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enyaw061032

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    Needlepoint,editing scientific and legal papers, writing, poetry,reading,family enjoyment gatherings, friends, playing piano, painting,drawing
  1. I have had a horrible cough for many weeks now; it sounds like a freight train gone made, the cough is so deep and noisy; I have taken chemo and radiation, and it seems that this cough startee getting really bad around the timerrame of getting my brain radiatiated, but not sure of that; it could have been a bit later; I am on my third lung cancer; first one was stage la nonsmal cell broncoalveolar, had surgery for that and it didn't come back; however, what did come back was a different kind of cancer (small cell) in same right lung but not at the exact spot where had lung surgery; I had chemo and radiation, and then when had cat scan ad pet scan, it showed that gone, but ANOTHER CANCER IN MY LEFT LUNG. I have had one treatment so far for that new cancer (taxol and something else); and the onc and radiation doctors are not sure I cdan have any more radiation because I have had so much of that already. Important note, is that every time I cough, it is very hard and deep, and makes my head ache for five or ten minutes. Any help or advice would be appreciated. Barb
  2. Khawk, in reading your post about your father-in-law (husband's Dad), several emotions and suggestions came to mind. l. First, is your Father in Law of the age where he can get Medicare? 2. It is unheard of how he was treated and how you were treated by the EM. 3. I highly recommend that you get a second opinion, and even a new doctor to take on his case. 4. I suggest gettting him referred to a neurologist, because I believe they specialize in these matters. 5. Get him referred to a rehab place that cares about their patients. 6. Even if you have to go out of town, get an unbiased diagnosis from a caring physician. 7. Medicare pays for rehab ordered by a doctor, so the VA should have nothing to do with this case unless he is not yet 65. If that is the case, you still need to proceed with the other suggestions to help him most. Any decent, caring doctor would not treat a patient the way they have him, and the hospital is a disgrace to tell you to deal with it. My heart aches for him, because it should not be this way. He deserves better. Keep us posted, and please consider these suggestions. Barb
  3. Hi, Laurie: WHAT A GLORIOUS WORD CATARACTS ARE! None of us would ever want them under normal circumstances, but after all that Bill has endured, THAT IS WONDERFUL NEWS! Keeping you and Bill in my prayers. Barb
  4. Nova, I think it would be a very good idea to talk your husband into going to the doctor even as he refused, but a better idea to call his doctor and prevail on the doctor to call your husband to go in! Barb
  5. Hi, Cindy: I am so happy to hear that you are doing so well! You are such an inspiration to all of us! YOO HOO as I think Don says sometimes - 6 years! How wonderful, and it gives all of us great hope! Thank you for sharing, and sending prayers to you now that you will continue to do well. Now you go on out and celebrate! Barb
  6. I think that at least some of the time, the side effects of chemo become more challenging to overcome, but the onc usually either gives a shot to help, or if the blood count is too low, will arrange for a blood transfusion. If she gets dehydrated (as I did), they will give her iv fluids to build her back up. One of the most important things the onc told me was to drink plenty of fluids, and I know I did not drink as much as I should have. Your mother apparently is not taking radiation, so that won't be a problem. I took radiation and it "burned" my esophagus so bad that I could not swallow, and therefore did not drink much at all because of the painful swallowing, and that is why I became dehydrated, I think. It seems your mother is really doing well, and she may be responding very well to chemo without really bad side effects, and that is great! Each person responds to chemo differently, and it appears that your mother is responding very well. Sending good vibes and prayer that your mother will continue to do well. Barb
  7. Connie, what a wonderful health testimonial you are! 12 years and still counting is wonderful and such an encouragement to all of us. The nodules are really small that you have, and I would guess we all have them and that yours is not cancerous! So happy for you Barb
  8. Teri, I can't add much to what has already been said by the other members. I do know that I had to have a blood transfusion (2 pints) because of low blood, and had to have iv fluids due to dehydration. Even though I drank as much as i could, I still got dehydrated. I was taking combination of chemo and radiation, and it knocked me to my knees. Barely able to function, but better now that I am off treatment for a few weeks until take scan on 25th this month. Hoping and praying cancer is in remissin, but won't know til then. I pray for you and Bill that he will retain his strength and that the treatments will help him but that he can get off them for a while. Barb
  9. I have had this metal taste in my mouth also, and attribute it to the chemo and/or radiation. Barb
  10. I had to have two pints of blood for low blood from chemo and radiation, not sure which treatment caused it. I think many cancer survivors taking chemo and radiation require blood transfusions and will feel better afterwards. Barb
  11. Great news, Katie! I'm soooooooo happy for you! YEAH! BARB
  12. Gail, that is such wonderful news! soon to be 6 years is awesome! Congrats, and yes, celebrate! You've come a long ways! This is encouraging for all of us. Barb
  13. Teri, I don't know much if anything about second line treatment, but just wanted to send my best wishes and prayers that the PET and other scans will show the tumors gone or shrunk. Barb
  14. Sorry that you wife has been diagnosed with SCLC, but since she had the cancer, this is a great place to come for information, knowledge, prayers, hope, and just plain support. The people are just so supportive--sort of like an army comes out when you have questions, worries, or need help! It's awesome. It sounds like your wife's cancer was caught early? and thus she may have a good chance for a cure or certainly for being in remission after treatments. Basically, I can only tell you what I went and am still going through, but that may very well not be what your wife can expect, so i will try to put a broader picture on my comments. It seems that most people taking chemo lose all or part of their hair after a few days or weeks, depending on the type treatment; but good old wigs, scarves, and hats take care of that problem. Then there is nausea for some people, but again, they can give anti-nausea medicine if needed. The radiation has no basic pain and you don't feel a thing during treatment, except some people get a very sore throat or have trouble swallowing - but it depends on the strength of the radiation and/or how well she tolerates the treatment--some people do quite well. Hope this helps. My last comment is if possible, get a second opinion. Barb
  15. So sorry to hear your Mom has been diagnosed with Stage IV lung cancer. It is important to know and believe that lung cancer is not necessarily a death sentence. It is a savage disease with no mercy, but with today's treatment options, there is hope that she can be treated and while not being cured, that she is able to live a fairly normal life. You have come to a family of lung cancer survivors, their loved ones and caretakers who are very kind, caring, knowledgeable, and who can understand what you are going through. There is a saying that you have one life before cancer and a different life after cancer, and that is true, because even though you may be NED (no evidence of disease) on your scans, and even in remission, there is still always the worry that the other shoe will drop on the next scan....but once you accept the new norm, you can relax a bit and know that if you do get another cancer, it can be treated also. It is sort of living with a disease and just doing what you need to do to keep it at bay. I take radiation therapy and chemo,but was never told that I should watch antioxidants. I don't take supplements, so don't now about that. There are so many people in this family who are by far more knowledgeable than am I about all this, and you have heard from some and will hear from more of them, I believe. Barb
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