LaurenH
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Posts posted by LaurenH
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Hi, Kleo! It's good to have you back! Thanks for the update and we're glad to hear that things are going well!
Have a wonderful weekend,
Lauren
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Digital Community Manager
LUNGevity Foundation -
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Hi, Helen,
I'm glad that you've connected with some of our members. If you have questions or would like information about lung cancer treatment and managing emotional and financial challenges, the LUNGevity Lung Cancer Helpline is a fantastic resource. The Helpline offers toll-free, personalized support from oncology social workers. You can receive referrals to financial assistance resources for needs including pain medication, homecare, childcare, medical supplies, transportation for treatment, and copayment assistance. The number is 844-360-LUNG (5864), Monday through Thursday, 10:00 am to 6:00 pm, and Friday, 10:00 am to 5:00 pm Eastern time.
I'm also happy to provide you with information about LUNGevity's other patient education and support programs. We are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Thanks for the update, Kleo! In this case, it sounds like no news is good news! I hope you get some relief from the muscle spasms soon though.
Robert, we're thinking of you this week and hoping you can report good scans!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Susan,
You are not alone! I am glad to see that you've already connected with several moderators and members on this site. This is a great place to find support, information, and hope! Please continue to post updates and ask questions.
I am happy to provide you with information about LUNGevity's support and education resources. If you have nutrition specific questions, I'd recommend reaching out to the experts at Savor Health, who have partnered with LUNGevity on our Experts Nutrition blog. Here is the link to submit a question: https://lungevity.org/savor-health-nutrition-blog-questions
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
12 hours ago, Susan Cornett said:
Katie B. and I were interviewed for local news today. The story was about the stigma associated with LC. We can chip away at the stigma a little more each day...
It was a great segment, Susan! I think you and Katie did a fantastic job challenging the stigma!
L
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Hi, Simeon,
I'm sorry it's been a difficult time for you. This conversation is in one of the online discussion forums, so it's not a private chat. When you post in a forum, all members on this site can see the content and reply. If you want to send a private message to a specific user, you can do so by clicking the envelope icon at the top of the page. If you'd like your post to be visible to all LCSC members, this is a good place to post so that more people can respond.
We are here for you. How can we help?
Lauren
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Digital Community Manager
LUNGevity Foundation -
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LUNGevity Foundation, the nation’s leading lung cancer-focused organization, announced the funding of two research teams that will focus on lung cancer interception: catching precancerous cells and blocking them from turning into cancer cells. These awards are the first-ever Stand Up To Cancer awards focused on the early detection and interception of lung cancer and build on LUNGevity’s eight-year direct investment in critical early detection lung cancer research.
"Finding lung cancer early, when it is most treatable, is a critical step to saving thousands of lives," said Andrea Ferris, President and CEO of LUNGevity, "especially since currently only 15% of patients are diagnosed at this stage. Our long-term strategic focus and investment in finding better ways to detect, diagnose, and now intercept lung cancer in its earliest stages is strengthened by this collaboration with SU2C and the American Lung Association’s LUNG FORCE initiative. It is our goal to find noninvasive, widely available diagnostic and early detection tools that will dramatically change outcomes for people with lung cancer.”
The interdisciplinary and multi-institutional awards include a Lung Cancer Interception Dream Team, and a Lung Cancer Interception Translational Research Team.
SU2C-LUNGevity Foundation-American Lung Association Lung Cancer Interception Dream Team: Intercept Lung Cancer Through Immune, Imaging, & Molecular Evaluation (InTIME)
Funding: $5 million
Leader: Avrum Spira, MD, professor of medicine, pathology and bioinformatics, and director of the Cancer Center at Boston University-Boston Medical Center
Co-leader: Steven Dubinett, MD, associate vice chancellor for research at UCLA and director of the lung cancer research program at the Jonsson Comprehensive Cancer Center
The Lung Cancer Interception Dream Team will develop diagnostic tools, such as nasal swabs, blood tests, and radiological imaging, to confirm whether lung abnormalities found on chest imaging are benign lung disease or lung cancer. To protect against recurrence of disease that has already been successfully treated, new blood tests will help identify patients at the earliest stages of recurrence, enabling timely interventions such as immunotherapy.
"We plan to develop technology that can, in a very sensitive way, pick up the small amount of DNA that might be present in the blood of someone who’s harboring a lung cancer deep within their lung tissue – a noninvasive way of measuring a person’s risk of having lung cancer," Dr. Spira said.
SU2C-LUNGevity Foundation-American Lung Association Lung Cancer Interception Translational Research Team: Blood-based Early Interception of Lung Cancer
Funding: $2 million
Leader: Lecia Sequist, MD, MPH, associate professor of medicine, and director of the Center for Innovation in Early Cancer Detection (CIECD) at Massachusetts General Hospital
Co-leader: Maximilian Diehn, MD, PhD, assistant professor of radiation oncology, Stanford University School of Medicine
The Lung Cancer Interception Translational Research Team will develop a lung cancer interception assay (LCIA) that can be used in conjunction with low-dose CT scans, based on blood-based assays that examine circulating tumor cells and circulating tumor DNA. After completing pilot testing as part of this Translational Research Grant, the team plans to move the LCIA forward to larger, prospective clinical trials.
"It’s extremely frustrating that we’re not technically able to find lung cancer earlier in the majority of patients,” Dr. Sequist said. “We need to change the paradigm that we use to identify patients so that they are found early enough to offer them curative treatment. If we really want to save more lives from lung cancer, we have to exponentially improve our diagnostics."
LUNGevity is the only lung cancer nonprofit with a programmatic focus on funding early detection research, to find lung cancer when it is most treatable. Currently, only 15% of people with lung cancer are diagnosed in the earliest stages, resulting in a 5-year survival rate of only 17.7%. These projects expand on LUNGevity’s eight-year investment in early detection research with the goal of developing an effective, widely available, noninvasive way of finding lung cancer early in all populations.
Click here to read the full press release.
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Hi, Jennifer,
I'm glad that you and Jay are home! Keep us posted on the clinical trial. We'll be thinking of you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
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Thank you for sharing, bluesky!
Lauren
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Digital Community Manager
LUNGevity Foundation -
Here is the weekly clip report, including two big announcements from LUNGevity:
MedCity News
“A Snapshot of Personalized Medicine in Practice”
https://medcitynews.com/2017/10/snapshot-personalized-medicine-practice/PR Newswire
“Alexander F. Stern Named Chairman of the Board of LUNGevity Foundation”
http://www.prnewswire.com/news-releases/alexander-f-stern-named-chairman-of-the-board-of-lungevity-foundation-300533962.htmlMarkets Insider
“Marc Swerdlow Named Vice-Chairman and Treasurer of the Board of LUNGevity Foundation”
http://markets.businessinsider.com/news/stocks/Marc-Swerdlow-named-Vice-Chairman-and-Treasurer-of-the-Board-of-LUNGevity-Foundation-1003678880Cure Today
“Tagrisso Approved for Frontline Lung Cancer Treatment”
http://www.curetoday.com/articles/tagrisso-approved-for-frontline-lung-cancer-treatmentMedical News Bulletin
“Can Genetic Screening Improve Lung Cancer Prognoses?”
https://www.medicalnewsbulletin.com/gene-screening-lung-cancer-prognoses/Cure Today
“Personalized Treatment Needed for Advanced Lung Cancer”
http://www.curetoday.com/articles/personalized-treatment-needed-for-advanced-lung-cancerMedical Xpress
“A New Class of Drugs Aims to Exploit Cancer Cells’ Weaknesses”
https://medicalxpress.com/news/2017-10-class-drugs-aims-exploit-cancer.htmlPR Newswire
“Stand Up To Cancer Awards Moffitt $2.67 Million to Study New Lung Cancer Immunotherapy”
http://www.prnewswire.com/news-releases/stand-up-to-cancer-awards-moffitt-267-million-to-study-new-lung-cancer-immunotherapy-300535599.htmlLos Angeles Times
“Curing Cancer Isn’t Always the Goal. Sometimes You Just Want It to Be a Manageable Chronic Disease”
http://www.latimes.com/science/healthy-living/la-he-hl-cancer-cure-20171012-story.htmlLos Angeles Times
“With Cancer, It’s Not Necessarily Where It Starts but Hot It Starts”
http://www.latimes.com/science/healthy-living/la-he-hl-cancer-genetics-organ-20171012-story.htmlThe Wall Street Journal
“Immunotherapy Treatments for Cancer Gain Momentum”
https://www.wsj.com/articles/immunotherapy-treatments-for-cancer-gain-momentum-1507825152 -
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xrays
in NSCLC GROUP
Hi, bes,
Your husband is lucky to have his own personal helicopter! This is a tough disease and I'm sure he is very grateful for your support. I'm glad you've connected with so many of our members already and have gotten answers to some of your questions. Please feel free to keep exploring the discussion boards and blogs and join in the conversations when you're ready. I am also happy to help you find more information and support resources through LUNGevity, so do not hesitate to message me. We'll be thinking of you and your husband this week. Please let us know how the appointment goes on Tuesday!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Mohan,
Welcome to LCSC. I am sorry to hear about your father's diagnosis. This members on this site are survivors (many long-term) and caregivers with a wealth of experience navigating a lung cancer diagnosis. They can provide encouragement and share their experience and in some cases, advice.
If you post in the Introduce Yourself forum, more members are likely to see it and respond. Here is a link: http://forums.lungevity.org/forum/3-introduce-yourself/
Please let me know if you have any questions about this online community. I am also happy to provide more information for you about LUNGevity's support programs and resources. We are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi Stephanie,
Just wanted to check in and see if you have your CT results. If you have any more questions once you have the results of your tests and more information about your treatment plan. I hope that you can get some answers soon. We're here for you when you're ready.
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Jane,
I'm glad that you've joined this community and that you connected with Nikole. LifeLine is a wonderful program and Nikole does an incredible job helping people connect with the right mentors. Please do not hesitate to reach out and remember that we are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Jephkay,
That's wonderful news! We are very happy for you both. Please continue to keep us posted!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Anna,
Welcome to LCSC. I am sorry that you are going through a difficult time. I am happpy to see that you've already connected with some of our members. This community is made up of survivors (including many long-term survivors) as well as caregivers and advocates. Many people are willing to share their own personal experiences and offer encouragement and advice.
Please feel free to explore the message boards, ask questions, and join in on any conversation that resonates with you. I am happy to provide you with resources and information about LUNGevity's Support & Survivorship program. Please do not hesitate to reach out and remember that we are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Darleen,
Welcome to LCSC. I am glad to see you've already connected with Tom and Susan. Lung cancer can certainly be overwhelming. Like Tom and Susan said, sometimes the best advice can be "Just keep living!" If you're familiar with the movie Finding Nemo, you can picture Dory saying it. Please feel free to explore the message boards, ask questions, and join in on any conversation that resonates with you. I am happy to provide you with resources and information about LUNGevity's Support & Survivorship program. Please do not hesitate to reach out and remember that we are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, Deana,
Welcome to LCSC. I am sorry that you and your family are going through this difficult time. I am glad to see that you've connected with several of our members. This community is full of people with experience navigating a lung cancer navigation, either their own or a loved one's. If you'd like, I would be happy to provide you with more information about LUNGevity's Support & Survivorship programs. Here is a link to our Caregiver Resource Center. Please continue to keep us posted on your dad's status and know that we are here for you!
With gratitude,
Lauren
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Digital Community Manager
LUNGevity Foundation -
Hi, bes,
I am sorry to hear about your husband's diagnosis. We are glad that you've joined this forum. This is a great place to connect with other caregivers and talk to survivors who have experience navigating a lung cancer diagnosis. Please feel free to explore the message boards, ask questions, and join in on the conversations. I am also happy to provide additional resources and information about LUNGevity's Support programs. Please do not hesitate to reach out!
We are here for you.
With gratitude,
Lauren
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Find A Cure Panel specializes in patient research for rare and serious disease and they have some current research for people and caregivers of people with Small Cell Lung Cancer (SCLC).
To qualify for this research, you or your loved one with Small Cell Lung Cancer (SCLC):
1) Must have a diagnosis with Small Cell Lung Cancer (SCLC).
2) Be over 50 years old.
3) Have EXTENSIVE SCLC. Sometimes referred to as stage 3, stage 4 or metastatic SCLC.
4) Must have some experience with smoking. If you/your loved one NEVER SMOKED then you won’t qualify, unfortunately.
5) If you are a caregiver, you must be knowledgeable about your loved one’s condition and treatment.
6) If you are a caregiver who recently lost your loved one with SCLC, you can still participate if you lost your loved one in the last 12 months.
It is easy to participate in. It’s one confidential and anonymous phone call with one moderator talking about your experience with Small Cell Lung Cancer (SCLC).
If you are interested in participating, please contact FACP at info@findacurepanel.com and reference FACP/SCLC
Mom newly diagnosed with Stage IV NSCLC
in SHARE YOUR LUNG CANCER STORY
Posted
Hi, Katum31,
Welcome to LCSC. My name is Lauren and I'm the Digital Community Manager for LUNGevity Foundation.
I'm glad to see that you've already connected with a few of our members. This community is a great place to find information and support. Please feel free to explore the message boards and blogs, ask questions, and join the ongoing conversations.
In addition to these forums, LUNGevity also has a robust Lung Cancer 101 website, free patient educational materials, a Survivor and Caregiver Resource Center, peer-to-peer support programs, a toll-free Lung Cancer Helpline, survivorship conferences, and lunch and learn events. You can explore more here: https://lungevity.org/for-patients-caregivers
Please let me know if you'd like any additional information about LUNGevity's Support & Survivorship Programs.
We are here for you!
With gratitude,
Lauren
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Lauren Humphries
Digital Community Manager
LUNGevity Foundation