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marc9338 last won the day on July 5 2016

marc9338 had the most liked content!

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  1. Hi Marc,

    I was thinking of you lately & wondering how things are going for you. Hadn't seen anything from you for a while & missing your infectious optimism & spirit. Hope all is well as can be.


  2. Julie, Great to hear from you... However, sorry about the hurdles you've had. Sounds like things are getting back on track, which is great. I am finishing my 4th week of Crizotinib for ALK mutation and feeling good. I was at MD Anderson today for a second opinion. The MDA Onc felt my local Onc was doing all the right things. The only recommendation was to have a brain MRI to insure no brain mets. He didn't feel like there were any, but wanted to rule out completely. Continuing to be positive and look towards the future. I have met A LOT of people who are doing really well on targeted therapy. I think EGFR+, ALK and ROS1 patients we are going to start seeing the stats change (get better) as more and more people are treated with the new med options and as time continues to pass. Let me know if there is anything I can do for you... Praying for you... Marc
  3. Not taking Opidivo, but sounds like things are moving in the right direction. I am Stage 4, with ALK mutation. Mine had also spread to the hips (pelvic, femur, lower spine). I am taking oral chemo only. All the aching in my hip area had pretty much gone away. I have my next scan in 2 weeks and believing there is going to be BIG improvements. Hope you stay the course and continue to improve. I'll be praying for you. Marc
  4. Randi - How are you and your loved one doing?
  5. Hang in there Dick. Keep your head up. I am praying for you... Marc
  6. Randi - take a look at this website. Might be helpful on the financial front... www.lungcancer.ord/find_support/financial Marc
  7. Julie, Good to hear from you. I am feeling great actually. I've been on oral chemo for 1.5 weeks now and expecting good results. Glad you were able to get in to some alternative therapies so quickly while you wait. Waiting is absolutely the most frustrating part, especially when you feel/know time isn't on your side. I am very interested in your alternative treatments and would like to hear more about what they are and outcomes. Keep me posted. Praying for you... Marc
  8. While preparing breakfast for myself yesterday, I had a thought... The question that triggered the thought was... why does it have to be so hard to eat healthy? After pondering on the question and figuring out what I would ultimately eat for breakfast, it hit me... There are a lot of cancer patients, ex-cancer patients, people who have cancer in their family, etc. (millions and millions). Why isn't the market place doing more to help us eat better. With that in mind, I've decided to tackle this problem. But, before I dive in to far, I wanted to see if anyone knows of other people/organizations which might also be trying to solve for this? I work in the Consumer Packaged Goods industry (big fancy words for food) and want to kick off an initiative to challenge the industry (food companies and retailers) to help us eat better. A few thoughts... 1) carve out a section in grocery stores for food choices/options approved by notable cancer centers (i.e MD Anderson, etc.) 2) encourage food manufacturers to create/distribute foods that are cancer friendly (preventive, chemo complimentary, etc.) 3) put simple and cost effective ideas/recipes in our hands (mobile app, kiosk, in aisle,etc.) 4) encourage manufactures/retailers to donate product/dollars to help those less fortunate eat healthy (control the controllable) Through and initiative/challenge like this, greater awareness of lung cancer (all cancers) could be achieved. People are watching less and less commercials on tv these days due to TiVo and the like, however people are still walking the aisle of grocery stores everyday and are a captive audience. Any thoughts? Any advice? Any connections (retailers, manufacturers)? Anyone interested in the endeavor? Thank you, Marc
  9. Julie, Checking in... How are you doing/feeling? Hope you are getting things figured out and on a path forward. Let me know if I can do anything for you. I am praying for you and your family... Marc
  10. Randi, Checking in... How is your loved one doing? Was he able to get medical treatment? Anything I can do for you? I am still praying for the two of you... Marc
  11. Great news... Keep the faith and positive attitude and you will keep winning! Marc
  12. I am in Dallas, TX. Thank you for your prayers.
  13. Julie, Thanks for joining/sharing. I was diagnosed with stage 4 about 6 weeks ago. I tested positive for ALK mutation and began targeted therapy the end of last week. I feel great... the fight is on... I love your attitude and your faith... Our God is BIG and MIGHTY and I have been on fire since day 1. I would encourage you to read the book of Mark. On the spiritual front, one thing I noticed in Jesus's teaching was... many of the people Jesus healed, he would say "your faith healed you". I believe our faith (attitude) is an equal factor in our cure. Keep the faith... Also, I love your reference of the Holy Spirit. Romans 8:26 "the Holy Spirit helps us in our weakness. For we don't know what to pray for as we ought, but the Holy Spirit prays for us with groaning that cannot be expressed in words". I heard this, this week. The Holy Spirit lives in you as a Christian and know the Holy Spirit is interceding on your behalf. Pretty awesome stuff... I will be praying for you and your family. Keep your head up and take focused on the end goal... Marc
  14. Thanks Lauraen... I've been on crizotinib for 4 days now. No side effects so far. Had a follow up with my Oncologist today. She continued to be optimistic and confident in the plan. Every day my eyes open is a gift from God. Marc
  15. Anyone have trouble swallowing the Crizotinib capsules? I am not a great pill swallower, but I have to get past this. Any recommendations? Thank you, Marc
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