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LaurenH

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Posts posted by LaurenH

    Brand New

    in NSCLC GROUP

    Posted

    Hi, Jeffery,

    I'm happy to read your great news! We'll be thinking of you on the 12th and hoping for even more good news after your surgery. Please keep us posted!

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Hi

    in INTRODUCE YOURSELF!

    Posted

    Hi, Julie,

    Welcome to LCSC. I am very sorry for your loss. Lung cancer is a terrible disease. I will reach out to our support team to see if we can connect you another former caregiver.

    With gratitude,

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Newly Diagnosed NSCLC

    in INTRODUCE YOURSELF!

    Posted

    Hi, Dani,

    Welcome to LCSC. I am sorry it has been a difficult few months, but you have come to a great place to connect with other patients/survivors in similar situations. You are definitely not alone! 

    I became involved with LUNGevity after my uncle (now a 5 1/2 year survivor) was diagnosed with Stage IV NSCLC in 2011. He is also ALK-positive with brain mets. Early in his treatment, he underwent chemo, radiation, and  few surgeries. He started taking Xalkori shortly after it was approved by the FDA, with very positive results. About a year ago, he switched to Alcensa and he's doing well on that targeted therapy.

    I will reach out to some of our other members who have ALK and encourage them to respond in this thread. In the meantime, please feel free to explore the discussion boards and blogs. If you have any specific questions, feel free to post them, or let me know if you'd like more information/resources about a particular topic.

    We are here for you!

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Need info on IMRT Radiation versus Standard 3D Radiation?

    in RADIATION

    Posted

    Hello!

    Here is an explanation of both types of radiation from LUNGevity's Lung Cancer 101 website:

    INTENSITY-MODULATED RADIATION THERAPY (IMRT)

    IMRT is an advanced form of 3D therapy. IMRT modifies the radiation by varying the intensity of each radiation beam. This technique allows a precise adjustment of radiation doses to the tissues within the target area, possibly allowing a higher radiation dose to the tumor and keeping more radiation away from nearby normal tissues. Many major hospitals and cancer centers now use IMRT.

    THREE-DIMENSIONAL CONFORMAL RADIATION THERAPY (3D-CRT)

    3D-CRT uses special computers to precisely map the location of the tumor. Radiation beams are shaped and aimed at the tumor from several directions, which makes them less likely to damage normal tissues.

    Here's the link to the page if you'd like to read about other types https://www.lungevity.org/for-patients-caregivers/lung-cancer-101/treatment-options/radiation-therapy

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Shocking news

    in GENERAL

    Posted

    Hi, Lbelle,

    Just wanted to check in and see how you're doing. Please know that we are here for you and share an update when you can.

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Hi there!

    in INTRODUCE YOURSELF!

    Posted

    Hi, Nichole,

    Welcome to LCSC. This online community is a great place to connect with other survivors and ask questions and share experiences. I can encourage some of our younger members and members who are on targeted therapies to respond to this thread. Please let me know if you'd like additional resources or support and I will be happy to connect you.

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Hello All! My handle on this forum I believe is bigheart.fg, and I am a Cancer Rookie!

    in INTRODUCE YOURSELF!

    Posted

    Hi, Fred,

    Here is the link to the Targeted Therapy section of LUNGevity's Lung Cancer 101 website that Tom mentioned: https://www.lungevity.org/for-patients-caregivers/lung-cancer-101/treatment-options/targeted-therapy

    There is a lot of information plus a video on this page that explains diagnostic testing for genetic mutations in tumors. We are here to answer your questions!

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Hello All! My handle on this forum I believe is bigheart.fg, and I am a Cancer Rookie!

    in INTRODUCE YOURSELF!

    Posted

    Hi, Fred,

    Welcome to LCSC. I'm glad to see that you've already connected with Tom and Susan. I hope that you make many meaningful connections on this site. Please feel free to explore the blogs and discussion boards and join in on any conversation that resonates with you. And, like Tom and Susan said, when you have questions, fire away!

    I'm glad you were able to move forward with the biospy and PET scan. I hope you get good news from the insurance company. Keep us posted!

    With gratitude,

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    Newly Diagnosed

    in INTRODUCE YOURSELF!

    Posted

    Hi, Ringo,

    Welcome to LCSC. We're glad you've joined this community. Please feel free to explore the discussion boards and join in any conversations that resonate with you. When you're comfortable, feel free to ask questions or share more information about your diagnosis and treatment.

    Tom is right about LCSC being different than other sites and forums. Everyone here has been affected by lung cancer in some way, either as a patient/survivor, caregiver, or advocate. We are here to support each other and learn from each other's experiences. I first started working for LUNGevity in 2011 when my uncle was diagnosed with Stage IV ALK. Last September, we celebrated his five-year milestone.

    When you're ready, fire away with any questions you may have for us!

    With gratitude,

    Lauren
    --
    Lauren Humphries
    Digital Community Manager
    LUNGevity Foundation

    Caregiver to mom who's been diagnosed with Stage 4 Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    Hi, MG,

    It sounds like she is just as lucky to have you as you are to have her! Please continue to keep us posted. As Katie mentioned, we have support programs for survivors and caregivers, and I'm happy to provide you with more information or help you find resources. Several members on this site have experience with Tarceva, so I'll encourage them to join this conversation.

    With gratitude,

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    New to the forum

    in INTRODUCE YOURSELF!

    Posted

    Hi, Butterfly,

    Welcome to LCSC. I'm glad that you've already connected with Susan. She is a great resource! Please let us know if you have any other questions or would like more information/resources about lung cancer.

    With gratitude,

    Lauren
    --
    Lauren Humphries
    Digital Community Manager
    LUNGevity Foundation

    Re-Introducing myself

    in INTRODUCE YOURSELF!

    Posted

    Sarah, I don't think it's corny at all! I think that is a great mindset! You have been through a lot, but I'm glad you're able to find so many silver linings and that you've found solace in running. Hoping for good news on May 22! Please keep us posted.

    With gratitude,

    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation

    P.S. We'll be your back up singers! 

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