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Cheryncp123

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Cheryncp123 last won the day on April 14 2018

Cheryncp123 had the most liked content!

About Cheryncp123

  • Rank
    Over 100 Posts!
  • Birthday 12/02/1951

Profile Information

  • City
    Mobile
  • US State (if applicable)
    ALABAMA
  • Country
    USA
  • Gender
    Female
  • Status
    Lung cancer patient/survivor
  • Interests
    Spending time with family and friends, my church, volunteer work, reading, watching movies, playing on computer, swimming, line dancing and travel among many other interest.

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  1. Check out alkpositive.org on Facebook. I think you will find all the information you need on this topic there.
  2. Pneumonitis is unfortunately one of the possible side effects of Alecensa. I have been taking the drug for 16 months now and have not had this problem however if you check out the Facebook group Alkpositive.org I am certain you will find others who have and will be glad to answer any questions for you.
  3. I have been on Alecensa for 16 months now with no progression and all side effects that I experienced in the beginning are now gone. Great drug.
  4. I have been taking Alecensa for 16 months now with no progression and all side effects that I had in the beginning are gone.
  5. I was diagnosed with ALK+ lung cancer in 2015 at which time I was started on Xalkori (crizotinib) which worked amazingly well for 29 months before I had progression and was switched to Alecensa (alectinib). I have been taking it for 16 months now and all the side effects that I had in the beginning (muscle pain, diarrhea, sun sensitivity and some edema) have all gone. I try to eat a well balanced diet and drink lots of water. I stay as active as possible and that is about it. I am still doing great on the Alecensa at this point. I am a member of the Facebook group ALKpositive.org. If you prefe
  6. Tomm, I hate to hear this, you were the first person that responded to the first post I ever made online after my diagnosis and the information and support you gave me helped more than you can know. Holding you in prayer.
  7. Tomm, when you find out whether or not you have any gene mutations let us know and we will be able to better guide you to a group specific to your mutation.
  8. I agree with Bridget until you get your scans and the doctor goes over them with you there is not a lot of help we can give you and information online is not always up to date. I hope you can get your mind off of it and enjoy your Thanksgiving.
  9. Honey, slow down take a deep breath. You are going to get a lot of differing opinions from all these doctors and you are going to be more confused than ever. Without a biopsy there is no way to know if you even have cancer. If the tumor is too small to biopsy I am not sure why they want to do a lobectomy, that seems a little extreme to me. Once you get your scans you will first of all need to decide what doctor you are going to put your trust in and don't keep second guessing your decisions, that will just stress you out even more and you certainly don't need anymore stress. Has anyone mention
  10. Your symptoms sound very similar to mine. I think for the location of your tumors (in nearly the same area as my own) the symptoms you described are common.
  11. If you were diagnosed at stage 4, surgery is not usually an option, as far as radiation, unless the tumor is too close to a vital organ (heart) to radiate without causing more damage, then I don't know why that would not be an option. That is a good question for your doctor.
  12. Bethany, you will find that each of us has a different answer to your question, how long before you started treatment. For me it was 8 weeks from the time of diagnosis before I started treatment. I am on a targeted therapy drug because I have a specific gene mutation. Again everyone will have different experiences with their treatment but for me I have had very few side effects and have responded exceptionally well with my treatment. I pray for the same for your husband.
  13. Local Lung Cancer Patient Joins International Group to Fund Research to Save Their Own Lives (Place – e.g. Atlanta) ALK-positive lung cancer patient one of 1,000+-strong group announcing first 3 research studies FOR IMMEDIATE RELEASE Media Contact: LeslieTrahan [email protected] (318)355-6280 WASHINGTON, DC (June 4, 2018) — Andy Trahan is a lung cancer patient who was diagnosed February 14, 2013 after months of intense leg pain and ultimately blood clots in both legs and bilateral pulmonary embolisms. Andy’s tumor was tested and found to
  14. Local Lung Cancer Patient Joins International Group to Fund Research to Save Their Own Lives (Place – e.g. Atlanta) ALK-positive lung cancer patient one of 1,000+-strong group announcing first 3 research studies FOR IMMEDIATE RELEASE Media Contact: LeslieTrahan [email protected] (318)355-6280 WASHINGTON, DC (June 4, 2018) — Andy Trahan is a lung cancer patient who was diagnosed February 14, 2013 after months of intense leg pain and ultimately blood clots in both legs and bilateral pulmonary embolisms. Andy’s tumor was tested and found to
  15. I have never participated in a trial of any kind however crizotinib was my first line of treatment after being diagnosed with Alk positive adenocarcinoma and it worked beautifully with few side effects for 29 months at which time my scans showed some progression and I was switched to alectinib which has worked just as well with even fewer side effects. We are blessed that there are so many options for us these days.
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