Jump to content

Susan Cornett

Moderators
  • Content Count

    570
  • Joined

  • Last visited

  • Days Won

    69

Reputation Activity

  1. Like
    Susan Cornett got a reaction from LexieCat in Not great news on PET CT   
    Lexi - so sorry you received crummy test results. Recurrences suck - that's all there is to it. I am hopeful that you'll be eligible for targeted therapies. Keeping you in my thoughts - 
  2. Like
    Susan Cornett reacted to Rower Michelle in Tumor board   
    You’re taking a similar path that we did.  I was very surprised when our financial planners told us I could consider myself retired.  I started paying into Social Security when I was 16.  My SSD application was approved in a few weeks.  
     
    You might want to also run the numbers of STD and LTD if it’s available.  
     
    I’ve met many survivors who stopped working to fight this disease and no one has regretted that decision.  
     
    I’ve had the spinal MRI- it’s a long one- wear something cool because for some reason the procedure generates a lot of heat.  
     
    Hang in there. 
  3. Like
    Susan Cornett reacted to LexieCat in Tumor board   
    Oncologist called. Tumor board met this morning, including him, my surgeon, my pulmonologist, and a radiation oncologist. They decided they need a closer look at that spot on my tailbone (which showed up on the PET but not on the CT). So onc is ordering an MRI of that area of bone to see if they can tell what appears to be going on there. Waiting for insurance authorization for that, now. 
    Guess this is a preview of the new normal--tests and treatments every time I turn around. Still waiting to hear about scheduling the biopsy. If I don't hear by mid-afternoon, I'll call and see what's going on.
    I did a bit of figuring, and it looks to me as if I can probably afford to retire (which is starting to look pretty appealing). I already collect a decent pension, and I'm really only working to build up my cash reserves (403(b) and IRAs) and  to get a larger SSI benefit, but realistically, even if I knock the hell out of this cancer, it seems likely I won't have to fund QUITE as long a retirement as I thought I might. I'm by no means planning on checking out anytime soon, but everything involves a weighing of probabilities. I don't want to spend my last however long trying to work and cope with treatment. 
    I don't even know yet exactly what I'm dealing with, but it gives me a bit more sense of control if I can figure out my options a bit in advance. I've got a financial planner who's crunching some numbers for me.
  4. Like
    Susan Cornett reacted to Steff in Not great news on PET CT   
    Well crap, I am very sorry to hear this.  This gives new meaning to lung cancer being a pain in the a$$ 😉
  5. Like
    Susan Cornett got a reaction from LexieCat in Back to the drawing board...   
    Hello and welcome back, albeit for icky reasons. So glad you like your oncologist - such an important part of the process. I am crossing my fingers for you. Please keep us posted.
  6. Like
    Susan Cornett got a reaction from Robert A. in Absolutely Disgusting.   
    Great news, Robert!
  7. Like
    Susan Cornett reacted to Robert A. in Absolutely Disgusting.   
    Got our test results back, both negative for Covid 19. Now my wife can get back in the treatment center for her blood draws.
     
  8. Like
    Susan Cornett got a reaction from Roz in Terrified newbie   
    Hi, CLM. I'm late to the party but see that you've met so many of the wonderful people here. This site gave me hope when I had none. I'm now 4.5 years in as a stage IV NSCLC survivor. 
    Hoping you are a candidate for targeted therapy - lots of great options there. 
  9. Like
    Susan Cornett reacted to Tom Galli in Scanziety again...   
    Jack,
    If the problem lymph node turns out to be metastatic, perhaps stereotactic body radiation therapy (SBRT) might fry it. Ask your medical oncologist.
    Stay the course.
    Tom
  10. Like
    Susan Cornett reacted to Deb W in Scanziety again...   
    Good news. After two treatments, the lymph node tumors(s) shrunk 25%.  The nodule on the left lung (very small) was reduced very slightly.  The pleura - I don't know if that can be measured but he's telling me it's very small amount and hard to measure.  The plan is to continue on the same triplet - Carbo, Alimta and Keytruda for 2 more treatments, and then drop the Carbo.  That is, of course, it the shrinkage continues.  Trabecta is still an option for me should the other treatment not work.  No whine, but wow, day 4 and 5 are rough for me after chemo - probably will need to cancel the family's planned social distancing 4th. 
    Thanks to all for you thoughts, prayers and comments.
    Deb 
  11. Like
    Susan Cornett reacted to CLM in Terrified newbie   
    Hi All, The diagnosis is stage IV non-small cell adenocarinoma. I’m waiting for the bio marker results, and I get the pet scan and mri later this week. The dr thinks I’ll be a good candidate for targeted therapy so crossing my fingers and toes for clean scans (other than what I already know), clean mri, and “good” mutation. Feeling all kinds of things! Working hard to remain positive and keep a healthy attitude. 
    ❤️
  12. Like
    Susan Cornett reacted to Lisa Loves Marty in I’m new here-NSCLC   
    I just signed on and really needed to hear you are at 4 years with stage IV.  So happy you are doing so well. I was diagnosed in July. 4 rounds chemo now on keytruda only. Also had cyberknife for brain mets. Looking for hope. Have mri and cts in next week. 😓
  13. Like
    Susan Cornett got a reaction from hope16 in Scan results   
    I had my latest scan last week and I continue to be NED! I've been stable for almost 2 years so Super Doc says I don't have to come back for 6 months. I'm a little nervous about that as I was going every 3 months, then 4 months, but he says it's time. Like a baby bird not quite ready to leave the nest......
     
  14. Like
    Susan Cornett got a reaction from CLM in I’m new here-NSCLC   
    Hi, Robin. I'm so glad you found this forum. We have so many great contributors here. You will learn very quickly that everything is hurry up and wait. I also had to adapt quickly to the loss of control of my schedule! Great news is we've had lots of advances in treatments. We've got people living with this as a chronic disease. Doesn't sound fun but it sure beats the alternative. I'm a stage IV about to hit my 4 year cancerversary. It can be done.
    Please let us know how we can support you.
  15. Like
    Susan Cornett got a reaction from TJM in Scan results   
    I had my latest scan last week and I continue to be NED! I've been stable for almost 2 years so Super Doc says I don't have to come back for 6 months. I'm a little nervous about that as I was going every 3 months, then 4 months, but he says it's time. Like a baby bird not quite ready to leave the nest......
     
  16. Like
    Susan Cornett reacted to T Scholes in Scan Coming Up   
    Thank you so much for your responses.  I really needed to hear that!!   Being that this was my first scan since my lobectomy, I was so nervous...trying to prepare for both good and bad news.  I had my scan this morning and then a teledoc appt. with my surgeon.  Thankfully, he said I am NED!!!  No sign of any new cancer or enlarged lymph nodes.   I will re-scan in December.  He told me that regarding the COVID crisis, he was in the trenches working in the ICU.....he said it was like being in a sci-fi movie.....all he could say was that it was just unbelievable.  I thank God he is safe and healthy.  I have so much trust and faith in him and feel he has my life in his hands.  A big virtual hug to all the healthcare workers....they have truly been through hell and back.  Stay safe everyone!  Terry
  17. Like
    Susan Cornett got a reaction from T Scholes in Scan Coming Up   
    Hello and welcome to scanxiety! We all go through it every time we scan. I don't know that it ever goes away. Mine kicks in about a week ahead of time. Ugh.
    Unfortunately, recurrences do occur but they can be treated and survived. Several of us have had a couple of occurrences and here we are! As my scans approach, I find myself with lots of nervous energy so I do things like organizing closets and drawers. Others take trips (back when we could travel - LOL). Maybe binge watch some series you've been considering? Anything to keep your mind occupied.
    I'll be keeping good thoughts for you. Please let us know the results.
  18. Like
    Susan Cornett reacted to Tbaker in Haven't posted in a while.   
    Thank you Tom. Wow! You have been through alot! I know I will be NED.  I'm to much of a fighter.
    The depression, I've been treated most my life for major depression. I do have days where I do get a little more down than usual. Thats when I remind myself of what the doctor said... This can be controlled and contained with treatment. 
    That always lifts my spirits. I think that having a higher power to talk to also helps or it does me. I was terrified when I was 1st told I had cancer, my head just wouldn't shut down. Then I said to myself.... Good God! Stop this before you stroke out. Toni ! You have cancer! Now get busy and fight this!
    I plan on walking this earth for many more years. I alway have said when I'm 80 yrs old I'm eating ice cream every darn day. I choose to live. 😊
  19. Like
    Susan Cornett reacted to MarieE in It's back ... Time for a treatment reboot   
    First radiation done ... 15 more to go over the next couple of weeks. Encouraged to finally be taking some action. 🙂
  20. Like
    Susan Cornett reacted to MarieE in It's back ... Time for a treatment reboot   
    Bad news: No RET mutation. Good news: MET mutation. So this newly approved drug is being ordered: https://www.fda.gov/news-events/press-announcements/fda-approves-first-targeted-therapy-treat-aggressive-form-lung-cancer
    We're also expediting radiation to treat the mass that has been growing on the chest wall since we can't afford to wait a month to see if the pills help with that. (Radiation had been on hold while it was determined whether the advice was going to be to go with chemo/immunotherapy or if there was a targetable mutation.)
  21. Like
    Susan Cornett reacted to BridgetO in Scan Coming Up   
    Hi and welcome. Hang in there! I had a lobectomy in November 2016 and I've been NED (no evidence of disease) since then.
    Bridget O
  22. Like
    Susan Cornett got a reaction from MarieE in It's back ... Time for a treatment reboot   
    Hi, Marie. I'm sorry that your husband will have to have more treatment. After my lobectomy, I had chemo which bought me a few months of calm. But I then had two recurrences, more chemo, radiation, and SBRT. Lung cancer is persistent but with new treatments and therapies being approved so often, he will hopefully have good options. My grandmother's SCLC came back with a vengeance during chemo. Stupid cancer.
    I hope you and your husband continue to stay safe from COVID-19.
  23. Like
    Susan Cornett got a reaction from Tom Galli in Scan Coming Up   
    Hello and welcome to scanxiety! We all go through it every time we scan. I don't know that it ever goes away. Mine kicks in about a week ahead of time. Ugh.
    Unfortunately, recurrences do occur but they can be treated and survived. Several of us have had a couple of occurrences and here we are! As my scans approach, I find myself with lots of nervous energy so I do things like organizing closets and drawers. Others take trips (back when we could travel - LOL). Maybe binge watch some series you've been considering? Anything to keep your mind occupied.
    I'll be keeping good thoughts for you. Please let us know the results.
  24. Like
    Susan Cornett got a reaction from Tom Galli in My trip into the "real" world.....   
    Thanks, Tom. I needed to hear that - I look to you as a barometer for the situations we encounter. 😉
  25. Like
    Susan Cornett reacted to LouT in My trip into the "real" world.....   
    Like many of you I've stayed home for the most part.  I've made a few trips to drop things off at the memory care unit where my wife is.  They are in lockdown for the last 12 weeks, but I do get to speak with her daily.  I too had to go to my dentist and they did have shields on as well...it's all pretty surrealistic out there right now.  I've also been hearing that cases are rising here in NC, but information is sometimes scant (is it infections or case or hospital admissions, etc.), so I "mask up", keep hand sanitizer on me and a small spray bottle with bleach solution to clean things I have to touch.  Having to stay home has allowed me to do major projects around the house, but they're all done and frankly I need to get out a bit...I guess I'll continue to load my car up with my two pooches and take them for a ride (they love rides)...
    Stay safe everybody...
    Lou
×
×
  • Create New...