After my first drainage, a sample was sent off to the cytology department and came back with a positive EGFR mutation status. Tarceva (elotinib 150mg) was initially prescribed but it caused havoc on my liver so I was then put on Iressa (gefitinib 250mg). So far so good. Had a CT scan on Wednesday and everything seemed to be stabilised.
I do understand that being at stage 4, my condition is only treatable, to delay the inevitable. I am grateful for each day and I try to make the most of my time. I have a husband of 28 years and three adult children. All of us have adopted a positive attitude and I do live my life as normal as possible.
I live in Western Australia and unfortunately there is no support group here. I have tried to sign up with Lung Foundation Australia but somehow the website does not recognise my email address and I have no reply from anyone. Hence the reason I have reached out to you. Thank you very much for taking me in.
Next Sunday, 22/05, I shall be taking part in a 4km run/ walk (HBF - run for a reason) to raise funds towards Lung Foundation Australia. I have a lot of support, mainly from my children's friends. I am very blessed.
Your stories here have given me a lot of encouragement. You are all my heroes!
Keep on keeping on!!!