[also posted as an intro on another site, hi again if you're on both forums...]
Have been going it alone, as a couple, for about a year now, and want to make sure I'm getting connected to as many resources as possible for my wife. She was diagnosed with adenocarcinoma in lung (stage IV, unknown primary -- they searched all last summer, couldn't find where it came from). She had chemotherapy last August-November, every three weeks, starting with carbo/taxol, shifting to carbo/gemzar for treatments 3-6. (She had an allergic reaction to taxol during the second round.)
Didn't see reduction, but there was no increase or spread. That held until the latest scan. Now it looks like there's some possible spread into the lymph node in the chest next to that lung. We're going to get a biopsy of the lymph node (after a PET scan) and do some genetic testing on it to see whether targeted therapy might be indicated. The onc also wants to do some immunotherapy (Opdivo) in the meantime.
Main question: anyone know other angles or lines of treatment we should be thinking about? And especially, are there any trials out there that we should have on our radar? We're at a well ranked cancer treatment center, and we've been kind of trusting that they know what they're about, but with this latest scary news I want to be a little more proactive about making sure I've got all the facts straight and can ask good questions and do the most we can for my wife.
Any help or suggestions of good resources is very welcome. Thanks.
