Cheryncp123
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Posts posted by Cheryncp123
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8 hours ago, Mally said:
When i was first diagnosed they said it was at a curable stage and then the results after surgery showed clear borders but some lymph nodes showed positive so then chemo followed so im thinking because i was clear in my ct scans from neck to pelvis that there was no new growths from the lymph nodes but like everyone its an anxious time till next scan
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I totally understand how you feel. Once you get a cancer diagnosis of any kind it changes you. I am so happy to know you are doing so well and caught it early which is so important for our survival.
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Mally, my last scans we're 6 months apart however the most recent scan showed a new area of concern so I am back to every 3 months for now. I had been NED for 26 months on a targeted therapy drug, that is the reason my doc extended the time between scans. I think maybe 6 months might have been a little too far apart. I am only speaking from my own experience and I know insurance dictates the number and frequency of scans allowed.
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I would like to hear how others deal with the ups and downs of this disease. Just about the time I have shoved it out of my mind and gotten on with the business of living a scan comes due and the scanxiety that comes with that then something shows up on the scan and the wait to see the doctor starts. How do you deal with these highs and lows?
- Michele and Julie in SoCal
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13 hours ago, JanWilson said:
Wondering if folks here can help with advice on drug copay assistance for Xalkori. Even with insurance it would be costing my mother roughly $4,500/month. We need some help -- I don't know many people who can afford that so easily. I see that there are many drug assistance programs out there but I don't know how they help people or if they help people who do have insurance and are not completely destitute (she has small investments, but doesn't own a home or anything substantial she can borrow against). Is she just supposed to put this on credit cards? How do others do it. Any advice deeply appreciated!
Check with her oncologist they should be able to get her signed up
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Brenda, I am sorry to hear that your cousin has been diagnosed with lung cancer, you will be able to support each other and understand. I believe that the stage of your cancer does not change. Staging only means the cancer has metastasized to other areas. You can be in complete remission but your initial staging does not change at least that is what I have been told. I hope that is helpful.
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Stay strong, sweet girl, you've got this!
- Mommy's girl, Mally and Susan Cornett
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Brenda, you will have good days and bad days, highs and lows. Just stay in the moment don't let your thoughts run away with you. When you feel good enjoy every minute and when you don't take a time out to baby yourself. When you feel up to it keep busy that will keep your mind from going to those dark places. I hope this day is a good one?
- Susan Cornett, Tom Galli and LaurenH
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Cancer is never a good thing but you caught it in it's earliest stages when it is easier to treat. The VATs surgery is what I had done. My surgeon was excellent I was out of the hospital in Three days (would have been two but my boss bottomed out) and taking nothing but Tylenol for pain after the second day. When I got home I slept in my recliner a couple of nights and didn't wear a bra for about a week. If you have to cough hold a pillow tight to your chest it will make it less painful. I won't lie I was sore for about a week but nothing unbearable. I know we all respond differently but I just know you are going to Ace this and be back up and running in no time. I am lifting you in prayer. Everything is going to be alright.
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Monica, I totally understand your fear. I too was diagnosed with stage 4 inoperable metastatic lung cancer and felt like my life was over. I was terrified of being on chemo and all the terrible side effects that I had heard about. Fortunately for me I tested positive for a gene mutation (ALK) and was started on an oral targeted therapy drug which I have handled very well for over 19 months now with no further progression of my disease. I still work, travel, spend time with family and friends and do all of the things I did before my diagnosis and there are even days now when I forget I have cancer. While cancer is still a very serious illness it is not the automatic death sentence that is was in the past. It is ok to cry and be afraid you would not be human if you didn't but don't allow yourself to stop living. Try to keep busy, join a support group, get out of the house and get a little fresh air and exercise even if it is just a walk in your yard, eat healthy and drink lots of water. These are things you do have control over. I am holding you in prayer, you are going to be alright.
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I am shocked to hear that Blue Cross denied coverage of his medication. I have had no problem with them paying for mine at this point but with it costing them over $14,000.00 a month I am sure it won't be long before that ends. I am looking at part F & G but will need a prescription plan also.
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Thank you so much for the information. I am definitely checking into these suggestions.
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I do not know if you are a person of faith or not but pray can never hurt.
May the Lord bless you and keep you.
May the Lord make his face to shine upon you,
and be gracious to you.
May the Lord lift up his countenance upon you,
and give you peace.
Numbers 6:24-26 -
Your prognosis sounds pretty good to me. I was diagnosed with stage 4 adenocarcinoma of the lung which only means the cancer had spread from its original location. I tested positive for a gene mutation and have been on an oral targeted therapy drug for 17 months now with no growth or spread of the disease. If you have questions the best person to ask would be your doctor/surgeon. Good luck to you.
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I will be turning 65 in December and am trying to make a decision on which Medicare supplement/alternative to go with. I am stage 4 adenocarcinoma ALK positive and am taking Xalkori. Any feedback on what plans you are on and how well they cover this very expensive drug would be appreciated. I live in Alabama.
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I have not had experience with them however the cancer center where I am treated is affiliated with MD Anderson and I have gotten the most up to date treatment at this point with no problems and holding stable 15 months since diagnosis. Best of luck to you.
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I can't say I have had that problem, Marc. I know that you are not suppose to break them open, I drink lots of water before and after taking my pill. Hopefully someone else on here or your doc may have some suggestions. Good luck
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One thing I would like to add to the crizotinib side effects is that it lowered my pulse rate drastically, I was on a blood pressure med at the time and the two drugs didn't play well together. My oncologist took me off the blood pressure med and I have had no further problems with my BP or my pulse rate since. Just something to be aware of.
Just told I had a 1 cm spot on my lung
in NSCLC GROUP
Posted
Pearl, of course there is always a chance but until you see your doctor there is no way anyone can diagnosis it for you. Prayers going up that it is not a malignancy.