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mama4zach

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  1. Hello everyone, Have a question that my dr can not seem to understand. Up until my lc spread to the bones did I have such a problem. But why can't she just take my word for it. Morphine is very good pain medicine but, it makes me so sick that I can't eat and I can afford to lose anymore weight. She says that it is the best med for me and will not even think about trying anything else. I asked for the duragesic pain patch and she said no that there are too many of those failing and releasing meds at too fast a rate and killing people. If any of you have any advice, please let me know because I need something for pain but I can not lay around sick at my stomach either. Thanks so much, Nancy
  2. I do not know how each of you feel, but I do not think it is good to tell someone they only have months to live. No one knows that but God and I know what it has done to me mentally. I think it would be best to tell a person that they have done all they can do but don't say 2 months or 3 months. It is enough to drive you crazy. How can you even think positive if you are told that. Please let me know how you feel. Also, I will be starting a clinical trial on Tuesday at Johns Hopkins. Please remember me in your prayers. Thanks, Nancy
  3. thanks for info thus far but my dr has told me no radiation on mets. I had 30 treatments of radiation with my lc and 15 pci treatments so i don't know why no radiation. They say bone mets are so painful. Lord help me. God Bless Nancy
  4. Hi to everyone, I go back to my sclc onc tomo to discuss my bone mets and what can be done. I have one at the base of skull in neck, one in shoulder, one in pelvis, one in hip, one on tail bone, one in the upper thigh and one on my butt. When I first spoke with her she made me feel like not much could be done. She said i had 2 options, nothing at all or chemo with will consist on irinotecan and carboplatin. It will be given once a week. She also mentioned a trial. I really don't know much about mets to bones except it hurts bad. But I thought they could be treated. I was dx with sclc limited in January of 2005. I received cisplatin and etoposide and radiation until the end of April. I also had PCI treatments. I go to Johns Hopkins and would think they would know what could or could not be done. I understood her to say even with chemo I only had about a year. I know no one knows how long anyone has to live except our Lord up above, but it is really scarey when you have a 3 year old to think about. If anyone has had this treatment would you please let me know how it did both with the cancer and physically. But like I said before I was in shock when I talked to her and maybe I misunderstood. Please help me if you can. Thanks, Nancy
  5. Hi guys, Please if anyone knows where i can find any information on sclc mets to bones, please let me know. I have heard and read some things that scare me to death. The dr says only months left without a new trial treatment. How could it work so fast to kill you?????? I have always said I wanna go to heaven but not yet. I have a 3yr old to raise. any info will be appreciated Thanks, Nancy
  6. Hi to all of you, I thought I would let you know I got my results today and they were not good. I have multiple bone mets from neck, shoulder, hip, pelvis to the thigh. I did not get to talk to dr and won't get to till monday but I was wondering is there anything they can do for the bone mets??? Since I had the sclc, I did not think they could do surgery. Is there any chemo to help??? If anyone knows please post it. I am almost crazy. Thanks, Nancy
  7. Hello to all, I have not posted here in awhile but I have kepted up with everyone. I would log on and read every other day and some of the ones I had orginally met and talked with had gone to be with the Lord. I don't know why but I felt like why should I bother anyone with my complaining when everyone seemed to be grieving. It has bothered me very much to have lost so many so close together. I am so sorry for each loss. I was actually dx with sclc 1/31/05 and had chemo and radiation and pci. My last treatment was 6/30/05. But I was actually just starting to feel a little better. I had my 3 month scan yesterday and my mediastinal lymph was enlarged. I am scheduled for a pet scan Thursday. This lymph node was involved from the beginning. So I was dx with sclc limited. I am 51 years old and have been a smoker forat least 35 years. I have fought for a year and as you all know it is a tuff fight. I went from a size 12 to a size 4. I think the pci treatment was harder on me than chemo. Like I said my last treatment was 6/30/05 and the next 6 months I had no appetite and just all kinds of aches and pains. I have my appetite back now Praise the Lord but am still not gaining any wt. I am scared and I wanted to see if anyone else had this happen and if so what treatment was used. I have a 3 year old if you can remember, he is my grandson. He lost his mother, my daughter when he was 4 months old. I am really depressed and just can't seem to find any peace about any of this. I know I have to die like everyone else but for Zachary, I feel like I am losing it. Sorry this has been so long but maybe someone might be able to say something to help me. Thank you for listening. Nancy
  8. Cindy, thoughts and prayers will be going up for you. I believe in the power of prayer. I know how you feel because i have been there. May God be with you tomorrow. Thoughts and Prayers Nancy
  9. Prayers for you going thru this awful diease of cancer and then the awful diease of depression. I have been there. It is bad but God can really help you. You just have to trust him. I sure hope things start going right for you real soon. Thoughts and Prayers Nancy
  10. I am with Katie where there is life there is hope and when there is hope miracles can happen. We are serving a BIG GOD. My hopes and prayers will be for Alex to be as comfortable as possible. Thoughts and Prayers, Nancy
  11. Hi Everybody, I have been doing a little better. I just have a question for any of you that had PCI treatment. After chemo I had enough hair to call it a buzz. After the PCI which the last one was 6/29/05 I still have no hair. Any suggestions????????? Thoughts are Prayers, Nancy
  12. mama4zach

    Antsy

    Joanie, I know exactly how you feel. I try to keep reminding myself that if it is I will deal with it and if it is not I will be happy. All we can do is just pray and hope for the best. I will be praying for you. Thoughts and Prayers, Nancy
  13. Cindy, So happy for you. I praise God for the good report too. I am scheduled for my 3 month checkup August 15th and I am really scared. I hope your mri goes well also. Prayers Coming Your Way. Nancy
  14. I forgot to mention that I live in WV and I see a dr in Baltimore MD at Johns Hopkins and my pcp has been very involved in my treatment. I don't know if this matters or not but thought I should let u know. Thanks, nancy
  15. Hi Everyone, I have a question for anyone that ever experienced this kind of pain that I am having. I don't know how to put my history on here like you guys have it solong story short, i was dx with sclc limited in dec 2004. I am 50 yrs old and am raising my grandson. He is 3 yrs old and his mother, my daughter passed away when he was 4 months old. The last 4 yrs of my life has really been tough. I almost feel like Job in the Bible. Anyways, I keep fighting because of my grandson. I had my last chemo treatment the last week of April, cisplatin and etoposide. Had the last of 10 pci treatment june 29. Lost all hair again not like a had much but at least it was a short buzz. I don't think I have had one day since my first treatment of chemo of not being nauseaed. I take zofran and prilosec 2 times a day. I also take pain meds as needed. Well I felt like I was getting better more energy and strength before the pci. And just this week starting having alot of pain in my back and stomach. I called my doctor and told me to contact my family dr and have a test for ulcer. They also moved my appointment date up and told me to take the pain meds on schedule till I get it under control or if I didn't it was hard to control. Anyhow, has anyone else had this pain afterwards? Or do u think I could have the cancer again???? Would everyone on this board please pray that is not the case. I feel like I just can't take much more. I am still fighting but I feel like I am the one getting beat up. Any information you can give me will be much appreciated. Sometimes I think I just get so scared and maybe that makes it worse but I am really worried. Have I had enough time to be boucing back or is it still early????? Thank you all for everything. Love and Prayers For All, Nancy
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