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wkephart

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Everything posted by wkephart

  1. two degrees of SCLC, limited and extensive. for limited, the treatment is usually chemo + radiation. for extensive, the treatment is usually chemo only. sounds like you might be extensive. ask your Dr. first line chemo is often a platinum drug (cisplatin or carboplatin) with either etoposide or irinotecan. cisplatin seems to be more agressive but the side effects tend to be more severe than with carboplatin. jury is out on etoposide vs. irinotecan. japanese study suggest a couple months extra survivability with the irinotecan but i've seen some posts where the irinotecan didn't seem to work. personally, i requested cispatin+irinotecan for my ESCLC. worked great for about 8 or 9 months. good reduction in tumors. some gone. pleural effusion also cleared up without having to drain. here are some websites to search for information: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi http://www.jco.org/ http://medlineplus.gov/ http://www.medscape.com/ http://www.cancer.gov/search/clinical_trials/ good luck, wray
  2. absolutely!!!! chemo since may '04. CT's every 2 months. each report was interval decrease until nov '04. nov report was NED...... switched to maintainance chemo. jan '05 scan said interval INCREASE's. i got CT images and looked for myself to get some idea of the extent. NOV RADIOLOGIST REPORT WAS WAY WRONG. TUMORS WERE STILL THERE IN NOV. complained to Dr. told "every radiologist reads them a little different". what a bunch of crap! i can understand measuring different points on the tumor and getting different size but not reporting any tumors is simply bad medicine. especially when my chemo was changed as a result. thank you university medical center, radiology dept. get a CD of your scans and review them yourself or take them to another Dr for a sanity check. wray
  3. what was your 1st line treatment? i had 6 mos of cisplatin/cpt11 (irinotecan). excellent results. switched to a maintainence/cleanup regimine of cpt11 only for 2 mos. no go. things started coming back. did two more months of cisplatin/cpt11 doesn't work anymore... started gemzar/navelbine yesterday. chemo every two weeks with CATs every two months. let me know how your next scan turns out and i'll do the same. has anyone else used other drugs for relapsed ESCLC? and what results? wray
  4. wkephart

    CAV

    no personal experience but look here for info: http://www.cancerbacup.org.uk/Treatment ... /CAVregime was talking with one of the chemo nurses about doxorubicin last week. she indicated that it's hard on the heart. i don't know in what way... wray
  5. wkephart

    Cured!

    congratulations.......... i'm curious, were you DX with extensive or limited small cell? and what was the treatment? wray
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