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Everything posted by bjacksontex

  1. BTW Sweetie, I got the same diagnosis. Squamous NSCLC stage 1a. You CAN be cured from that!!!
  2. Michelle, please feel free to call me. I had a right lower lobectomy. It was by the robotic Da Vinci. I have been blessed all the way around. A year later & now my 2nd clean scan. But my phone number is 817-874-9033. I would love to talk with you. We are all different. I'm Barb in Arlington, Tx.
  3. I knew I was high risk. Insurance pays 100% of a low dose CT SCAN to find any lung cancer. We all must be proactive. I mean that! I made an appt with my Primary care doc. As soon as she walked in the room, I told her to write the order. I had a "feeling." A month later they were cutting out, via the Da Vinci, my stage 1a right lower lobe cancer. I don't believe, nor did my surgeon, in a wedge resection. Get it out of me!!! Now been over a year with clean scans. I'm told I'm cured. My node was 1.5 cm. They took the right lower lobe.
  4. I'm so happy for you Sherie. Good to hear from you. Last Wednesday was my one year cancer surgery anniversary. Also got my CT scan. Haven't gotten the results. Hopefully today & hopefully still clear. Wow! You didn't lose your hair? That's awesome. Please stay in touch. There is a Walk on Nov. 12th I think that's here in Arlington for lung cancer fund raiser. I'm going. Hope you can too! Barb
  5. Chime, stage 2? Wow! I was stage 1a. I think the prognosis is based on that hospital's standard of care. Find someplace else cause this doesn't sound right. Sent from my iPad using Tapatalk
  6. Where's the "follow" button? Sent from my iPad using Tapatalk
  7. I can't imagine someone not doing this. Unfortunately, this is my 6 months CT and etc. check up. I wish Katie, I could go. Some very special people ready to be part of this Hope Summit. I just have Tom Galli's scanxiety. Can't pronounce it, but know it. My post surgical cough has gotten so bad I need a broncho dialator. My surgeon's staff ignored my issue. If I find out it wasn't surgical ready but a pulminologist should have seen me.... I'll start a new movement. Sent from my iPad using Tapatalk
  8. Hi. My first 6 month check has been scheduled. I was told it would be a CT without contrast. Is this typical? The first one I had that caught the cancer was with contrast. Just want to make sure this is right. Thanks. Barb
  9. Paparon, what great news you are at just Stage 2. I was blessed also. I had a right lower lobectomy and the pathology report came back Stage 1a. But only one lymph node to be removed? I think maybe you heard wrong. My thoracic surgeon wanted to make sure it hadn't spread, so he removed 37 lymph nodes. All came back great. You will do great I am sure. What kind is it? Non small cell? Squamous or adenocarcinoma? Whatever it is, this is a great bunch of warriors here ready to help & fight with you. Good luck with whatever kind of surgery there is. Barb Sent from my iPad using Tapatalk
  10. Everyone is different. It was about 6 weeks for me to really feel total pain free. Most of the pain when I tried to sleep on the side where the surgery was. I saw your husband got cellulitis. Is anyone treating him for that? Hopefully he is on antibiotics. What other complications does he have? How long since his surgery? Barb
  11. Hi Ari. Can you give us more details? Are the complications from the surgery or from follow-on treatment? What stage is he? I'm glad you're here. Lots of good folks here who like to help where possible. Barb
  12. Thanks Katie B, CindyA, Nicole for a great Summit. It was my first and I met a lot of great folks! Tom Galli, it was also a pleasure to meet you and hear your survivor story. To anyone who gets a chance for either the regional or national Summit, go! It was a full day with excellent speakers. Food was really good too! Barb Sent from my iPad using Tapatalk
  13. Meloni, I hope it goes well today. Let us know how you're doing & maybe tape the conversation with your phone. A lot of info at once-something can get missed. Sent from my iPad using Tapatalk
  14. Hugs back to you Rhonda! Sent from my iPad using Tapatalk
  15. Nothing wrong being passionate about these things. Perhaps those folks need to see your passion and your feelings. Hold up a mirror to their faces. Too many folks can get behind pink ribbons, but not behind "this" kind of cancer. Wrong attitude if anyone asks me. A lung cancer survivor of 4 whole months and counting. Barb Sent from my iPad using Tapatalk
  16. Please do get some rest. I remember most of my pain was where the chest tubes were. Ugh! I totally understand. I don't think I would have been able to do a whole day just 2 weeks after surgery either. You take care of Rhonda! Barb Sent from my iPad using Tapatalk
  17. Hope you get it done Ralph. Please, for those who need you around & love you. Barb Sent from my iPad using Tapatalk
  18. One other thing....always take your 3 ring binder with all your appointments and pages for questions...and map of facility. And blank pages to journal. To cuss & scream! Sent from my iPad using Tapatalk
  19. Meloni LOL! Like we have lung cancer and need to worry about being social. Well, first note that not a single surgeon, nor most of his staff really care about is YOU. Honestly. It's your nodules. It's your cancer. The surgeons do not care a whit. Other doctors are very different. Barb J Sent from my iPad using Tapatalk
  20. Rhonda... Will you be able to visit the Lungevity thing? It says Embassy Suites DFW, but it's really not at the airport. In fact, if anyone wants to stay with me and save on hotel rates, you are welcome. I have 2 other bedrooms and lots of couches. Let me know. This is not in airport proper. It is on 183. Sent from my iPad using Tapatalk
  21. Rhonda! You're home and cancer free. It sounds like you did excellent. My surgeon also did the mediastinoscopy (or however the heck it's spelled) & bronchoscopy first. He later told me they removed 37 lymph nodes to check. And yes, if the nodes were involved, they would stop there. Boy, I was scared I'd wake up still with cancer. Sounds like you are slowly getting back to normal. Still praying for you and a safe, complete recovery. Barb Sent from my iPad using Tapatalk
  22. I would love to volunteer. I have plenty of FB friends, but I'm not on Twitter or other social media. Why do I have to have 2 social mediums? I want to volunteer because I am the poster child for early intervention. Knowing I was high risk, I requested a CT. It showed stage 1a squamous lung cancer. I need to get the word out. And insurance now should pay 100% for the CT.
  23. Kerry, if you want to hear hope, Tom is one of the best for Stage 4. And others too will hopefully share their stories. They found mine at stage 1a, so I'm different. But you found a great place. Sent from my iPad using Tapatalk
  24. I had a right lower lobectomy about 4 months ago. Get into your surgeon immediately. That's not normal. Is it hot to touch? I'm no doctor, but you really need to contact his office Sent from my iPad using Tapatalk
  25. I'm left- handed also Rhonda. I text with my right fingers. My son is f-f-f-orty years old. Boy, it hurt to say that. Trust me, he doesn't act forty. Ha! Sounds like you both have had some losses with this awful thing. My son also lost his Nana to this same awful crap. My mother quit 10 years before, but she passed away 8 years ago this week from NSCLC. Let's make sure our kids don't have to add us to the mix. If you can't type, you can call. My cell is 817-874-9033. Sent from my iPad using Tapatalk
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