Jump to content

CharlieD

Members
  • Posts

    473
  • Joined

  • Last visited

Everything posted by CharlieD

  1. CharlieD

    My Guy

    AWSOME KASEY!!!!!! You go girl. CharlieD
  2. Don and Lucie, God Bless You. God Bless You Both. Such great news from such great people. I'll definitely have one on that. CharlieD
  3. Carleen, So sorry for your loss. God Bless. CharlieD
  4. All right Jimben. Fantastic news!!!! CharlieD
  5. CharlieD

    STABLE!!!!

    Tracy, Great news!!!!! Your'e never alone here. Stable is fantastic. God Bless. CharlieD
  6. Hi Shirley, Sorry to hear about your father but glad you found us. It sounds extremely strange that your ONC would give up after two Chemo Regimens. Check some of our Bios and you will find many of us have survived years with several Chemos, radiation and new procedures. You didn't mention where you are located, but you must be relatively close to a National Cancer Institute.They are the experts and until you get their opinion, you won't know what is out there. They are extremely helpful. ONCs comein many forms, but the experts are at NCCs. Good luck and God Bless. CharlieD
  7. CharlieD

    TAnn at Peace

    Don, My heart breaks as I read your post. What a classy lady. The Kingdom of Heaven is certainly a better place today after receiving Teri. God Bless and comfort Al and his family. CharlieD
  8. Sue, God Bless you my friend. May you find comfort. CharlieD
  9. Kathleen, Wow, sounds so familiar. I just finished Brain Radiation a week ago and had the same condition as your Mother. I am also on Dexamethisone, 2Mg X 4 initially and cut back now to 2 Mg. They wanted to keep it as low possible, but I took it on myself to raise it to prevent brain swelling. I'm still exttremely fatigued hoping it will let up soon. I don't think I had it as bad as your Mother. but it wasn't fun. How is she doing now? Keep me advised and I'll do the same. God Bless, CharlieD
  10. Carleen, God Bless you for being so strong and dedicated. May your prayers be answered. CharlieD
  11. Don and Lucie, Thanks for the update. God Bless and comfort her and her family. CharlieD
  12. Laurel, Really sorry to hear about your Mother. Many of us have been where she is now and dealing with it is really difficult at times. My original diagnosis was almost identical to hers and that was over two years ago. My fluid was drained and never came back due to the Chemo treatments. Did you get a 2nd opinion on whether she should have Chemo. I would suggest a National Cancer Institute which should be relatively close. They are the experts. There is always hope and if there is any out there, they'll know. Hoping and praying for you and Mother, as you deal with this beast. We're all there for you. CharlieD
  13. Thanks for the update Don. TAnn we are all praying and hoping for better news. God Bless you my friend and keep your chin up. CharlieD
  14. Hi Don. Biafine was given by the Radiation Folks and has really worked well on the ole bald head. Just a little itchiness. Through 10 of 15 WBR. Good luck with it. CharlieD
  15. Hi Pat, Welcome to the site. Sorry you had to find us but glad you did. I have to make it unanimous for a second opinion. You didn't mention your location but you must be in reasonable range of a National Cancer Institute. These people see nothing but cancer patients and believe me, they'll know if it is cancer. I applaud you for wanting to take care of it quickly, but haste can make waste. Just go to the Google Site and type in "NationalCancerInstitutes" and a map will show you where they are located. Click on the closest one and it will give you all kinds of contact info. I did over two years ago and that is why I am under the care of a leading cancer research center at Roswell Park, NY and a two year survivor of this beast and still fighting and doing extremely well. If you are lucky enough to have the disease surgically removed, please make sure it is the right thing to do. As you probably already see, this site is the right place for support and to share and learn from other peoples experience. God Bless you and keep in touch. We care!! CharlieD
  16. Teri, Great to see you back and dealing with it with your usual positive attitude. Glad to hear you are walking around the house and getting by on your own. You always have been a trouper. God Bless my friend and stay in touch. CharlieD
  17. CharlieD

    Gemzar

    Hi Z, I had the combo as my first treatment and it worked well. Stopped pleural effusion and kept me stable for almost a year. Side effects were minimal. I had the full 12 rounds. Good luck with it. God Bless. CharlieD
  18. Beth, It was fine where you put it and it is fine where it is. You got it off your chest and that was the intent and the most important. Keep your chin up. God Bless. CharlieD
  19. CharlieD

    Post-Chemo SOB ?

    Bill, I've had SOB on and off all during my two plus years battle with this beast. The first was rather mild with Gemzar/Carbo, 12 rounds. Then a year later with Alimta, 6 rounds, a little worse for just a few days after each treatment then all hell broke loose after a clinical trial with Zemplar and Gemzar. That was in December and haven't shaken it completely yet, but I've got another battle going on right now with Brain Mets and undergoing WBR. Six out of 15 down and then Gamma Knife if there is any left. With the SOB, I just kept walking as much as I could every day and working through it. Docs said it was from the GEMZAR and that it would gradually decrease which it has slowly. Can't really tell now since I'm on a high dose of Decadron but I don't seem to have as much. Hope it helps and good luck with it. CharlieD
  20. Prayers for Keith and you tomorrow. God Bless. CharlieD
  21. Teri, Really terribly sorry and saddened about your situation. The fight that you put up has been an inspiration to me. You and your husband are two brave souls. Keep your chin up my friend and God Bless and comfort you. CharlieD
  22. You're bragging, Frank!! Maybe wishful thinking even.
  23. CharlieD

    My CT scan

    Great news Kathy. Keep it up whatever it is that you are doing. God Bless. CharlieD
  24. Jimben, Sorry to hear that Avastin didn't do it for you but let's hope and pray that Tarceve does the trick. Hang tough my friend. God Bless. CharlieD
  25. Your Moms condition sounds exactly like mine right at the moment. My last Chemo was in Dec during a clinical trial and I have'nt recovered yet. Always extremely tired along with shortness of breath. I thoughty it might be the results of trying to get off steroids (Decadron) so the Doc put me back on steroids and it hasn't helped much if at all. Also have numbness in the left arm and hand. I have an appt at Roswell Park tomorrow to try to get to the bottom of it. I have confidence they will be able to pinpoint the problem. I will sure keep everyone advised on how it goes. God Bless. CharlieD
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.