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Meloni

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  1. Like
    Meloni got a reaction from Cheryncp123 in ALK Positive   
    Hi Nagla Mohammed,
    I have ALK+ NSCLC and am also on Alectinib. I'm glad you are experiencing some relief of symptoms, and look forward to hearing the results of your first PET scan. I hope the results indicate the medicine is destroying the cancer. - Meloni 
  2. Like
    Meloni reacted to Nagla Mohammed in ALK Positive   
    Hi
    thanks for your reply .
    this is to update you , now I completed two months and half with Alectinib . so far there is an improvement in tumor size , it starts shrinking , yet , it slow progress but something is better than nothing
    the most exciting thing there is few side effects like fatigue , few diarrhea . my last blood test shows there is no effect so far on the kidney and liver . the tumor marker are going down .
    most of the bad symptoms are gone away , no more cough , no more short breath except when I'm on heavy activity , Thanks God
    my next scan on 22nd of Apr . will let you know
    wish you all a healthy life .
     
  3. Like
    Meloni got a reaction from LaurenH in ALK Positive   
    Hi Nagla Mohammed,
    I have ALK+ NSCLC and am also on Alectinib. I'm glad you are experiencing some relief of symptoms, and look forward to hearing the results of your first PET scan. I hope the results indicate the medicine is destroying the cancer. - Meloni 
  4. Like
    Meloni got a reaction from Tom Galli in ALK Slideshow   
    Hi Nagla,
    I would be happy to send you the slideshow. I will need a few minutes to to prepare a meal for my family, and then I will have it sent to you. It will come from my email address [email protected] 
    Mel 
  5. Like
    Meloni got a reaction from Nagla Mohammed in ALK Slideshow   
    Last month I watch and listened to oncologist Dr. West discuss the science of lung cancer rearrangements (focus ALK), and the importance of testing for them. I was able to capture most of the slide show for visual reference later. The slideshow is too large to upload, even when compressed, but if anyone would like me to email a copy, please let me know. - Meloni
  6. Like
    Meloni got a reaction from Nagla Mohammed in ALK Positive   
    Hi Nagla Mohammed,
    I have ALK+ NSCLC and am also on Alectinib. I'm glad you are experiencing some relief of symptoms, and look forward to hearing the results of your first PET scan. I hope the results indicate the medicine is destroying the cancer. - Meloni 
  7. Like
    Meloni got a reaction from KatieB in Identifying LC survivors in a given area   
    KatieB, 
    I'm a Stage IV lung cancer survivor who is currently trying to recruit volunteers who are passionate about bringing lung cancer awareness and education to my area, Spokane, WA. I have been communicating with Diana A. to organize a Breathe Deep event. Would the email address you provided ([email protected]) let me know if there are volunteers on file in my area who are committed to our cause?
    Best,
    Meloni Armstrong
  8. Like
    Meloni got a reaction from Tom Galli in Identifying LC survivors in a given area   
    KatieB, 
    I'm a Stage IV lung cancer survivor who is currently trying to recruit volunteers who are passionate about bringing lung cancer awareness and education to my area, Spokane, WA. I have been communicating with Diana A. to organize a Breathe Deep event. Would the email address you provided ([email protected]) let me know if there are volunteers on file in my area who are committed to our cause?
    Best,
    Meloni Armstrong
  9. Like
    Meloni reacted to Tom Galli in Upcoming Brain MRI   
    Meloni,
    Simply WONDERFUL news!
    Stay the course.
    Tom
  10. Sad
    Meloni reacted to Robert Macaulay in Upcoming Brain MRI   
    Intresting  CT scan yesterday  was scheduled and have had lots of these over the years but none like yesterday. Nurse got the vein for whatever they put in there and done flush no concerns .So I then get setup for the head scan and he then tell they are starting to inject the liquid all of sudden I feel the pain were the needle went in for IV Was on the borderline of severe but stuck it out as I was on my back and could not talk because of my previous cancer surgery and then he comes on the speaker and says we have problem. the liquid was not going into my bloodstream and the only noticed on the scan. they took the IV out and switched arms and completed the scan.. Time I got to my feet the doctor was there and my left bicep was enormous and the doctor said it will go down overnight with icing or hot compress which it did. First time for everything.  lol
  11. Like
    Meloni got a reaction from Lisa66 in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  12. Like
    Meloni got a reaction from Lisa66 in Upcoming Brain MRI   
    Hi All,
    I haven't updated in awhile. My ALK+ NSCLC progressed to the brain as of September 2017. The lesions are small, fortunately, but occupy an important region, the right thalamus. I underwent gamma knife in October, and the November MRI indicated the lesions were smaller. I also switched to a new TKI, Alecensa / Alectinib, which offers brain protection. The Xalkori I was previously taking did not provide that benefit. There is no evidence of disease below the skull as of my January PET. 
    I have a brain MRI this Wednesday and follow-up appointment with neurosurgeon one-hour later. We are hoping for smaller lesions, no lesions, or no change in the lesions. The doctors are optimistic they can keep the cancer managed, if not cured. I appreciate their kick *ss attitude, and hope they are right. So far this little beast has been like The Little Engine that Could. 
    On another note, February 15 is my two-year anniversary since I knowingly became a survivor of lung cancer. 
    Meloni  
  13. Like
    Meloni got a reaction from Judy M. in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  14. Like
    Meloni got a reaction from BridgetO in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  15. Like
    Meloni got a reaction from Tom Galli in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  16. Like
    Meloni got a reaction from Robert Macaulay in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  17. Like
    Meloni got a reaction from LexieCat in Upcoming Brain MRI   
    Good morning all,
    Follow-up to the MRI: the three brain lesions are still present, but they have not grown, and they might be a touch smaller! They are also fainter. No new lesions to be found. Doc says this is all good news and I am a boring patient. 
    Meloni 
  18. Like
    Meloni reacted to LexieCat in Upcoming Brain MRI   
    Good luck, Meloni!  Will keep fingers crossed and send you some good vibes.  Sounds like you've got some great docs on your team--that really helps, doesn't it?  My surgeon's attitude was a HUGE factor in reducing the level of anxiety when I had my surgery.  
    Keep us posted--and congrats on the upcoming 2-year milestone!
  19. Like
    Meloni reacted to Tom Galli in Upcoming Brain MRI   
    Meloni,
    Haven’t heard from you for a while. So glad to learn the change in chemo helped. 
    Waiting for the Brain MRI results and really hoping NED is the result. 
    Stay the course. 
    Tom
  20. Like
    Meloni got a reaction from Steff in Upcoming Brain MRI   
    Hi All,
    I haven't updated in awhile. My ALK+ NSCLC progressed to the brain as of September 2017. The lesions are small, fortunately, but occupy an important region, the right thalamus. I underwent gamma knife in October, and the November MRI indicated the lesions were smaller. I also switched to a new TKI, Alecensa / Alectinib, which offers brain protection. The Xalkori I was previously taking did not provide that benefit. There is no evidence of disease below the skull as of my January PET. 
    I have a brain MRI this Wednesday and follow-up appointment with neurosurgeon one-hour later. We are hoping for smaller lesions, no lesions, or no change in the lesions. The doctors are optimistic they can keep the cancer managed, if not cured. I appreciate their kick *ss attitude, and hope they are right. So far this little beast has been like The Little Engine that Could. 
    On another note, February 15 is my two-year anniversary since I knowingly became a survivor of lung cancer. 
    Meloni  
  21. Like
    Meloni got a reaction from Tom Galli in Upcoming Brain MRI   
    Hi All,
    I haven't updated in awhile. My ALK+ NSCLC progressed to the brain as of September 2017. The lesions are small, fortunately, but occupy an important region, the right thalamus. I underwent gamma knife in October, and the November MRI indicated the lesions were smaller. I also switched to a new TKI, Alecensa / Alectinib, which offers brain protection. The Xalkori I was previously taking did not provide that benefit. There is no evidence of disease below the skull as of my January PET. 
    I have a brain MRI this Wednesday and follow-up appointment with neurosurgeon one-hour later. We are hoping for smaller lesions, no lesions, or no change in the lesions. The doctors are optimistic they can keep the cancer managed, if not cured. I appreciate their kick *ss attitude, and hope they are right. So far this little beast has been like The Little Engine that Could. 
    On another note, February 15 is my two-year anniversary since I knowingly became a survivor of lung cancer. 
    Meloni  
  22. Like
    Meloni got a reaction from Tom Galli in ALK Positive   
    Hi Nagla Mohammed,
    I have ALK+ NSCLC and am also on Alectinib. I'm glad you are experiencing some relief of symptoms, and look forward to hearing the results of your first PET scan. I hope the results indicate the medicine is destroying the cancer. - Meloni 
  23. Sad
    Meloni got a reaction from Michele in Treatment Update - Upcoming Scan   
    Hello Friends,
    I had a head MRI last Wednesday, and Thursday evening the oncologist called to inform me there is a spot in my Thalamus that was not present on my Feb 2017 scan. A biopsy would be required to confirm, but they believe it likely represents metastasis of the lung cancer. 
    I'm waiting (always the waiting game), for the neurosurgeon referral to be approved by insurance. My insurance has never given me troubles, I just hate the lag time between discovering new issues and getting those new issues treated.
    My oncologist indicated the lesion is small (10 mm) and treatable. Just waiting to hear from the neurosurgeon so I know what to expect in terms of treatment, follow-up and monitoring. Want to know about side effects and risks, too, of course.  Apparently the thalamus is a pretty important little unit in the brain. 
    Meloni 
     
  24. Like
    Meloni reacted to KatieB in Treatment Update - Upcoming Scan   
    Alice Shaw is on our scienctific advisory board.  She is an incredible expert.  Did you get a second opinion with her?  Post an update when you can.
    Best hopes,
    KatieB
     
  25. Like
    Meloni got a reaction from Tom Galli in Treatment Update - Upcoming Scan   
    Hi Julie, 
    I'm sorry I missed your post. I've been away from the site for a bit, due to projects and stress. I agree that waiting is incredibly difficult. Have you been able to get your insurance approvals? 
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