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StevenP

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  • City
    Boston
  • US State (if applicable)
    MASSACHUSETTS
  • Country
    US
  • Status
    Yes
  1. Hello Tom, thank you for the welcome and I am glad I found your folks. For me it has been a long strange trip. I did stop chemo in late 2014 because I felt it was slowly killing me and ruining my quality of life. I ended up spending a lot of time in a hospital bed in 2015 which I do attribute to the chemo screwing up my immun system. Feeling like crap 2 out of 3 weeks in cycle. Fortunately, I have a wonderful palliative care team that help me understand my options. In Feb of this year, my docs came up with opdivo as a possible treatment. Fortunately, it didn't have the nasty side effects of chemo (just fatigue and some joint pain). In addition for a period, I did experience some shrinkage of my tumors. After 6 months it stopped working and my docs took me off. They did find a clinical trail combining to immunos which I've been on for 3 weeks. Time will tell. steven
  2. Hi all, my name is Steve (65 yr male) and I was diagnosed with nsclc (metastasized to brain, lymph node, pancreas and adrenals) in January, 2014. Between then and now, I have had 10 chemo treatments during 2014. Cyberknife treatments on brain leasons radiation on my chest and finial, treatments with opdivo. Opdivo was effective for a time, but alas, it stopped working. I reasently, started a clinical trial phase 1 of two immunotherapies- GDP-0919 and Atezolizumab. I would love to hear from anybody familiar/experienced with this trial or the meds. That's the short story, but there have been many more "fun" things I have gone thru
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