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Suepm

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Everything posted by Suepm

  1. Suepm

    Traveling

    Thank you all for sharing your experience . I did have a VATS and my incision is quite small . My surgeon talked a lot about post op nerve pain before my surgery but I haven't experienced that . I am very grateful . Take care and I will post pictures. Suepm Sent from my iPad using Tapatalk
  2. Suepm

    Traveling

    I am almost 1year out of right upper lobectomy and am doing pretty good . My question is I am planning a wonderful family trip with family to Wyoming , Grand Tetons and Yellowstone . I am a little nervous about flying . I was Stage 1a . And am excerpting and walking and am back to work and am doing well . Any suggestions . Thank you . This is my fist family tri since the cancer . Thank you . Suepm Sent from my iPad using Tapatalk
  3. Suepm

    Shocking news

    Hi Lbelle , Thanks for the update . I was wondering how you were doing. Glad to hear you have a plan and are moving forward . God bless . Suepm Sent from my iPad using Tapatalk
  4. Suepm

    Shocking news

    Lbelle , I know this is such a shock . And you and your family are in my prayers. Did the oncologist have a treatment plan ? Suepm Sent from my iPad using Tapatalk
  5. Lbelle, we will pray for a clear report as well . Sent from my iPad using Tapatalk
  6. Lbelle , EBUS ? So glad you liked the new surgeon . Prayers
  7. Lbelle . How are you doing ? Keep us posted . Suepm Sent from my iPad using Tapatalk
  8. Hi Lbelle , I had asked my Surgeon if we could wait 3weeks for my surgery . I had been sick for several months and I was trying to clear up my lungs . He didn't have any problem with waiting . I will be interested in hearing about your second opinion . And praying for peace comfort and wisdom . Suepm Sent from my iPad using Tapatalk
  9. Lbelle , Sorry you are going through this . This journey can be very frightening .My experience with the VATS robotic surgery was good . I have scarred lungs from a lifetime of asthma and pneumonitis. Even with my history of lung disease I woke up breathing on my own . I spent 2 nights in ICU , one night because they couldn't find me a bed in the step down unit until the next day . I was in the hospital about 8 days . A little longer then some . My chest tube was putting out a lot of fluid . I am a nurse , but believe me that goes out the window when you're the patient and the diagnosis is cancer . Anyway I did get IV Tylenol the first few days and it really helps with pain . Problem is it is expensive . The brand name is Ofirmev . I just wanted you to know my experience was good . I just had my 6 month visit with the oncologist and my CT and tumor markers are good . I had adencarcinoma Stage 1a and they did a right upper lobectomy . I hope that helps . This site has been such a help to me I hope it is to you as well . Suepm Sent from my iPad using Tapatalk
  10. Absolutely . I've never thought I'd be glad to hear I have pneumonia . Sent from my iPad using Tapatalk
  11. Thanks Sent from my iPad using Tapatalk
  12. I have pneumonia . Sent from my iPad using Tapatalk
  13. Seeing pulmonologist today Sent from my iPad using Tapatalk
  14. I'm not new to the group , but I have a question . I am 5months out upper right lobectomy for stage 1a adenocarcinoma . Not feeling well this week felt like a virus . Fever , shortness of breath . Productive cough nothing colored . However today I started coughing up blood . Has this happened to anyone else ? Thanks Suepm Sent from my iPad using Tapatalk
  15. Thank you so much Tom . I am so glad I have this group turn to . No one to talk to , who has gone through lung cancer , is isolating. Thank you for this group it has been very helpful . Suepm Sent from my iPad using Tapatalk
  16. Hi Lauren , Thank you for your encouragement . I am doing ok. But still have a cough and shortness of breath . Suepm Sent from my iPad using Tapatalk
  17. Hi Donna , I willTry to give you the Readers digest version . I have long history of lung problems . Asthma , hypersensitivity pneumonia is and bronchi thesis .My first pulmonologist moved and after several years I went to another . He wanted to do a CT scan since I hadn't had one in years . That's when they found the spot on my lung . After a while they repeated the CT scan spot was still there . Did a PET scan showed scar tissue thought I was in the clear . 6months later it was a pulmonary nodule that had grown . Went to a cardio thoracic surgeon and he recommended a VATS . He said he would do the pathology while I was under and if it was cancer he would do a right upper lobectomy . It was adeno carcinoma . I feel blessed margins and lymph nodes were clear . My oncologist doesn't recommend chemo or radiation at this time . CT scans every 6months . I have a question . Is it typical to have a cough and shortness of breath ? And thank you so much , you all , for sharing your experiences . All the information you share is great . You are warriors !!! Suepm Sent from my iPad using Tapatalk
  18. You have wonderful memories to cherish . Sent from my iPad using Tapatalk
  19. Your documentary was great . Loved the idea of family and friends painting on your X-rays . Sent from my iPad using Tapatalk
  20. Had a right upper lobectomy Aug 30th . Adeno carcinoma Stage 1. I'm to follow up with CT scan every 6months for 2years.
  21. Hi Josie , New to the group , and am only 4 weeks post surgery . My experience was a Bronchoscopy to tattoo the tumor so the surgeon could . .visualize it . Then he did a VATS . Video assisted thoracoscopy ,and mediostinal lymph node dissection and biopsy . I didn't have a biopsy prior to the surgery ,my tumor was small and they were concerned about getting it with a needle. While I was asleep they sent it to pathology . The surgeon had told me if it was cancer he would remove the right upper lobe . It was adeno carcinoma and they did a lobectomy . Mine was Stage 1a , margins and lymph nodes were clear . The oncologist said I didn't need chemo or radiation , but I 'm to have a CT scan every 6 months for 2 years . I asked for physical therapy they came to the house for 3 weeks for endurance . My insurance won't pay for the facility that has the only pulmonary rehab . Outpatient . So I will be going to a conditioning program . My big problem is shortness of breath and fatigue . I am a pretty bad asthmatic as well . But they say the best thing is walking and use the incentive spirometer . I hope My experience helped some Sent from my iPad using Tapatalk
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