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Maryanne

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Everything posted by Maryanne

  1. Thanks Lilly Joel will be speaking tomorrow at our walk on how important it is to get the awareness out there and the funding that is needed. Not just for the walk but to continue to support our cause all year. Maryanne
  2. My husband was diagnoised back in 04 by acciddent. Hurt his back and they took X-Rays.... they found a tumor on his lungs... Lucky, lucky lucky as he felt fine. diagnoised with 1B had a left lobe removed. Chemo...2 more nodules aoppeared 6 monyhd later had a wedge section. Re-diagnoised at IIIB. Had a 2nd round of chemo. Another small nodule appreard. When it showed growth his surgeon did not want to cut him again. He had that wonderful cyberknife and has been LC free for 1 year now. Maryanne
  3. Just to bring the good news that Joel is now joined the 5 year survivor list. It was 5 years yesterday that he was first diagnoised. As you all know what a horrible thing to find out..... we were so scared and did not know where to turn. Thank G-d for this site for helping us get through. Here's to many many more. + Maryanne
  4. ((((((((((((((((((MICHELE)))))))))))))))))
  5. Michele, I'm so sorry to hear about the passing of your sweet husband. I say sweet because that is way you describe him. What a wonderful soul he has. Pleae take some comfont in knowing you were with him in the end and you had made his passing so much easier having you there and talking about all those sweet memories. To make a person smile in a state like he was in was an indication that he did hear you and how much he loved you. His sick physical body may be gone but his soul will live on and he will be waiting for you when it is your turn to join the eternal. And it will be a glorious reunion. You were blessed to have someone who loved you unconditionally and I can't imagine the grief you are feeling. I only know that even though your heart is broken it will someday be whole again and he will live on through you and all the wonderful memories you shared together. My heart to yours, Maryanne
  6. Maryanne

    Sandra

    Extremely heavy heart reading this post. She was a beautiful caring person who will be incredibly missed. This is a sad day. Maryanne
  7. Dearest Lori You were always a WONDERFUL daughter. You were the one who was right there for her during all she went through. She is looking down upon you with so much love and so proud of the woman you have become. My heart to yoiur Lori..... Maryanne
  8. Maryanne

    H1N1 vaccine

    You should try and get Tamiflu and keep it just in case. Its hard to get docs to give perscriptions but in cases where a persons immune system is low or is a threat to your lung capacity you could probably get it. Here is the link if you want to read about it. Has anyone taken it in the past? http://www.tamiflu.com/ Maryanne
  9. Beautiful letter Nick... with so much meaning. I hope it helps someone on here who have been putting off seeing or just calling someone dear. I know how much you loved your mom and I know you still mourn her. My condelences goes out to you once again for all you have endured during her illness. She also had a wonderful son and daugher-in-law by her side. She was so lucky to have you both there for her. I know she is with you and really enjoying that grandaugher of hers. My heart to yours, Nick Maryanne
  10. I am so sorry to hear the news about your friend..... and so young... it just is not fair. Any age isn't fair but being so young with little ones is really pulls at your heartstrings. I pray that they could do something to help her. It so hard as I don't know what to say to make this any easier. C sucks and we have to find a cure for this monster! I will pray for your friend.... Maryanne
  11. Dearest Sarah, First of all, sorry I found this post so late, but I am so glad you posted. Yes, your dad was definetely one of the people on here who will always be rememembered. He was always here for us and has help me persoanlly and so many others through all our endeavors we had to endure be it the victim or care giver of this monster. The whole time he never complained about himself. There were times we had no idea what he was going through as he kept it too himself. Today is the 7th and since I missed the anniversary of his passing I will light a candle expecially for him today. If it was not for you dad I would not have known cyberknife exsisted. Because of his knowlege my husband was able to have it done and has been LC free for close to a year. We will find out next week if he is still clean. I could only imagine the grief your family is going through as he was really a very specail soul. Heaven received a wonderful gift and so lucky to have him. I know how much he loved his family and grandchildren and how hard he faught this dreaded disease to be around his love ones as long as he could. There is a big void on here without having your dad here. He will always have a special place in my heart and so many people he touch on here. I know he will always live on through the hearts of all his loves ones and through you and his beautiful family his glowing soul will always be glowing and shinning brightly... I miss him too Sarah.... he investigatged everything and was one of the most knowledgeable people on here. My heart to yours sweetie, Maryanne
  12. Hi Denise, Besides you being his best supporter and caregiver, it seems somebody up there likes him..... That news is so incredibly wonderful!!! Keep that good news coming... Maryanne
  13. Maryanne

    tomorrow

    Lilly CONTRATULATIONS.... you are very lucky lady!!! Go celebrate as now you certainly can relax. Maryanne
  14. Maryanne

    Cyberknife

    Yes my husband had it. Read his profile below. It is an incredible treatment. When the LC returned for the 3rd time they had this wonderful treatment cyberknife, which prevented him from being cut. I had been reading about it for 4 years but at the time it was not FDA approved. When he was diagnoised last time and the tumor grew, that same day there was an article in our local newpaper.... it read.... CYBERKNIFE COMES TO SOUTH JERSEY! This time it fianlly was FDA approved and Insurance paid for it all. Joel was one of their first patients. It was an experience for him that he will never forget as it was simple and he had NO side effects! Work like a charm and blew that tumor to smitherines! Good luck and don't worry you will be fine. You are so lucky to be able to have it. He has been LC free for 9 months in may...now hopefully a year as his next scan is coming up next month. The 9 months was the longest he has gone without it returning. Of course we are praying he is still NED (no evidence of disease) Maryanne
  15. Judy, I just knew you were going to get good results! That is such great news. I am also glad you had the test for reasurrance and what great reasurrance! I will HAPPY DANCE right next to you!! Maryanne
  16. Richard that is GREAT news..... Go out an celebrate! Maryanne
  17. Join you in a drink? You know I will be right by your side. Absolutely the BEST news. If you had a lion there I would give a big ROAR! But don't know what to do about elephants.... but the drinks are on me! WHOOOOOOOOOOOOOOOOOOOORHOOOOOOOOOOOOOOOOOOOOOO GERI!!! Way to go girlfriend!!! Maryanne
  18. I am so sorry to hear the loss of your dear mom. I know how much that hurts and the void that it causes in your heart. Please accept my deepest condolences. Maryanne
  19. I am glad you went Barb and it actually turned out to be a good time. I could only imagine how much anticipation was going through your head. But glad it turned out to be a pleasant time and certainly glad you got out and went. Maryanne
  20. Oh Debbi, I am so sorry to hear of the passing of your friend expecially since it brought back so many of the struggles you went with your wonderful husband. My condolences to you and her family. Maryanne
  21. Hope your're feeling better sweetie! Maryanne
  22. She will be deeply missed... Maryanne
  23. So upsetting Connie.... another member. I feel so bad that she was in pain. My heartfelt sympathies goes out to her husband and family. Sad sad news Maryanne
  24. My heart to yours Peggy.... Maryanne
  25. I'm so sorry where you are at right now. I hope today fines you feeling better. You guys shared a loved that was so powerful that even in death it will not tear you away from each other. He is your soul mate and no matter what he always will be. I know you moved on or shall we say making the best of the situation, but I can see how torn apart you are. I wish I had some words of wisdom to help you right now. All I can say is that I hear you and feel your pain and pray that your being a "mom" will help you get this this gloom you are feeling. My heart to your sweet Colleen.... Maryanne
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