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BridgetO

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Posts posted by BridgetO

  1. It really does sound miserable for both of you, LexiCat and Susan. Susan, I hope you can get a handle on your digestive issues. If you had a day of vomiting and diarrhea, you probably got dehydrated which may have causes your fatigue anxid shakiness. I'm thinking about dehydration because I had a day of diarrhea and some vomiting recently for unknown reasons, not treatment related. I used Oral Rehydraton Salts, which we keep on hand for just such things. If your not familiar with ORS, it's like the adult version of pedialyte. It comes in an envelope that you mix with a quart of water. It gets you rehydrated faster than plain water. 

    LexiCat, I hope your eye and shoulder get healed soon. Is your daughter able to drive  you to your appointments? I hope so!

    Bridget O

  2. Hi and Welcome to the club nobody wants to join!  But a lot of us are glad we're here.  This is a goo place to find info and support. I seem to recall we'v had somebody else on this forum with neuroendocrine NSCLC, Maybe you'll hear from them. In any case, keep us posted and let us know what questions you have and how we can support you. 

    Bridget O

  3. Hi Dayanna and welcome. i'm not knowledgeable about EFGR mutations, but there are some here who are, such as Tom G, above. You'll probably hear from some others.  Lung cancers generally, including early stage ones are pretty susceptible to recurrence.  I  also know that cancers with different biomarkers behave differently, including the way they respond to specific treatments. 

    It sounds like you have a rare type. Is your oncologist experienced with the type? Not just EFGR, but the specific alterations? You might want to consider a second opinion. Four years ago  I had lung adenocarcinoma stage 1a, KRAS mutation. Pretty cut and dried--treatment was lobectomy  with nothing else recommended (except surveillance CTs). But eariler I had an  unrelated  stage 3 gynecologic cancer that was a rare type, in fact there were no published studies at that time about how to treat it. My oncologist proposed a "standard treatment". I sought out a specialist in rare gynecologic cancers, who had experience with the type. She recommended some chemo in addition to the chemo/radiation my onc recommended. I had the additional chemo and I'm glad I did. I've now been NED (no evidence of disease) for 9 years on that cancer which had a "dire prognosis".  So I guess I'm an advocate for second opinions, especially in rare cases.

    All the best to you,

    Bridget O

  4. Hi Karen,

    I'm glad to hear you're now headed in the right direction and sorry you had such a struggle with the air leak and tube, I had a continuing air leak. They released me from the hospital with the tube in place. Thet  tube caused me some discomfort and, at times, jabbing pain, but it was way easier than what you went through. It was good you persisted with the doctors and got the surgery, though.

    Bridget O

  5. Sandwiches? Hmm. Since I eat very little meat, that eliminates most good sandwich fillings. Now that I'm thinking sandwiches, though, I'm wistfully remembering one I used to eat years ago at an Irish bar in Berkeley, thick slices of rare roast beef on a crisp-crusted sourdough roll that had been dipped in jus. Add a little horseradish, nothing else. Thinking about it makes me hungry for beef!  Currently, I do like grilled cheese. I disagree with Tom that a sandwich has to have 2 slices of bread. One of my favorite breakfasts is a piece of toast or several slices of baguette, topped with soft goat cheese (chevre) mashed up with some orange infused olive oil, and a bunch of sliced radishes. I think of it as a sandwich, even though it has no top slice.

    Bridget

  6. LINan,

    I'm glad to hear that your surgery went so well! Yay! I had a lobectomy and mine was easy also. I went home with the drain tube in and had it for about 10 days, but no pain at all on removal. I think reports such as yours (and mine) really are an encouragement to people who are worried about surgery. Thanks for posting. Keep us posted on your recovery.

    Bridget O

  7. Hi SamGirl.  

    Everybody has given you some good info and advice. My naturopath advised against making any dietary changes while in active treatment. This makes sense to me. it's important to avoid losing weight while having chemo and/or radiation, or if you can't avoid it, minimize it. Two things it's important to get enough of are calories and protein. If you have chemo, you may have to eat whatever you can tolerate.

    I had concurrent chemo and radiation for a non-lung cancer. The radiation affected my digestive system and there was very little I could eat that wouldn't cause nausea, vomiting and uncontrolled diarrhea. I didn't have a oncology nutritionist-- nobody suggested this to me. I had to figure out by trial and error with a lot of error. I lost 27 pounds in a couple of months. I could have used some help!  Getting on board now with a nutritionist will be especially helpful if you need to have chemo or radiation.

    Bridget O

     

     

     

     

  8. My hemoglobin went down to 8 before I finally agreed to a transfusion. I just really didn't like the idea of transfusion but my oncologist really pushed me to agree. She said if my hemoglobin got much lower, I'd be at risk of heart attack. Has anybody else heard this?

  9. When I finished Carboplatin and docetacel (for a non-lung cancer) my hemoglobin continued to go down. I started craving red meat. I usually eat it about 2-3 times a year, but I ate it every day. It didn't help. When I finally agreed to a transfusion of red blood cells, my energy improved and my meat craving disappeared. 

    Bridget O

  10. Hi Claudia, I agree with Tom that this will be a piece of cake compared to what you've been through. I hope they can do the VATs (laparoscopic). I had a lobectomy by VATS and it was pretty easy as far as surgeries go. I was walking around the unit the day of the surgery and discharged the following day. And I'm no spring chicken, either. More like a tough old bird.

    I recommend Lou's article about lobectomy tips and tricks. If you have any questions about lobectomy, I'll be happy to answer, if I can.

    I really hope they can do this surgery for you!

    Bridget O

  11. I'm glad to hear you got this sorted. I can  imagine the anxiety this caused. A couple of years ago, I had something similar, also involving insurance thorugh my prior employer, the COUNTY!  Although it was a group plan, it was direct pay to the HMO. I'd had it debited from my checking account for years. When rates changed at the first of the year, they got my rate wrong, When I called their attention to it, they stopped debiting entirely.  Long story short, the county and the HMO bounced me around, the county saying it was resolved and the HMO saying all issues for group plans had to go through the employer. It took me almost 5 months and at least 20 hours of my time to sort it out.

    I wasn't having cancer treatment at that time, but having had treatment for 3 cancers, I was really in fear of losing my insurance. I wish I'd had the woman in your HR department, and I'm glad to hear that you did. 

    I hope your treatment goes as well as your insurance issue.

    Bridget O

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