli reacted to LexieCat in Social Security Disability by Disapproval   
    Hi, sorry, just seeing this. What I did was to very carefully answer EVERY question about the tests and treatments I've had since I was diagnosed in July (and included my surgery from 2017). I got a call from a caseworker a few days later who wanted copies of my paystubs. I asked if I should actually mail the records I had (I'd printed them all out, of course) and he said no need--they would get everything they needed. I think the specific answers I provided helped speed the process--they knew what they were looking for. Like I said, it wound up being 10-14 days from first application to approval, for me.
     
  24. Like
    Tom Galli reacted to LexieCat in Social Security Disability by Disapproval   
    I have Stage IV LC and was approved about 10 days after I applied. It helps, I think, if you have all your info ready about all your tests and treatments. I, too, have the 5-month waiting period before I get my check (it's actually 6 months because checks are for the previous month's benefits). The good news is that the time runs from when I was diagnosed, rather than when I started treatment and stopped working.
    For non-Stage IV--patients who may actually feel worse symptoms than someone like me--you do have to go through the drill of showing you are too disabled to work. From what I understand, it is highly beneficial to get a disability attorney involved early on--you don't pay anything till you win your case and the lawyer is paid a percentage of any "back pay" benefits going back to when you became disabled.
    I agree with Lisa--the SS website is great, and there are also several other good sources of info that promote attorney services (but you don't need to register to hook up with a lawyer to read the info on the site). Here's one that I found helpful: https://www.disabilitybenefitscenter.org. It's not affiliated with SS, and it does promote attorney services, but the info looked legit.
  25. Like
    Tom Galli reacted to Lisa Haines in Social Security Disability by Disapproval   
    There can be a lot of confusion regarding the two programs offered by Social Security for those who become disabled.
    SSDI (Social Security Disability Insurance) is for those who worked and paid into the system and then become disabled and meet the SS's criteria to be considered disabled.  Generally, you need to be considered unable to work for a least one year.   IN my case my Disability date was the last day I worked.  I was approved in about 2 months, but needed to wait for the sixth month to start receiving my monthly benefit.   My understanding is that Stage IV Lung Cancer is approved quickly, but again, you'll still have to meet your waiting period before benefits start.    
     SSI  (Social Security Income) is also a program for the disabled and provides additional funds for those who have very limited assets and income.  In most cases if you are married and have a working spouse, you would be denied, because they look at "family income".   The asset level is very low, under $3,000 and that is also based on family assets.    It's basically for those at poverty level.   If however you are eligible there is not waiting period, so you'll start benefits much sooner.   In many States this also makes the recipients eligible for Medicaid (low income insurance programs that each State offers).     Check the rules for your State to see what you may be eligible for.  
    I always share this link https://www.ssa.gov/benefits/disability/ to the SS website, which has many more details.  You can apply online and/or call your local SS office for more specifics, especially now with Covid, as I would assume many of the offices may not be staffed.   
    Good Luck!
     
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