Jump to content

lynn

Members
 View Profile  See their activity

  • Posts

    198

  • Joined

  • Last visited

 Content Type 

Posts posted by lynn

    Dad has SCLC and finished chemo - can't walk

    in SCLC GROUP

    Posted

    My Dad had similar symptoms in 2003. He just could not walk for no apparent reason. He was hospitalized for dehydrationand was ambulating with a walker in the hospital but after the hour ride to my home he could not walk. The physicians restarted a steroid he had been on and this temporarialy helped. We never found the cause and I recall asking the physician if it was Eaton- Lambert syndrome,(disorder that weakens pelvis and thighs) I was told that it probably was not the cause.

    I know how frustrating this can be and I hope you find the answers you seek before anyone gets hurt.

    Thinking of you,

    Lynn

    Article on Preventive Brain radiation for Sclc survival.....

    in SCLC GROUP

    Posted

    Hi Jen,

    Yes, my Dad had 20 good years...healthy. We were told that when he was diagnosed with the same cell type in 2003 that it was considered a new primary. I wish I had more to share...he was even given some chemo agents that I don't see being used much for small cell. I have a copy of his records and I spoke with his oncologist after he passed away...I don't know why he responded so well in 1983...the only difference I see is that instead of two chemo agents he was given a variety of agents. It was a published study which some day I would like to get a copy of the article.

    Keep the faith,

    Lynn

    Article on Preventive Brain radiation for Sclc survival.....

    in SCLC GROUP

    Posted

    Larry,

    Interesting article...thanks. My Dad was enrolled as part of a study done by Memorial Hospital back in 1983. He had a complete response to chemo and was offered PCI way back then, despite the extensive disease.My Dad then had 20 healthy years during which time he was told he was "officially" cured.I wonder how big a role the PCI played in his survival?

    Thanks again,

    Lynn

    Alone...

    in GRIEF

    Posted

    Nick,

    It's been years since my Mom passed away. I miss her and my Dad every day. There is no one else on Earth who loves you the way that a mother does...the loss of that relationship makes me feel lonely too. The upside is I don't need a phone to talk to her anymore :wink: I still speak to her often.It helps some.

    Lynn

    I have to wonder...what is the point?

    in SCLC GROUP

    Posted

    Hi Bobby,

    My Dad survived for 20 years after treatment for extensive sclc.For about the first five years I didn't enjoy a day of it because all I did was worry about when it would return...what a waste!My Dad would definitely tell you it was worth it.

    Hang in there

    Lynn

    Highway to Hell/An MRI Story

    in NSCLC GROUP

    Posted

    Debi,

    What a well-written post. I see a lot of myself in your story. Once when my Mom was hospitalized,I spoke with her Oncologist who then winked at me at the end of the conversation. :shock: I proceeded to disect any possible reason for the wink.I drove my family up a wall about this wink. Naturally, I jumped to the conclusion that a wink to a family member was bad news.I never did determine the meaning of thet wink,but it sure did give me something to think about! :wink:

    Hugs,

    Lynn

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept