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Susan Cornett

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  1. Like
    Susan Cornett got a reaction from Roz in From Hope to Cure!   
    Tom - 
    I am so happy for you, my friend! Tears of happiness are streaming down my cheeks right now. You continue to be my beacon of hope!!!
  2. Like
    Susan Cornett got a reaction from Sandy N in NSCLC 22years old   
    There are definitely ups and downs with cancer and treatments and all of the extras that go with it. Some days it is 2 steps forward and 47 steps back. In the first 2.5 years of my journey, I had the initial diagnosis, two recurrences and thyroid cancer. But it's been 5 years as stage IV and I'm here. I have rough days from time to time because of lingering side effects but those side effects sure beat the alternative.
    Just keep coming back here. We all understand where you are. Hang in there.
  3. Like
    Susan Cornett got a reaction from LouT in Wife's 2nd covid shot.   
    Once I got that second shot, my life changed! Never so thankful to get a shot in my life.
  4. Like
    Susan Cornett got a reaction from LouT in NSCLC 22years old   
    There are definitely ups and downs with cancer and treatments and all of the extras that go with it. Some days it is 2 steps forward and 47 steps back. In the first 2.5 years of my journey, I had the initial diagnosis, two recurrences and thyroid cancer. But it's been 5 years as stage IV and I'm here. I have rough days from time to time because of lingering side effects but those side effects sure beat the alternative.
    Just keep coming back here. We all understand where you are. Hang in there.
  5. Like
    Susan Cornett got a reaction from Tom Galli in NSCLC 22years old   
    There are definitely ups and downs with cancer and treatments and all of the extras that go with it. Some days it is 2 steps forward and 47 steps back. In the first 2.5 years of my journey, I had the initial diagnosis, two recurrences and thyroid cancer. But it's been 5 years as stage IV and I'm here. I have rough days from time to time because of lingering side effects but those side effects sure beat the alternative.
    Just keep coming back here. We all understand where you are. Hang in there.
  6. Like
    Susan Cornett got a reaction from LouT in Introduce myself   
    A lot of those pesky side effects can go away quickly once treatment is started, especially if you get radiation. I coughed like crazy and once my tumor was removed, the coughing stopped. Seriously - I haven't coughed much in the last 5 years!
  7. Like
    Susan Cornett got a reaction from LouT in Introduce myself   
    I'm also going to jump on the "don't throw in the towel just yet" team. All of this sucks. It does and no one can tell us otherwise. Thoughts of chemo and radiation and fatigue are just too much. But some of these treatments can provide some relief from symptoms and give you more time to make all the plans and decisions you need to make. Whatever you decide, we're here for you so lean on us.
  8. Like
    Susan Cornett got a reaction from LexieCat in NSCLC 22years old   
    There are definitely ups and downs with cancer and treatments and all of the extras that go with it. Some days it is 2 steps forward and 47 steps back. In the first 2.5 years of my journey, I had the initial diagnosis, two recurrences and thyroid cancer. But it's been 5 years as stage IV and I'm here. I have rough days from time to time because of lingering side effects but those side effects sure beat the alternative.
    Just keep coming back here. We all understand where you are. Hang in there.
  9. Like
    Susan Cornett got a reaction from Robert A. in Wife's 2nd covid shot.   
    Once I got that second shot, my life changed! Never so thankful to get a shot in my life.
  10. Like
    Susan Cornett got a reaction from BridgetO in NSCLC 22years old   
    There are definitely ups and downs with cancer and treatments and all of the extras that go with it. Some days it is 2 steps forward and 47 steps back. In the first 2.5 years of my journey, I had the initial diagnosis, two recurrences and thyroid cancer. But it's been 5 years as stage IV and I'm here. I have rough days from time to time because of lingering side effects but those side effects sure beat the alternative.
    Just keep coming back here. We all understand where you are. Hang in there.
  11. Like
    Susan Cornett reacted to Suzanna in My Dad's stage 4 lung cancer.   
    Very sorry to hear about your father, but as others have stated, you are in the right place. My husband used to always say that he would never put himself through chemo, until he was faced with his own stage IV diagnosis in September. He had 8 tumors that were spread from his spine to his hip. He went on the "triplet" and had minimal side effects. In fact, I think radiation might have been the hardest thing for him as it absolutely knocked him out. He never lost his hair, never really lost his appetite, no skin issues... just fatigue and an occasional fever. He received the best possible diagnosis in January with no evidence of disease and will continue to have scans every 2 months and stay on immunotherapy for 2 years. It's an individual choice, but you'll see as you spend time on these forums, many people are managing the diagnosis and treatment. You won't find a better support group and a place to get real information rather than the terror you might find on Google. Best of luck to you on this journey. 
  12. Like
    Susan Cornett reacted to Deb W in My Dad's stage 4 lung cancer.   
    Welcome.   I think it's worth it to be treated.  There will be side effects, but we're all different in what we experience and how we tolerate them.  I think your father will let you know how he wants to move forward. I am a stage IV lung cancer patient and survivor.  I was diagnosed in 4/2020.  My last 3 scans have been clear.  I'm not going to say it was a walk in the park with side effects, but it was so worth it!  
    All the best to you and your dad.
    Deb
  13. Like
    Susan Cornett reacted to LexieCat in Wife's 2nd covid shot.   
    Great news! If she's like me, she'll be over the moon just to get out.
  14. Like
    Susan Cornett reacted to Robert A. in Wife's 2nd covid shot.   
    My wife got her 2nd covid shot yesterday, so far just a sore arm today. I'm so happy she finally has both, maybe now we can go shopping together as she has been at home since this pandemic began. Be well all.
  15. Like
    Susan Cornett reacted to TJM in NSCLC 22years old   
    Ale,
    Damn right I would feel disappointed and pissed. So far you cant catch a break
    Ok...we got that out of the way. What is the next treatment plan?
    Peace
    Tom
  16. Like
    Susan Cornett reacted to AleHondaa in NSCLC 22years old   
    Update for my people’s lol 
    I had my appointment with the neurosurgeon and it seems that there’s growth on my c2. Good thing is radiation feels like it’s being effective since I’ve been feeling a good amount of relief recently. If that’s the case then I don’t need surgery and the bone will be able to heal on it own. I haven’t had any pain recently which is good and it’s really just discomfort now. Thankfully things seem to be going in a good direction. If anything I’ll be needed more radiation but we’ll see. 🙏🏼
  17. Like
    Susan Cornett reacted to LexieCat in NSCLC 22years old   
    Glad you have a good support system. You might want to discuss with your oncologist whether/how your cancer treatment might affect the healing of your fracture. My docs think that's why my collarbone hasn't healed yet (though I have no pain from it, just a bit of weakness on that shoulder). They give me regular (every three months) infusions of a drug called Zometa, which they also use for bone metastases and for osteoporosis (both of which I have). When you think about it, the chemo drugs attack fast-growing cells, so it makes sense they would interfere with the healing of a broken bone. Drugs like Zometa (or Xgeva is another) can help with healing. 
    I'm the queen of accidental injuries to take my mind off the cancer--I also managed to shoot myself in the eye from a spring-loaded link while resizing a medical alert bracelet, lol.  Not to mention other maladies common to us old people, like arthritis and cataract surgery. It's like, REALLY? The cancer treatment isn't enough? Nothing to do, though, but get through it.  Hang in there.
  18. Like
    Susan Cornett reacted to LexieCat in Introducing myself   
    Whether currently targetable mutations are more common in people who did or didn't smoke isn't a social statement, it's a topic of scientific study. So what is or is not more common among smokers is part of studying what causes cancer and what can stop it--the mechanics of it all. 
    I don't think it can seriously be disputed that smoking contributes to the high rate of lung cancer. It more than likely contributed to mine--I smoked heavily for 40 years. I wish I hadn't, obviously, but nobody deserves this disease, and as noted, nobody can say for sure what caused a given person's cancer. The cancer sure doesn't care--it just IS.   
    Here's an article that talks about why, though, smoking history can be relevant for treatment of lung cancer: https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/cncr.29531. It's six years old, so not the most current, but still--it isn't irrelevant information for the study or treatment of lung cancer.  
  19. Like
    Susan Cornett got a reaction from TJM in Introduce myself   
    A lot of those pesky side effects can go away quickly once treatment is started, especially if you get radiation. I coughed like crazy and once my tumor was removed, the coughing stopped. Seriously - I haven't coughed much in the last 5 years!
  20. Like
    Susan Cornett got a reaction from Tom Galli in Introduce myself   
    A lot of those pesky side effects can go away quickly once treatment is started, especially if you get radiation. I coughed like crazy and once my tumor was removed, the coughing stopped. Seriously - I haven't coughed much in the last 5 years!
  21. Like
    Susan Cornett reacted to AleHondaa in NSCLC 22years old   
    Okay so I have a big update, they found a mutation but it’s not a common one. The mutation is HER-2 (idk if that’s the correct spelling). Found mainly in Breast cancer patients, also found in lung cancer too but not as common. Currently there is no FDA approved medicine to combat this but my oncologist is highly considering clinical trials since there is most likely something that could help me. If not, then I have to get the traditional chemo and immunotherapy combo. My doctor also said he can see me doing good since I am younger and other wise healthy. I’m so glad I got some good news today. If there’s anything about this I should know please inform me. Thank you everyone! 
  22. Like
    Susan Cornett reacted to LexieCat in Introduce myself   
    Your shortness of breath may clear up quickly with treatment. I'm fortunate that I've never had any symptoms directly related to my cancer (e.g., no coughing or sob), but I've heard from others who got quite a bit of relief once the tumors started to shrink.
    Keep us posted--we've got your back.
  23. Like
    Susan Cornett reacted to PCW in Introduce myself   
    Hi Everyone,
    Thank you all so much for your up lifting messages. Special thanks to Lexie, I just made a phone appt to apply disability benefit. I’m entitled to almost the same amount of benefit as  the social security benefit when I turn 62.  That would be a big help with the cost of chemo or target agents since my insurance doesn’t cover the entire amount. I still haven’t got the result of my EGFR mutations yet, Mount Sinai is taking its time. My oncologist through the help of a radiologist assured me that there’s no sign of breakage in my spine and bones,  yet. After consideration, I think I owe it to myself to give it another try. I ‘ll  probably seek palliative care along with my prescribed treatment, all on hold waiting for the result.  I’m not complaining, but  the most distressful symptom is my Shortness of breath; I walk the pace as a 90 year old, can’t climb a flight of stairs without whizzing. I anticipate worse symptoms to come but I’ll try my best 🙂 to deal with them. Regards to you all..
  24. Like
    Susan Cornett got a reaction from LexieCat in Introduce myself   
    I'm also going to jump on the "don't throw in the towel just yet" team. All of this sucks. It does and no one can tell us otherwise. Thoughts of chemo and radiation and fatigue are just too much. But some of these treatments can provide some relief from symptoms and give you more time to make all the plans and decisions you need to make. Whatever you decide, we're here for you so lean on us.
  25. Like
    Susan Cornett got a reaction from KM_NRP in NSCLC 22years old   
    Hello there - just chiming in to say hello and welcome. In my opinion, the roughest part is the wait for a plan. As others have said, you'll likely have some sort of chemo so let us know. Some of us have had a chemo cocktail or two and can give you some tips. I just celebrated 5 years as stage IV adenocarcinoma, and I've been cancer free for 2+ years. 
    Hang in there.
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