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Mlgates

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    Mlgates reacted to Tom Galli in 79 Year Old Mother with NSCLC   
    Wonderful news.  Tarceva, I've read, works remarkably well when the adenocarcinoma type of NSCLC displays an EGFR mutation.  I had Tarceva in the 2005 timeframe before the days of genetic testing for tumor mutations.  In that time, doctors knew Tarceva worked in a small percentage of NSCLC patients but didn't know why it worked.  Indeed, subsequent studies revealed Tarceva does not work for Squamous cell carcinoma, my diagnosis.
     
    I experienced quite a bit of lower GI problems along with very bad face, head and neck acne.  So it appears your mother is having a positive response from Tarceva with minimal side effects.  I hope this continues.
     
    Stay the course.
     
    Tom 
  2. Like
    Mlgates reacted to CindyA in Dad initial diagnosis poor   
    Hi Marie! I am so glad to read the good news. I truly hope the nurse navigator will steer you in the right direction. Please let us know if you have any questions. Also if your dad would like to talk to a mentor please let me know. We can connect him to someone who has experience with a similar situation. It's called the LifeLine Support Program: http://www.LUNGevity.org/LifeLine
     
    I look forward to you next update.
     
    Cindy
  3. Like
    Mlgates got a reaction from CindyA in Dad initial diagnosis poor   
    Wow! In just 24 hours so much has happened. Dad has a consultation on Monday with Radiation to begin on Monday the 30th. My step sister already spoke to our new nurse navigator. I am breathing a sigh of relief knowing we truly aren't taking a step back moving to a new hospital and new doctors.
    Marie
  4. Like
    Mlgates reacted to Christine808 in Dad initial diagnosis poor   
    Thank you all for the insightful and compassionate feed back.  I am moving this conversation over to the a more appropriate forum.  
    Tom, Thank you for the great advice and encouragement.
    Marie, welcome I love having your here.  Our family is the foundation to helping each other through this incredible journey.
     
    Mahlao and Aloha~
     
    Chrisitne
  5. Like
    Mlgates got a reaction from Tom Galli in Dad initial diagnosis poor   
    Wow! In just 24 hours so much has happened. Dad has a consultation on Monday with Radiation to begin on Monday the 30th. My step sister already spoke to our new nurse navigator. I am breathing a sigh of relief knowing we truly aren't taking a step back moving to a new hospital and new doctors.
    Marie
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