Jump to content

Susan Cornett

Moderators
  • Content Count

    516
  • Joined

  • Last visited

  • Days Won

    66

Reputation Activity

  1. Like
    Susan Cornett reacted to Susanrae in There are days....   
    Newly diagnosed April 11, 2019, and it is so good to read all of this information from survivors...do not compare my new life with lung cancer to my old one.  I need to start a journal with all of these quotes in it to get me through my dark days.  Thanks to all for sharing...
  2. Like
    Susan Cornett reacted to ColleenRae in Taking a page from Tom's book   
    Loved seeing this Susan... Sorry for being late in congratulating you. I admire you and want you to know that it does inspire others, like me...
  3. Like
    Susan Cornett got a reaction from Tom Galli in A Life Well Lived   
    I've been so hit or miss here lately that I'm just seeing this.  I'm sorry for your loss, and her family, but it sounds like she didn't give in to cancer and lived her life on her terms.  We should all be so fortunate to live that way.  
  4. Like
    Susan Cornett reacted to Roz in Another recurrence, another call to Mom and Dad   
    Susan,
    I'm sorry I didn't see this sooner as I would have responded right away. So happy to hear that today is a better day. I hope that the treatment starts as soon as possible and completely understand your frustration and feelings of anxiety. Here's to many more sunrises and sunsets ahead!!
     
    Ro
  5. Like
    Susan Cornett reacted to BridgetO in Another recurrence, another call to Mom and Dad   
    You are entitled to a meltdown whenever you need/chose/are overcome by one! I'm glad today is a better day.
    Bridget O
  6. Like
    Susan Cornett got a reaction from Steff in Another recurrence, another call to Mom and Dad   
    Thank you all for indulging my meltdown yesterday.  Today is a better day because I decided it would be.  The sun is out (FINALLY) and I'm alive.  I don't believe I can ask for much more than that.
     
  7. Like
    Susan Cornett reacted to KatieB in Another recurrence, another call to Mom and Dad   
    Thinking about you.
  8. Like
    Susan Cornett reacted to PaulaC in Another recurrence, another call to Mom and Dad   
    Susan I hope today is a better and I’m sorry you’re dealing with this. Big Hugs
    Tske Care
    Paula
  9. Like
    Susan Cornett reacted to Steff in Another recurrence, another call to Mom and Dad   
    Susan,
    I often think about how things might be if the roles were reversed and I was the cancer patient, not my mom.  I always wish that I could be the one who had gotten cancer, not my mom. She has enough to deal with with all of her other medical issues and taking care of my dad.  But then I really think that my mom would probably worry even more if her only child were the one with cancer.  I couldn't even imagine having to tell my parents that I have cancer.  You are a brave woman to not only confront your battle head on, but also to try to soften the blow for your parents.  And it sounds like you are lucky to have Neil!  I have a very small family too - no siblings or children either.  It's pretty much just my parents and I (my husband isn't as supportive!).  I understand the stress that comes with a small family unit and how we try to soften the blow for any type of bad news.  I am so sorry you are having to battle this recurrence and I am as equally as sorry that you had the stress of sharing your news with your parents.  Sometimes I don't know which is worse.  
    I hope that your treatment begins quickly so you can get this bout done and over with!  I am thinking of you and your family, sending hugs and awaiting to start my happy dance for you.
    Take Care,
    Steff
  10. Like
    Susan Cornett reacted to Laurel in Another recurrence, another call to Mom and Dad   
    Susan- I am so sorry you are going through this. Sending soft hugs.
  11. Sad
    Susan Cornett got a reaction from Tom Galli in Another recurrence, another call to Mom and Dad   
    The logical part of my brain knows the SBRT is the way to go.  In addition to the article you shared, I found a lot of great articles about it; very promising.  But today is one of those days - I'm tired/anxious/frustrated/done with cancer and have spent the day in tears.  The last couple of weeks have been stressful with appointments and scans and waiting.  Just ready to get this treatment under my belt and get out of my own head!  
  12. Like
    Susan Cornett got a reaction from PaulaC in Another recurrence, another call to Mom and Dad   
    I meet with Super Radiation Doc on Wednesday - but it will likely be SBRT. 
  13. Like
    Susan Cornett got a reaction from Roz in Another recurrence, another call to Mom and Dad   
    I meet with Super Radiation Doc on Wednesday - but it will likely be SBRT. 
  14. Like
    Susan Cornett reacted to Tom Galli in Another recurrence, another call to Mom and Dad   
    Susan,
    SBRT is good stuff. It fried my non-cooperating tumor and resulted in my long tenured NED. I've done a lot of reading on the Abscopal Effect and this is reflective of what I've learned. We both share NSCLC that is resistant to targeted therapy and perhaps even immunotherapy, but my chemo-resistant tumor stopped growing and spreading after but three - 15 minute treatments by CyberKnife in early 2007.  I've had quarterly, then bi-annual scans since and all have been NED.
    Tell super rad-doc to lock and load and blast that son of a b&#*& into scar tissue!
    Stay the course.
    Tom
  15. Like
    Susan Cornett got a reaction from Tom Galli in Another recurrence, another call to Mom and Dad   
    I meet with Super Radiation Doc on Wednesday - but it will likely be SBRT. 
  16. Like
    Susan Cornett reacted to Roz in Another recurrence, another call to Mom and Dad   
    Susan,
    I totally agree that explaining and discussing this with our parents is one of the most difficult parts of the process. I see the pain in their eyes and feel so badly to be putting them through all the worry. No matter how we say it, they will be scared...I don't blame them as I would feel the same if it were my children.
    What is super doc's plan for treating this recurrence?
     
    Best,
     
    Ro
  17. Like
    Susan Cornett reacted to Roz in There are days....   
    Still feel that way Susan-every single day!!
     
    Ro
  18. Like
    Susan Cornett reacted to Roz in There are days....   
    Susan,
    Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!!
     
    Ro
  19. Like
    Susan Cornett got a reaction from Roz in There are days....   
    Thank you all for your thoughtful comments.  I guess, after two years, I'm still adjusting to the dreaded "new normal".  There are many aspects of this site that I enjoy, but coming here to write what is on my mind is probably the best.  My husband understands but you all really understand.  
    Wishing you a happy day!
  20. Like
    Susan Cornett got a reaction from Steff in There are days....   
    Thank you all for your thoughtful comments.  I guess, after two years, I'm still adjusting to the dreaded "new normal".  There are many aspects of this site that I enjoy, but coming here to write what is on my mind is probably the best.  My husband understands but you all really understand.  
    Wishing you a happy day!
  21. Like
    Susan Cornett got a reaction from Tom Galli in There are days....   
    Thank you all for your thoughtful comments.  I guess, after two years, I'm still adjusting to the dreaded "new normal".  There are many aspects of this site that I enjoy, but coming here to write what is on my mind is probably the best.  My husband understands but you all really understand.  
    Wishing you a happy day!
  22. Like
    Susan Cornett reacted to BridgetO in There are days....   
    I think both survivors and caregivers want to avoid unlioading their baggage on each other. It's inevitable that we do that some though. One thing I love about these forums is it gives me a place I can unload some stuff without unduly alarming my spouse. I know she wants to make things better for me, but at times I just need to vent or complain or share anxieties. Here others have been through a lot of the same stuff and will understand without feeling responsible or worried. Thanks everybody for  being here!
    Bridget O
  23. Like
    Susan Cornett reacted to Steff in There are days....   
    Susan,
    I read your post a few days ago and it really hit me, but I didn't have the words or thoughts of how I wanted to reply since I am not the cancer survivor and don't want to make everything about me.  But I too, as a care advocate for my mom, feel the nagging thoughts in my everyday activities.  And honestly, I think you all do so much better in dealing with those nagging thoughts than I do.  I will use my mom as an example...I speak to her everyday via phone.  Yesterday happened to be the first day we did not talk about cancer, how she is feeling, upcoming appointments, etc for nearly a year.   I had decided after reading your post that I would not be the one to bring up cancer in our phone visits unless something major was going on (I really had to look at what I consider to be MAJOR because I think EVERYTHING is MAJOR!!!). I realized that I was probably putting my nagging thoughts onto her and that is the last thing she needs.  And voila, when I did not bring up cancer she did not either! So, although I cannot help with any "words of wisdom" in regard to dealing with nagging thoughts (since I totally suck at it!!!), I want to let you know that you are not alone. And I also want to say thank you...although I am sure it wasn't your intention, you helped me to realize how I can be unintentionally placing my baggage onto my mom when I really try hard not to.
    I hope that those nagging thoughts lessen for you and for all survivors.
    Thanks for sharing your thoughts.
    Take Care,
    Steff
  24. Like
    Susan Cornett reacted to Tom Galli in There are days....   
    Susan,
    Unfortunately, I still get hit right between the eyes.  Case in point, I've had a nagging congested chest condition with a "dry patch" in my throat since mid May.  My GP ordered and ENT endoscope consult followed by an MRI.  So alarm bells are ringing in my head!  Recurrence, even after long periods of NED is common.  Living with the threat is partly finding one's new normal, but the threat is always hanging around my mind and effects my day to day life.  For example, I pay close attention to medical expense and medical evacuation benefits on the travel insurance policy I now purchase for every international vacation.  And, I still have that scanziety drill for my two scheduled oncology consultations a year.
    Lung cancer really is part of my life.  It is ever present in my mind.  Sometimes, I am overwhelmed by its reality.  My only solutions is to....
    Stay the course.
    Tom
  25. Like
    Susan Cornett reacted to KatieB in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
×
×
  • Create New...