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Mouse

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Everything posted by Mouse

  1. Mouse

    I am Ok!!

    Hi! Iam OK here in Balto.County. Have been in the hospital, beause of effects of Head Radiation. Also, some strange reaction to one of the meds I was given. Can't even use the computer! Brain doesn'work! Please no more e-mails- can't kep up with them! My good loyal LC friends! I found the board; took me an hour, until I remembered! Silly? No, frightening! More another time! Will get results of new MRI early nexr week-will let you knoe if I can find thes site again! I think I lost me! Help! Love , Marge
  2. Last Thursday, May 12, I finished my WBR, 14 days of it. Got a paper about what to do and expect. All kinds of warnings! One line said to "expect fatigue." No kidding! I feel like a rag doll; no energy at all! If I sit down to rest I fall asleep! Talking to two friends, it is not unusual! Will take 2-3 more weeks to feel more alive! I hope! I do feel it is wonderful that they can do this to kill the brain mets! God bless our Doctors! Love, Marge
  3. Ten days down and four more days of WBR! No problems, yet. My scalp is a little sore, like sunburn. Decadron keeps me awake some nights. Dr. gave me some Ambien and I have used it. How do you stop this stuff? Give up sleeping? Have had a 3rd opinion and This Onco has different idea about another chemo-#4! So, it is CAV vs. Gemsar. Any one knows anything, I am listening! You have all been a big help! So nice everyone understands! LOve, Marge
  4. Hi, Jen! I am two days ahead of you! I started WBR on Monday. The first day is a pain. Much medical history, a movie to watch and they must set the radiation machine to hit the spots they want to hit. Mine hold my head in place with a piece of tape and have a shield for my eyes, on the arm of the machine. My Radiation Doc. Put me on Decadron, 2mgs. twice a day, because I told him the the stuff makes me "nuttsy." He also gave me a Rx for Ambien, so I can sleep. I will have radiation 5 days a week for three weeks. So far, no problems! I am tired from worry! Otherwise OK! Call me! Love, Marge PS. We will go forward together! Never give up!
  5. Hi! I got my bad news on Friday; I had an MRI, because of some mild headaches I had been having. I did not think I had brain mets! When I got home, there was a message from my Onco to call him. I do have brain mets and started radiation on Monday. My Doc was quick to make the arrangements! Monday's appointment took some time, because they had to make the settings on the machine. Today was fast; I was early and had to wait my turn and then, it took about 10 minutes! Didn't hurt; no burn, don't even have to get undressed. Jen, wear something warm; it's cold in there!Will answer the rest in your post! Love, Marge
  6. Jen, Yes! I saw the show! Bob was out and I was holding the remote for a change. I turned it on, not expecting to hear about small cell LC! I am glad it is finally on the TV and other news. The show was very sad, but the husband was finally "bonding" with his newborn son, at the end. BTW, has anyone heard if Peter Jennings has small cell, for sure? He is being rushed into chemo as if it is. Maybe a celebrity can help us to get some research going! Chins up and keep fighting! Love, Marge
  7. Betty! Oh, my! I am so sad to hear this! You have been a source of inspiration for me since I joined! You have always been upbeat and even now, are willing to accept the future, as it is! I will join the other members here who are praying for a miracle. Love, Marge
  8. Uncle Doug! Please stop waiting for nausea! It may never come! I had 6 rounds of three days of the same drugs, (every 21 days),you are on and never got sick. I felt slight nauseaous once; a pill took care of that! Meds used with my chemo stop the nausea! Isn't that great! Love, Marge
  9. Jen! Thanks for posting this! I bought a Radon Detecting Kit a week or so ago and haven't used it, yet. I suspect radon, because of the large numbers of cancer victims in the neighborhood. We have people with breast cancer, bladder cancer, ovarian cancer and pancreatic cancer. This is what I remember, without asking family members. These people all were within a 3 block area. One of the girls who grew up here lost a child to Luekemia! Because it was a lovely day, Husband aired out the basement! Will need to wait! Will start the test, soon! We have City Water, Addie, but I have three adult children living on well water. I must tell them! Half of my life has been spent in this basement for 48+ years! Washing, ironing, sewing, crafting and now, my computer is down here! And guess what else I did down here? Yes! I smoked! Wonderful! Never even heard of Radon in the 50's when we bought the house! Too late for me, but the children???? Love, Marge
  10. Deruo! So sorry for the loss of your Mother! She was blessed to have such a caring child! I am sure she knew how much she was loved and will be watching over you for a long time! Love, Marge
  11. Mouse

    He's gone...

    Summer, so sorry for the loss of your partner! Life gets very hard at times! I will remember both of you in my prayers! Now, take care of yourself! Love, Marge
  12. Happy Birthday! Jen! It makes me happy to know you have made almost a year! That gives me hope! I am sure it makes others feel better, too. This is such nasty stuff! You have done well and are one strong lady! I include you and all here in my prayers! Like to hear good news. Next I hope your ovaries just quiet down and make eveeryone wonder what that was all about! Love, Marge
  13. Di! So glad you are feeling better! Those gallstones can really make you feel terrible! Was with my Mother-in-Law when she had an attack; was miserable! I felt so sorry for her! Glad doctor was able to help you to feel better so quickly! Hope the rest of the healing goes quickly, too. Enjoy the spring! Love, Marge
  14. Mouse

    Pet Scan

    Dennis! Please tell your wife that the PET Scan is not bad! The tube is short, so some part of your body is always sticking out. The tube is not nearly as small and close as the tube for an MRI. You can almost always see daylight at the end of the tube and hear the Technican. I've had both and much prefer the PET Scan. Good luck to her! Marge
  15. Thanks for all the kind, loving support! This is one bunch of great people! All have the same kind of difficult problem and still have time to give a good word for someone else! Love you all! Marge
  16. Mouse

    Shrinkage!

    Betty! What wonderful news! Shrinkage! What a wonderful word! I am so happy for you! But, I won't stop praying! You are one strong lady! Love, Marge
  17. Hi! I finished my six rounds of CPT 11 and had my Scans. Saw my Onco on Monday and got the results. Expected it would not be good as the CEA was rising during treatment. The drug did not work at all for me and my cancer was growing and spreading during treatment! Most of the tumors that were wiped out by 1st line are back and a few new ones. I was more than upset! Today, I started Taxotere, hoping this will hold it, at least stable, for awhile. They give Benedryl with this and I am feeling like a drunk, tonight! Please do not take as against CPT 11; this is ME not everone! We are all different! All prayers are gratefully accepted! Thanks to all my friends on this loving site! Marge
  18. Jen! This information is very interesting and helpful! I had a vacation of 5 weeks between my 1st line chemo and the 2nd chemo. About 2 weeks after I finished the first chemo, I began to have severe pain in my back and a return of sciatica. I had this before my diagnosis and was taking Vioxx, which was then recalled. The pain continued until I began the chemo with CPT 11 and was gone the entire time I was on this chemo. Right now, I have been finished with chemo for 10 days and the back and leg pain is recurring! I have no doubt that chemo is responsible, but do not know if it is the chemo drugs or if Decadron stops the pain! I will discuss this with my Onco! Marge
  19. Betty! Sorry to hear about the severe pain! Will remember you in my prayers! Hope things get better real fast! Marge
  20. Mouse

    Bad day

    Mike! I am not a drinker, but this stuff is enough to make a teetotaler drink! I was diagnosed around 8-1-04 and we have had the same treatment. The first chemo did a great job. My cancer was stable from Scan in October until end of December. Started CPT 11 (Camptosar) in January and will have Scan tomorrow. Hard to wait! The Camprosar caused no hair loss, no nausea; I was a bit tired from low red cell count. Got one shot of Aranesp. Good luck with the new treatment! Will pray it works! Marge
  21. Welcome, Mark! To the place nobody wants to be! We were diagnosed about the same time. My cancer has been "stable" since December. I am having a Scan in two weeks and am hoping and praying it will still be stable. Yes, I am older, but I still want to live some more! My SCLC is extensive, so my chances are less. God will get me through! Make prayer a part of your treatment! It sure helps! Love, Marge
  22. Mouse

    Halfway home

    Betty! So sorry you are having a bad time! Will send prayers to make it easier. Thinking of you! Hope you feel better soon! Love, Marge
  23. Addie! I am late, too! Just want you to know I am thinking of you and remembering you in my prayers! You will make it, again! Love, Marge
  24. Nancy! Sorry you were so sick after the first chemo! Ask your Doctor for some nausea pills; they work like a charm. I have had 22 days of chemo and felt nauseaous twice. Both times it was from eating something I shouldn't have. Stick to bland, non-greasy food. Soup is great! Pass by Mcdonalds on the way home! Hang in there! You will make it! Let us know what chemo drugs you are taking! Prayers coming for you! LOve, Marge
  25. Di! Being treated like that by a sister feels like a real betrayal! Been there; done that! It hurts and the sister has no idea how deeply it does! About the Health Insurance: The Insurance Co. is required by law to let you remain insured by them for a period of time after you are no longer employed by one of their members. You will have to pay for it and it is not cheap! It is still better than no insurance with our common problem! There is a name for this and my chemo brain will not let me remember! LOL! Call the Company and ask. It has nothing to do with your sister or her money. Love, Marge
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