kaarenmarie

question on the above two medications given for gene therapy. I am wondering if anyone is on them and if they are having any adverse reactions. Also are they being covered under insurance.

I would like know how those of you that are on Xalkori or another type of meds for lung cancer are doing with the meds. I have been reading alot about some of the reactions. My doctor has not called yet with the results of the gene testing, but hoping for information today. My patience is wearing a little thin, and really do not bother him at this moment.

My doctor has already issued instructions for gene testing. He said that we probably would have some answers this upcoming week. They are testing for all three, but have heard of PD1 inhibitor drugs. Still trying to find out all I can about the genetic drugs. The only thing I have found out so far is that it is very expensive and my situation cannot afford the heavy duty copays even with Medicare and secondary insurance. Thank you

Hi Tom - thank you for the encouragement. I have been reading all the information I can find on adenocarsinoma. Problem I am having is after the endoscopic ultrasound needle biopsy I still have a sore throat. I have emphysema on top of this so it is very challenging for me at this present moment. I have had this for eight years and I am on oxygen 24/7. I was diagnosed with breast cancer in 2001 finished with radiation summer of 2002, had tumor in the right lung in 2004 and was resectioned. Then in 2007 had bladder cancer and lost my husband. Now to present day 2014 tumor in left lung Cyber Knife radiation, 2014/2015 now in lymph node on same side of the left lung and still there is another nodule in the lung. So today Sunday writing saying thank you for your encouragement and to fight.

A year ago I had Cyber Knife treatment for a tumor in the left lung. It has now invaded the Lymph node in the Hilar region.