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BridgetO

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Posts posted by BridgetO


  1. Wow, what a drag!  I had low hemo from chemo (Tx for a non-lung cancer) and had no energy or stamina. I finally agreed to a transfusion of red blood cells and felt much, much better the next day. I haven't had any experience with pleural effusions, though. A lot of people on these forums have had them and probably some will share their experience. Hang in there, Scruboak.

    Bridget O


  2. Hi Glenn,

    I agree with Michelle about looking for a doc that  has some experience with your type of cancer. Prior to my lung cancer, I had a rare form of gynecological cancer, stage 3, Grade 3 (very aggressive).  There were literally no studies published about it, it was that rare. So my oncologist  had no experience with it and proposed to treat it like any other cervical cancer. She believed my prognosis to be "dismal" I sought a second opinion from a doctor at our local Comprehensive Cancer Center. She had some experience treating this type of cancer and recommended some additional treatment, which I had. I think this treatment likely saved my life. Despite the prognosis, I've been NED since my first line treatment was completed, almost 9 years ago   If you're not able to find a local doc with the experience you want, you could look for one elsewhere, who could review your records consult by phone.

    Hang in there,

    Bridget


  3. I would ask whatever doc ordered this test for a line by line interpretation. Do you have the other pages it refers to? If not, I would ask for them. To me, this suggest their may be clinical trials for some of these biomarkers.


  4. Hi Ashley and welcome. You've gotten some really good suggestions and information from the folks who posted above. I don't have personal experience with small cell LC, but I want to reinforce what Steff said about treatment being aggressive because SCLC is typically quite aggressive. I also like her suggestion of having someone on speaker phone at his appointments if COVID_19 prevents someone from being there personally. 

    In response to the question of him driving himself to chemo and/or  radiation appointments, I would say it all depends. My NSCLC was Stage  1a, and I had only surgery for it. I did however, have two previous unrelated cancers. For one I had about 30 radiation treatments, and for the other about  the same number of treatments, concurrently with weekly chemo, plus 3 rounds of addtional chemo. I drove myself to all  those but the first chemo. It was especially helpful to have someone there for the first one, because the chemo pharmacist and nurse went over a LOT of information and also so we could see how I reacted to the chemo. I was fine afterwards. I never had the fatigue that some people develop with radiation.  The drive to my appointments was only about 4 or 5 miles. So driving myself was pretty easy. I can see that for some people, with long drives, difficult reactions to chemo, and/or radiation fatigue, it wouldn't b so easy.

     I wish your dad and  you all the best.

    Bridget O


  5. Hi Sheri and welcome,

    I'm sorry to hear that  your dad is having such a hard time with his cancer treatment. I haven't had radiation in the neck area but there are others on the site who have and I hope you'll hear from them.  Some people have had relief from mouth sores with "magic mouthwash", which is a specially compounded prescription.  Has he tried that? Another suggestion I have is to ask for a referral to a palliative care specialist. To be clear, I'm not talking about hospice, although palliative care specialists can be involved in hospice services. Palliative care focuses on symptoms of serious illness and side effects of treatment, in order to not only relieve pain but also improve quality of life. A person can have palliative care while also having treatment aimed at curing  the illness.  i wish all the best for you and your dad,

    Bridget O


  6. Hello Mickson. I'm really sorry to hear about your father's multiple medical problems. This is a terrible time for someone to be hospitalized and without family support. You are facing a big loss and I can only hope that the loss will  be temporary and you'll see him again.  Cancer is terrible and cancer in the time of coronavirus is worse. Hang in there. I' be thinking of you.

    Bridget O


  7. Trish,  I should have mentioned that I never had a biopsy. My nodule was in a location that made it impossible to biopsy either with a bronchoscope or needle., so I can't tell anything firsthand about those prosedures. My pulmonologist, my thoracic surgeon and the tumor board all agreed that it looked like a lung cancer and not a met, and they were right.

    Bridget


  8. Hi Trish and welcome here. I'm  also a cancer third-timer with my lung cancer. I had a stage 1, grade 1 breast cancer in 2008 and a stage 3, grade 3 endometrial/cervical cancer in 2011. In 2016 a routine CT scan to surveille for possible recurrence or metastases of the gynecologic cancer showed  small, approximately 10 mm nodule in my left lung. It turned out to be a primary lung cancer  (adenocarcinoma stage 1a) and I was relieved it wasn't a metastasis.

    Your mass is obviously bigger than mine and it looks like you may have lymph node involvemet, so if this is a cancer, it will probably be greater than stage 1. I recommend that you ask for biomarker testing of your biopsy sample if it is diagnosed as malignant.  Here is where you can get information about biomarker testing: https://lungevity.org/for-patients-caregivers/lung-cancer-101/types-of-lung-cancer.  There are a lot of new cancer treatments out there and the biopsy with biomarker testing can help determine what treatment is best for an individual.

    Hang in there and let us know how the biopsy goes and what the results are.

    Bridget O

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