Hi Sharon,
Thanks for writing.
My friend has just been diagnosed last week with the ALK gene. I am not sure at what stage she is at (was all a bit much to take in on the phone when she first told me on Friday). She is having chemotherapy. I have read a lot about people with ALK on Xalkori, when the time is right I will mention it to her - don't want her to think that chemo isn't the best route....she is in a fantastic hospital in Switzerland which is renowned for amazing healthcare, so I know they will have put her on the best type of treatment for her.
Maybe I will put you guys in touch as I am sure it'll help her to speak to someone with the same diagnosis as it is so rare.
I hope you are ok and feeling a bit better and positive. My thoughts are with you, as with everyone else on this forum.