LaurenH

Susan,
I am so glad to hear your good news!! Congratulations! We are eternally grateful for YOU and all you do for this community!
With gratitude,
Lauren
--
Digital Community Manager
LUNGevity Foundation

Thank you to each & everyone of you for your beautiful & helpful responses. I'm hoping I can give back to people on this forum by giving helpful information. I believe even if one person is helped, that's better than none. I'm learning too with all of this stuff and it's very overwhelming & seems there is always something new to learn about & research.

Thank you so much. That gives me much hope & inspiration.

You will find many long term (10+ year) survivors here; I'm in awe of them. They have shared so much information, wisdom, and inspiration. They keep me moving forward, and I hope they can help you and your mom.

Welcome.  I hope that you'll find information and hope in this forum.  It has been a life saver for me.  There are many wonderful people on this site who have walked a mile in your shoes.  Let us know how we can help you.  

I made it 9 months after my treatment before a recurrence was found earlier this year.  I had one misbehaving lymph node near my aortic arch so it couldn't be surgically removed.  Between March 21st and July 14th, I had a biopsy, 30 rounds of radiation, 8 rounds of chemo, and lost all of my hair.  But, it was worth it because I received my CT results today and I'm NED!!  I'll have a PET scan in about 8 weeks just to ease Super Doc's mind and, if all clear, I'll resume my 90 day scan cycle.  
As always, I'm eternally grateful for the friends and resources available on this site.  
 

Hi Pegi  hope everything is a little better with Lee's pain. And recovering . just checking in with you prayers and hugs.  michele

I too like that tee shirt , and your smile. 
Laughter is good medicine !
Donna G
 

Great shirt and wonderful smile.  I admire you, you have such a great attitude.  
ViviAnn

YES - YES - YES - YES and once more with gusto!  YES!
Stay the course Susan!
Tom

Isn't the shirt great?  Got lots of smiles from my fellow baldies at the oncology center.

Hi, Sherry.  It's hard not to get overwhelmed by all of the new information, appointments, treatments, etc.  For me, it was a total lack of control of my schedule and my life that drove me crazy.  But it sounds like you have a great support system and that really helps.  I shaved my head a few weeks back and had a couple of guy friends shave theirs in solidarity.  I went to my oncology appointment today wearing a t-shirt that says "My oncologist does my hair."
Keep us posted on your progress.  We're here for you.

Hi, Sherry,
Welcome to LCSC. I'm sorry you've been through so much lately. We're glad that you found this community. It is a great place to connect with others who are navigating a lung cancer diagnosis and to share experiences. Please feel free to explore the discussion boards and join in on any of the conversations which resonate with you. When you have more information about your diagnosis, this community is a good place to ask questions. I am also happy to give you some information on LUNGevity's support programs. In the meantime, know that we are here for you!
With gratitude,
Lauren
--
Digital Community Manager
LUNGevity Foundation

Vivian,
Have you installed the LUNGevity Lung Cancer Navigator app available on Apples App store?  When I accessed the site through the Safari browser on the phone, I had many log in problems. Now with the app, I have none.
Hope this helps.
Stay the course.
Tom 

Nan,
My mom, who is obese with controlled diabetes, had her upper, right lobe removed over 1 year ago.  She had a large incision and still feels pain from it and pain under her shoulder blade.  After about a month of recovery, my mom started to breathe better.  She had to have fluid removed from her lungs a few times and still has fluid around her lung over 1 year later - her doctors say that's normal and the fluid continues to decrease.  Both of these issues affected her breathing to begin with.  She didn't breathe well before the surgery but breathes much better now, but she had to work up to it.  Once she was done with her cancer treatment after surgery, she attended a pulmonary exercise class at our local hospital.  She has attended regularly for many years as she needs it and it does wonders - they monitor your oxygen level and heart rate.  As others said, she also does water walking a few times a week.  Although she doesn't lose weight, she keeps her muscles in shape and gets her breathing up.
She also swears by her CPAP (as others have said, if he hasn't had a sleep study, he should).  Although she was on oxygen after surgery, she is no longer on oxygen full time.  She does have oxygen piped into her CPAP while she sleeps and it helps with her O2 levels throughout the day.  Finally, (as others have said), my mom also swears by her adjustable bed so she can sleep in an elevated position when needed.  She used a wedge pillow for many years and when my parents needed a new bed, they just decided to get an adjustable one.
I hope some of this info helps or provides some hope. Your husband's breathing will likely get better. Might he need to be on oxygen full time? - maybe. but if my mom was able to get off of oxygen full time thru exercise, there's a chance your husband can too.  

Nan,
Welcome here.  Teri's stated good points.  In addition, I add having him sleep in an elevated position using triangle pillows available at mattress supply stores.  This helps transfer the body weight from the back to the hips and eases incision pain. Do you have access to a pool?  After his stitches (staples) are removed, it the surgical area is still painful, he might sit  submerged up to his shoulders to relieve the gravitational pressure in his incisions.  I, unfortunately, had a lung removed and they needed to return two times to deal with complications.  I use the pool every day and it is welcomed relief for my chronic incision pain.  Has he been tested for sleep apnea?  If he does and he does not use a CPAP, his breathing will be complicated by the surgery.  The oxygen will help but body weight and sleep apnea are companion problems.    
His is an early find and you should look forward to a resolved cancer but reduced lung capacity and weight will be a problem.  So work on the weight reduction and enjoy quality of life without cancer.
Stay the course.
Tom

Hi, nan,
I just had similar surgery--fortunately, I was able to get the VATS.  I'm sure that larger incision of his has to be painful.  I'm almost completely recovered nearly three weeks after my surgery.
You might want to try to encourage him to work with a nutritionist to try to get his weight down.  I had been working on weight loss when I was diagnosed but had lost about 42 pounds (on purpose) before that happened--I have no doubt losing the weight helped speed my recovery.  If he can drop some weight and get a bit more active that would probably do wonders for his overall health, including the diabetes.  Stage 1a is good news, as these things go--but the other health problems from the weight can be as lethal as cancer.  
Glad you're here--there are some very kind and knowledgeable people here!
Teri

Hi Nan and welcome,
Everybody who replied said all the things I would have  said==sleeping elevated, the pool, etc. 
I also had  1A adenocarcinoma. I was lucky to be able to have VATS for my lobectomy. My surgery was last November and I'm doing well.
I wish all the best for you and your husband. You'll find hope and help on this forum, I think.
Bridget

Whether you walk/run across the finish line, it still counts! Good luck with your training! Keep us posted!
With gratitude,
Lauren
--
Digital Community Manager
LUNGevity Foundation

Thanks Tom,  I love reading your posts and all the info you share....you are truly a role model and can easily lift ones spirit and hope....

Vinnpal,
Welcome here.
I'm a lung cancer survivor with 18 total taxol and carboplatin infusions and after each one, my red and white blood counts bottomed out.  I received injections of Procrit and Neulasta about 3 days after each infusion to boost counts.  That worked.
My appetite also hit bottom.  Everything tasted horrible.  One day, my wife made chocolate mint ice cream with crushed Oreo cookies.  I don't normally like mint but the chemo must have altered my taste buds enough to love it.  I devoured chocolate mint ice cream every chance I could and didn't loose much weight.  So grab a bunch of Ben and Jerry odd-ball flavored ice cream pints and see if you like one.  That will fattens you up; even try mint!  
I've also missed both radiation and chemo sessions due to illness and low counts.  These were rescheduled but a 2 week delay shouldn't effect your treatment.  Doctors safe-side the treatment frequency to account for treatment delays.  Moreover, I was told that chemotherapy agents remained in my body for a month or more after my last infusion.  I'd worry more about your diet than the 2 week delay.
Stay the course.
Tom

Hi Lexie.....thanks and your right, this is really a great site, not only are the people so caring and informative, but the more I keep reading the posts I keep finding little tips and info to ask in my next appoint... its also a feel good place when  talking to people who are going thru the same fears and anxieties that I am....so glad were all here....vinnie

Hi, Vinn,
You made it!  Just wanted to welcome you.  So far I've not had to go the chemo route, so I'm afraid I'm no help at all there, but the other folks here are very generous in sharing their knowledge.  Glad you're here with us.

Wow, that is quick.  my prayers to you, and all here.  Doing very well on quitting.  Started Chantix immediately and have cut down significantly, about a third from normal.  In fact, have plans on putting them down for good later today.  It's been much easier than I expected, and my husband is quitting with me so that helps.  Thank you for the positive.  It seems like Tues and Weds are so far away, though.  I'm trying not to think about it.  Just keeping myself busy at home.  I can't say thank you enough to you and everyone.  So happy I found this site so soon.

thank you