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Susan Cornett

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  1. Like
    Susan Cornett got a reaction from JamesB in Nerves   
    Lin,
    I promise it gets better. I was diagnosed almost 4 years ago and have since had two recurrences. It was about a year after that last recurrence that I finally felt like my old self. I didn't get all my stamina back but that's due more to my weight gain during treatment than anything else. You just have to hang in there. Vent when you need to. We all understand.
  2. Like
    Susan Cornett got a reaction from LouT in Scan results   
    Lin - 
    Sorry it wasn't better news. I am crossing fingers and toes that there are good options - new med combos, clinical trials - whatever it takes.
  3. Like
    Susan Cornett got a reaction from Roz in NED by Email....   
    Tom - 
    I'm so happy for you! I've over here doing my NED dance just for you. Woo hoo!!!
  4. Like
    Susan Cornett reacted to LexieCat in Covid and me   
    Great blog post, Lisa! I can definitely relate. Of course, everyone's situation is unique but this pandemic has screwed with every one of us in the lung cancer survivor/patient/caregiver community. I'm trying to be grateful that I have the financial resources to focus on my health right now--that I don't have to worry about healthcare coverage or paying my bills--that's an additional whole layer of complication many have to deal with under current conditions.
    I have no family in this part of the country--most are in Colorado, 2,000 miles away. I'm so very grateful my daughter has been able to come out here to help and support me right now. I'm early in treatment so no clue at this point whether my treatment will remain on course.
    My own favorite activities--before and after my first diagnosis in 2017--are all out of the question right now: concerts, theater, and travel. I remember thinking and saying, after my trip to Morocco in 2015, "If something happened and I was never able to take another trip, I'd be OK with that"--the trip was that good. Since then I had another amazing trip to Vietnam in 2018, as well as tons of incredible concert and theater experiences. I'm not sure if my finances will allow quite as much indulgence whenever going out is possible again, but I'm sure glad I did those things while I could. 
  5. Like
    Susan Cornett reacted to LouT in Having depressing thoughts   
    Hi Catlady91,
    I can feel the love that you have for your Mother and I'm sure that your concern stems from that strong love for her.  But, let me appeal to your logical-side rather than to your emotional-side.  And please bear with me because I'm speaking from experience.  I lost my Mother to lung cancer and my Father to cancer that began in his bladder and spread throughout his body.  Most of the aunts and uncles on my Mother's side of the family also died of cancer; some as young as 40.  So, I always felt that cancer would be my end.  In 2010, after a routine colonoscopy, I was diagnosed with colon cancer.  It was a virulent one that could spread easily.  I underwent a colon resection and had loads of testing over the years and it did not return.  Luckily, ten years later, I now go every 2 years for a complete physical and so far, so good.   So...in 2019 I had a kidney stone CT Scan and they found a nodule in my lung.  Cutting a long story short; it was lung cancer and I had a lobectomy (lower right) and so far I have been NED.
    Why did I tell you my story?  Because based on my parent's and family's history my chances of surviving this would not look good.  But, they have made many strides and cancer that was a death-sentence in the past can now become a chronic condition that can be treated with a number of tools.  That is what I depend on to go on living my life for my family and my own peace of mind.  I could dwell on the fact that LC diagnosed at Stage 1 has a 30% chance of recurrence or that LC is considered the most deadly of the cancers, but that would rob me of the ability to enjoy the life I prayed I wouldn't lose to cancer.  
    Yes, there is always a chance that cancer can return and we are all going to die of something and it might be cancer, but we don't know that for sure.  I've heard it said that the person who dwells on the past becomes fraught with depression while the one who dwells on the future becomes fraught with anxiety.  In either case you lose the life you are presently living and, in this case, you miss out on the life that your Mom can and will live, because you will lost in the future and its anxieties.  All things considered, your Mother is doing very well.  You should enjoy and celebrate that.  She needs you to be a positive force in her life, so you can do the best job of supporting her.  I'm sure you prayed for her to respond to treatment so you could enjoy her presence; well now is the time to enjoy that presence and share your joy with her.  
    Even aside from your Mother's lung cancer, there are no guarantees in life, not for any of us.  But, on my last day I would like to be satisfied that I lived the life that I was given rather than grieving (in advance) that it would eventually end.  Your Mom needs that support from you.  So, celebrate the good news and if you want the best lowdown on the cancer your Mom has (which is not pancreatic, colorectal, melanoma, or some other cancer), then this site is the best place to hear other's experiences and learn the best things to do for your Mom.
    I'm asking you to get in the present for your Mom.  Once you do that you'll be able to say that you were present for all her days, rather than lost and worried in the future.  If you do this you'll bring joy to both of you.  Stay strong and keep going.  My prayers go out for both of you.
    Lou
  6. Like
    Susan Cornett got a reaction from ColleenRae in Deciding on Treatment   
    Hi Steve - 
    Welcome to our forums. First, as others have mentioned, stats are just that: stats. They don't take your health or current treatment options into consideration. On top of that, no doctor can tell you how long you have. When I was first diagnosed, I panicked when I was told my 5 year survival odds were 18%. Once I read more about stats, Super Doc and I came to the agreement that stats are crap and I don't want to hear them.
    I'm a stage IV survivor. I've had surgery, chemo (two different cycles), and radiation. I also had lymph node involvement which was tackled with radiation. I had some issues with the radiation but most of them resolved when the radiation ended. As for chemo, I've had cisplatin, alimta, carboplatin, and taxol. They each caused their own short-term and long-term effects but I had a great medical team that worked with me.
    There's a lot to take in - information, decisions, etc. We're here for you.
  7. Like
    Susan Cornett reacted to GaryG in I’m new and looking for help   
    Hi Daria: I am so sorry to know about your anxiety and pain. There is no reason for you to live with either one of them. You need to call your doctor and explain what you are feeling. Your doctor has the obligation and duty to help you.  
  8. Like
    Susan Cornett got a reaction from BridgetO in Deciding on Treatment   
    Hi Steve - 
    Welcome to our forums. First, as others have mentioned, stats are just that: stats. They don't take your health or current treatment options into consideration. On top of that, no doctor can tell you how long you have. When I was first diagnosed, I panicked when I was told my 5 year survival odds were 18%. Once I read more about stats, Super Doc and I came to the agreement that stats are crap and I don't want to hear them.
    I'm a stage IV survivor. I've had surgery, chemo (two different cycles), and radiation. I also had lymph node involvement which was tackled with radiation. I had some issues with the radiation but most of them resolved when the radiation ended. As for chemo, I've had cisplatin, alimta, carboplatin, and taxol. They each caused their own short-term and long-term effects but I had a great medical team that worked with me.
    There's a lot to take in - information, decisions, etc. We're here for you.
  9. Like
    Susan Cornett reacted to GaryG in Deciding on Treatment   
    Hi Steve: Sorry to be late to the party but here is my story. I am 74 years old diagnosed with stage 3B NCLS. I di not have any mutations, My PDL1 is 0. I did not qualify for surgery or radiation. Yet I never lost hope and started on the triplet ( a combination of 2 chemos and immunotherapy).  I finished 3 cycles (3 infusions) and my oncologist was very happy with the results of my CT scans. The side effects were not pleasant after the first infusion but subsequent to the second and third one, the side effects become very manageable. Bottom line you never know what side effects you will have or don't have but being hopeful and fighting beats the alternative.
  10. Like
    Susan Cornett got a reaction from LouT in Deciding on Treatment   
    Hi Steve - 
    Welcome to our forums. First, as others have mentioned, stats are just that: stats. They don't take your health or current treatment options into consideration. On top of that, no doctor can tell you how long you have. When I was first diagnosed, I panicked when I was told my 5 year survival odds were 18%. Once I read more about stats, Super Doc and I came to the agreement that stats are crap and I don't want to hear them.
    I'm a stage IV survivor. I've had surgery, chemo (two different cycles), and radiation. I also had lymph node involvement which was tackled with radiation. I had some issues with the radiation but most of them resolved when the radiation ended. As for chemo, I've had cisplatin, alimta, carboplatin, and taxol. They each caused their own short-term and long-term effects but I had a great medical team that worked with me.
    There's a lot to take in - information, decisions, etc. We're here for you.
  11. Like
    Susan Cornett got a reaction from GaryG in Deciding on Treatment   
    Hi Steve - 
    Welcome to our forums. First, as others have mentioned, stats are just that: stats. They don't take your health or current treatment options into consideration. On top of that, no doctor can tell you how long you have. When I was first diagnosed, I panicked when I was told my 5 year survival odds were 18%. Once I read more about stats, Super Doc and I came to the agreement that stats are crap and I don't want to hear them.
    I'm a stage IV survivor. I've had surgery, chemo (two different cycles), and radiation. I also had lymph node involvement which was tackled with radiation. I had some issues with the radiation but most of them resolved when the radiation ended. As for chemo, I've had cisplatin, alimta, carboplatin, and taxol. They each caused their own short-term and long-term effects but I had a great medical team that worked with me.
    There's a lot to take in - information, decisions, etc. We're here for you.
  12. Like
    Susan Cornett got a reaction from Tom Galli in Deciding on Treatment   
    Hi Steve - 
    Welcome to our forums. First, as others have mentioned, stats are just that: stats. They don't take your health or current treatment options into consideration. On top of that, no doctor can tell you how long you have. When I was first diagnosed, I panicked when I was told my 5 year survival odds were 18%. Once I read more about stats, Super Doc and I came to the agreement that stats are crap and I don't want to hear them.
    I'm a stage IV survivor. I've had surgery, chemo (two different cycles), and radiation. I also had lymph node involvement which was tackled with radiation. I had some issues with the radiation but most of them resolved when the radiation ended. As for chemo, I've had cisplatin, alimta, carboplatin, and taxol. They each caused their own short-term and long-term effects but I had a great medical team that worked with me.
    There's a lot to take in - information, decisions, etc. We're here for you.
  13. Like
    Susan Cornett got a reaction from JamesB in I’m new here-NSCLC   
    Hi, Robin. I'm so glad you found this forum. We have so many great contributors here. You will learn very quickly that everything is hurry up and wait. I also had to adapt quickly to the loss of control of my schedule! Great news is we've had lots of advances in treatments. We've got people living with this as a chronic disease. Doesn't sound fun but it sure beats the alternative. I'm a stage IV about to hit my 4 year cancerversary. It can be done.
    Please let us know how we can support you.
  14. Like
    Susan Cornett got a reaction from Roz in scans tomorrow   
    Ro - 
    Sorry that it wasn't better news. Thinking about you - 
  15. Like
    Susan Cornett got a reaction from Tom Galli in NED by Email....   
    Tom - 
    I'm so happy for you! I've over here doing my NED dance just for you. Woo hoo!!!
  16. Like
    Susan Cornett got a reaction from Tom Galli in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick - 
    I see that you've already had a very warm welcome from the others. There is so much good information and wisdom here. The site has been a saving grace for me. We're all here to support you in any way that we can. 
  17. Like
    Susan Cornett got a reaction from RH1970 in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick - 
    I see that you've already had a very warm welcome from the others. There is so much good information and wisdom here. The site has been a saving grace for me. We're all here to support you in any way that we can. 
  18. Like
    Susan Cornett got a reaction from LexieCat in So we have a plan...   
    Good - new doc, plan to move forward - all going in the right direction. Be mindful those steroids will mess up your sleep. I was getting big doses and had the worst insomnia. Super Doc told me to alternate my nausea meds so that I was continuously on something and I didn't have much opportunity to get sick. I'm hoping you sail right through this.
    Thinking of you - 
  19. Like
    Susan Cornett reacted to Tom Galli in So we have a plan...   
    Teri,
    Don't forget to remind Dr. Baumi of your connection with the Lungevity Foundation. And if that doesn't resonate, remind him you happen to know the Treasurer and board member of the Lungevity Foundation on a first name basis.
    I'm confident that your prosecutorial leverage instincts will kick-in in the event the good doctor has a memory lapse. If he needs more reminding, my Colonel instincts are always available on short notice and with an even shorter fuse!
    Stay the course.
    Tom
     
  20. Like
    Susan Cornett reacted to LexieCat in So we have a plan...   
    Incidentally, I told the Nurse Navigator I doubted she could get MD Anderson to burn those discs that fast--they told me it would take a couple of days at least. She kinda gave me an evil cackle and said, "Oh, don't worry--I know how to get them. They tell patients it will take two days, but *I* tell them 'You're unnecessarily delaying a patient's cancer treatment, and I'm gonna put that in my notes.' I get them.")
    I find that level of aggressiveness pretty attractive, lol.
  21. Like
    Susan Cornett reacted to LexieCat in So we have a plan...   
    I have a virtual appointment tomorrow with Dr. Joshua Bauml, who recently received a Career Development Award from Lungevity! https://lungevity.org/media-releases/drs-joshua-bauml-wei-chu-victoria-lai-and-aaron-lisberg-receive-prestigious-lungevity (Somebody should really fix the forums so "Lungevity" doesn't keep autocorrecting to "Longevity" 🙄) They have all the reports and if they can't get the images (the nurse navigator I spoke with thought she could), I'll hand-deliver them before the appointment.
    This doc is involved in some interesting research and trials. He's also got great reviews from his patients. 
    I'll feel much better dealing with him, I think, than the rather stodgy oncologist I have now. Plus, it sounds like the RO I'm seeing Friday comes highly recommended (by Dr. Drew, on our Scientific Board). Both are with Penn Medicine, which sounds promising.
  22. Like
    Susan Cornett reacted to LexieCat in So we have a plan...   
    Update--called Penn Medicine this morning and the Nurse Navigator is scrambling to try to get me an appointment tomorrow--if not, Tuesday at the latest. It helps that I already have all my reports/imaging discs dropped of for RO #2 (at Penn), who I'm seeing on Friday. She's gonna see if they can upload everything and worst case, I'll run over and pick them up and get them over to the right place.
    She sounded rather shocked, herself, at my oncologist's attitude about the testing. She said that it's CERTAINLY better not to wait till there's a recurrence. 
    Penn is a Comprehensive Cancer Center under the National Cancer Institute.
    I have a feeling I may be switching.
  23. Like
    Susan Cornett reacted to LexieCat in NED by Email....   
    GREAT news! Heck, I'll take good news if it comes by friggin' carrier pigeon. 
    Since you've co-opted "stay the course," I'm adopting "rock on." 😎
  24. Like
    Susan Cornett reacted to Tom Galli in NED by Email....   
    I had my consultation at 1 pm with my oncologist today but the good news came by email this morning: "Tom, I just reviewed your CT scan from 8/31/2020 and there was nothing new on it. Everything appeared to be stable so no evidence for recurrent cancer. I thought you'd like to know."
    So we had a pro forma consultation that unfortunately included news that he's retiring from practice and we discussed who I'd like to see when he retires.
    A number of us were getting scans today and I hope everyone's news is as good as mine.
    Stay the course.
    Tom
  25. Like
    Susan Cornett reacted to Tom Galli in Hi from Upstate NY - Possible Lung Cancer iii   
    Rick,
    If it is any help, I was diagnosed stage IIIB and survived lots of treatment. I'm still here, nearing 16 years after diagnosis.
    Stay the course.
    Tom
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