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Maryanne

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  1. Maryanne

    Go Pa.

    Well sorry all your Steelers fans, but its the wonderful Philadelphia Eagles going to the big game. Finally, we made it. Philly went completely bullistic. Fly Eagles fly to the road to vicotory Fly Eagles fly score a toucdown 1-2-3 Hit um low Hit um high And watch our Eagles fly, Fly Eagles fly On the road to victory E-A-G-L-E-S........ EAGLES!!!!!!!!!! Party time... Drinks for everyone!! Maryanne
  2. Hi Beth, You have been so nice to me and I thank you for that. Congrats!!! on your 17th anniversary. That is wonderful and you certainly have one of the good ones. I know you know how lucky you are and he loves you so much. You will have many more anniversarys to come. Just keep the faith like you have been doing. You have beaten the odds so far and you are like the Engerizer bunny, you keep going...going... and going. Keep it up girl!!!! Please keep us informed about your MRI. Fingers and legs crossed. Best of wishes Maryanne
  3. Hey Ginny, and all Philly fans, EAGLES.............SUPERBOWL #39 Orgasma Plus Maryanne
  4. Yo, I will have my orgasma straight up please... and hell, I would even ride the mechanical horse... Yippy...hee haw.... Another orgamsa coming up. oops.... hic up.... scuse me Night night, Maryanne ( snoring ) This is fun guys PS Another orgasma to me is a delicious choclate fudge Sunday, with choc and Mocha fudge ice Cream with hot fudge, wet nuts and gobs of whipcream....YUM!!
  5. RIGHT ON MARIE!!! E-A-G-L-E-S..........EAGLES!!!! Maryanne
  6. Ture Ginny, the Falcons are a running team, but they are also a Dome team, not use to cold weather and especially not snow. And Michael Vick, he loves to run....well he will be slipping and sliding so I don't think he will run as much. So keep the faith, Eagles will soar... they have a great defense and with everyone well now that is a awesome defense. And hey, there's Donavan and Westbrook. One other thing, T.O. will be in the SuperBowl!! Yes, we will go to the Super Bowl. Your husband and my dad will be smiling Maryanne
  7. Thanks Ginny That is the answer I have been looking for. Great news as we love the fireplace!! Iam so pumped about the game tomorrow. Could you imagine if tomorrow weather was like today!!!! But everything is going for the Eagles and the fans, they are going to beat Atlanta's B-tt. E-A-G-L-E-S GOOOOOOOOOOOO EAGLES!!!!!!
  8. Hi all, Just a quick question, as this was brought to my attention from a friend who has a friend who had a lung removed. She told me that she could not light a fire in her fireplace when he is over because it bothers him because it takes the oxygen out of the air. We do not have a gas fireplace, just a wood burning one. It is actually a double facing one. Faces the family room and the dining room on the other side. So far, I have not used it as Joel is not completely cured from the operation anyway. But I was wondering if I will be able to use it. I certaily wont if it could affect his breathing. Please people in our colder climates, give me feedback. Thanks much Maryanne
  9. OMG Tiny, that drinks sounds absolutely enticing... Yummy!! So glad for you Cindi... That is the best news. On a lighter note: to my Philly fans: I am going to just curl up with my wine and watch the Eagles, finally win... YES E-A-G-L-E-S....GO EAGLES. But first they have to clear all this 12 inches of snow Maryanne
  10. Hi, I am a little confused here. Why is there so much trouble after lung surgery with shoulder pain. Some of you needed an operation on your shoulder. Why? Joel had no problem lifting his arm at all. Was that because his was the top lobe? Just curious. Maryanne
  11. Hi All, To Ry, yes he does drink Boost once or twice a day, and I give him fruit and a grilled cheese sandwitch, I also give him a fattening milkshake every night. To Donna, He was not diagnosed with the thyroid problem until after the operation, actually now, as his heart rate was very normal before the operation. So we don't know what happened there. I just wonder myself if it had anything to do with the problem he had with the operation that the tumor was on top of his arota. I don't know maybe something happened there. Take care, still looking for infor about getting the IV with or without that portacath. it seems so far its about even for and against it. Where do they put the portacath? Arm, chest?? Maryanne
  12. Maryanne

    NED!

    Lynne, Great going girl.... best news every, Iam soooooo happy for you. Maryanne
  13. Well hi all, This is now Joel's 5th week since the operation. This week has been as far as I am concerned one of his worse. He is not eating, and has lost close to 30 lbs. Didn't even come down stairs the day before yesterday. He had constipation, but was given some liquid to take every two hours, and that did the trick. But he keeps gaging a lot. He had an echogram taken today to find out about his heart rate being so high. Before that we received a call from his Hematology oncologist today and she told me that they got the results of Joel's blood work, and it seems he has hypertension brought on by an over active thyroid. Now he has to see an endocrinologist. She also put him on a new medication, lopresser, added today to help with the thyroid condition. She said this should help him to gain weight. Reading the side effects I don't like the looks of this one at all. Poor guy, he just cannot start feeling good. The pain patch isn't working too good, because he went back to the percocsets now while wearing the patch. He said he vomited alot this morning before he went for the test. ( a friend took him) By the time I got home he did eat a little bit and it stayed down. I have one question to people who have chemo (adjuvant) he is having carb/toxal. How is this administered? It is an IV or do they have to put in a stint (sorry spelling) into his body first.? He is going to get 4 sessions, 3 weeks apart, 5 hours each per session. regards Maryanne
  14. Hi Lucie, Just wanted to say great that you are getting a break. Lord knows we all need that. I hope you are feeling stronger each day. Your church group Iam sure is a blessing to you and I am sure you are to them. I don't know you that well as I am new here but you have answered all of my posts and for that I thank you and Don. Maryanne
  15. My deepest sympathy for you and your family. Your mom is in a much better place right now, feeling no pain and looking down on her wonderful family who loved her unconditionally. She knows how much she was loved and at this point if feeling overwhelmed for your pain. You will get through the grieving process but you have to give time to heal. After the grieving process your mom would want you all to heal so she could move on. Right now all the grieving is keeping her near. Remember all the wonderful times you had together and know that she is with you always. She left her sick and deseased body, but her spirit is very much alive. Her spirit will always be with you. The time will come for you or any of her love ones to join her and she will be there to help you with the transition. The last thing your mom would ever want is for anyone to feel guilty. That is not an option. It was just her time. She wants you to know that. Good bless you and your family and know that in your heart of hearts that this was Gods will and nothing you or your family could have done to prevent this. I offer my deepest sympathy to you and your family and this most difficult time. Maryanne
  16. Wow Jim, Talking about beating the odds!!!!! That is absolutely fantastic. "Whatever the mind can conceive and believe it can achieve" I am new here but had to wish you all the luck there is. Doesn't it feel great to feel so up!! Maryanne
  17. Hi All, Of course as usual thanks again for the feedbacks. Joel actually works from home on his computer. He owns 2 web sites that his gets some income from. But right now not enough income. My salary with Medical, a miniVan with Insurance and gas paid by my company helps us to make ends meet. My kids are grown and out of the house. But I do have to work. I am a sales rep and I have to visit my stores. Being a sales rep gives me freedom to make sure I can call on the stores that are close to my house if need be. I can take off early and no one would know the difference. I am lucky about that part. I will talk to the doctor about trying to get his chemo on a Thurs. He will be going to Cooper Cancer center which is only 8 blocks away from our home. So we are lucky for that also. I am just still concern about his being so fatigued. I really have to get him to walk instead of couch potatoing all the time. Or a least try and get him back to his computer to work somewhat. He could not twist the cap off a bottle of Boost. He actually used a wrench. I have no trouble getting the cap off. I can't believe that he is that weak. But now with the advise from his nutrititionist , hopefully,this will change as he starts to eat. Like I said before, he is going to get a eckogram on Monday to see about his rapid heart rate. One other question, do you see any difference between generic and non generic percocets. I had to finally go to generic as of todays perscription as the orginal was costing me too much money and my ins. will only pay a small amount of money for brand if there is a generic available. So this time I got the generic. It cost me $5.00 for 120 pills compared to $150.00. I hope these pills work the same it is Oxycondone which is the generic for percocet. I did get him the Fentynal patch which he probably will not need as many pain pills now. Thats all for now, take care all and I thank you from my heart for all the input you give me with my postings. Be good to yourself, Maryanne
  18. HI All, Thank you as always for your posts. I am concerned about his heart rate flucutuing up to 137. He is having a ekcogram on Monday at a Cardiac office. Glenn, I printed out your response and gave it to him as you were very close to what Joel was disgnoised with. That seems to help him and is giving him the motivation to use that breathing device. But last night I almost lost it. We were watching Joan of Acradia, and I started crying. I was so upset with myself, doing this in front of him. I blamed it on the show. I just feel so bad for him and I know he is upset about the up and coming Chemo. That is what I was thinking of when the tears happened. I had no idea that each session would take 5 hours. I can't imagine what he will be going through there. I am also concerned about how much work I will have to take off. Right now Iam the only source of income. My company has been wonderful with the time off I took with his operation and his recovery. But I am back to work now. I can put in for FMLA (family medical leave) I really do not want to take a lot of time off unless I really have too. I had no idea that the Chemo would be once every three weeks. He would need 4 bouts. Could I get away with taking off just a couple of days after the Chemo? I just don't know how to handle it. I certainly do not want to leave him when he is feeling so sick. Any suggestions? Also with Carbo/toxal I read you can get leg pain. How long does that last for?? Thanks for you help. I wish you all a great weekend. Maryanne GOOOOOOOOOOOOOO EAGLES!!!!! Right Ginny and my Philly, South Jersey people, and to Cindi (Culpepper who?? Moss is a real P in the A our defense will destroy him)
  19. Hi all, Thanks for your input. Joel raspy voice is not from a tumor near his esphasgus. His tumor was taken out of his lung. Also, Iam trying to find out from those of you who had the Carboplatin/Toxal how long it took for the fatigue to leave. If he is getting 1 round every 3 weeks, will he feel fatigued the whole time? One other question: for those of you who used the Fentynal patch, did that work for pain? Thanks Maryanne GOOOOOOOOOOOOOOOOOOOOOOOOOOOOO EAGLES!!!!!! ( whose is Culpepper??)
  20. Hi all, This was Joel's first visit. He met with the Onocologist nurse, hematologist oncologist, the chemo oncologist They were incredibly supportive and attentive to his needs. They even brought in a nutritionist to help him with his eating. He went from 178 to 155 lbs. He just does not have an appetite. The nutritionist told us to bring fiber into his diet such as fruit, salad, fish, chicken, tuna, eggs, peanut butter and cheese. Also protein drinks. I do make him a milkshake every night, which is good. She also said that canned fruit cocktail is good.. She said instead of eating 3 large meals to try and eat something every 3 hours. Maybe a half of tuna sandwich, then a couple hard boiled eggs, protein drink, fruit, the other half of sandwich etc. If he can do this different times during the day, it would increase his metabolism. His heart rate has been accelerated, which they do not know why. He had those two x-rays on Monday to make sure there was no blood clots. Those test came out negative. His heart rate fluctuates up to 137 which is scary. He is scheduled for a Ecko of the heart on Monday. They want to start Chemo, when he is strong enough. So he has another appointment in 2 weeks. They want to do 4 treatments. One every 3 weeks. The chemo they use is Carboplatin/Toxel. I know he will lose his lovely mane but so be it. He seems to be getting nausea from the Percocets, they recommended he try 25 mg of the fentynal patch and to use the percocset if he happens to feel more pain. They also gave him a scrip for compazine for the neusea. Since the operation, his voice has changed. It is lower and more raspy. They didn't seem to have any reason why for that, even though they are concerned. Has that happened to any of you? I guess that is it for now. I just hope he gains his appetite and strength back. He still is not walking or using that damn breathing thing like he should. Even though he knows he should. He will do it when I tell him, but now that I am back at work, I am afraid that he will ignore that. They did ask him if he wanted any anti-depressants, but he refused. He said his has the Xanax if he feels he needs it. Anyway the is the update for now. I will appreciate any feedback. I hope eveyone had a good week. regards Maryanne ON A LIGHTER NOTE: TO ALL YOU PHILLY FANS.... E-A-G-L-E-S...GOOOO EAGLES!!!!! To all your minnesota Vikings fans.....
  21. Hi Cheryl, You are very brave. But as Iam new to this, what is WBR? I imagine that is some kind of radiation. best wishes, Bless you Maryanne
  22. Cindy, thank you so much for that information. Wow, you really have been through so much!! Please take care, Maryanne
  23. HI all, Andrea, Dadstimeon (sorry do not know your name), John , funny Beth thanks for your feedback and as usual your good wishes. John you seem hesitant about the chemo in his early stage. You feel he should look into a clinical trial rather then doing the chemo route? Cindy, Iam insterested in your story. You seem to have the same stage as Joel including having the upper left lobe removed. Iam curious to know how they caught it in you in an early stage. Also everything on your profile seems to end on Nov. 6, 2003. Have you been getting scans every three months? I imagine you have and its been NED. Which is very encouraging to me for Joel. Also how was the Cisplatin/Gemzar for you. Did you lose your hair or feel really neaous or fatigued? Thanks all, I will keep you updated on his visit to the Onocologist on Thurs. I just wish I had a recliner for him. Everyone seems to have one. He has been in our bed, sleeps on his back and sitting up. Iam sure he would have been more comfortable on one. Oh well, at least I have him near me. I think I mentioned that today was my first day back to work. And he did fine by himself. Also, I think the percocets are starting to make him a little sick now. Sometimes he vomits when he takes them. Maybe when we go to the Onolcologist he will change to something else. take care you all, bless you Maryanne
  24. Thank you for your posts, Ginny and Kate. The reason he is opt to do chemo. is preventive. Even though he is "cancder free" right now. I just dont trust those beasts. There may be some too small to detect. On his profile I had down left upper lung, I mean left upper lobe was removed. Which I just changed. Also, his Pulmonist Doc. said that with the operation he has a 65% of being cured and with the Chemo it would be 70%. I like those odds. Good luck to you both. Getting ready to go to work. Will keep you posted on what his Onocologist says. take care Maryanne
  25. Hi All, I moved over to this NSCL forum, as you all have welcomed me and certaily made me feel comfortable meeting you all. I just wanted to thank you all for your imput and help. There certainly is a ton of infomation here as well as support. Joel has an appointment with his Onocologist on Thurs. and they will talk about adjuntive (?) chemo. This is his 3rd week since surgery, 2nd wk home. He had 3 X- Rays taken today, and did a lot of walking, which he certainly was not used too. He did really well (took an extra pain pill) But was absolutely exhausted tonight. Didn't use his breathing thing today at all. I have to go back to work tomorrow as I have been off for a month. I hate leaving him, but I am confident that he will do fine by himself. He can always call me on my cell if there is any problems. I will keep you posted what his Onocologist says about the Chemo. This is one thing he is not looking foward too. take care all... Maryanne
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